Getting Needs onto the Research Agenda
From WikiAdvocacy
The most electrifying development in advocacy organizations for medical conditions is participating in, initiating, focusing and conducting research. Where organizations once met only to share tips and provide moral support, now they are lobbying Congress for increased appropriations, publishing standards of care for the conditions they support, and working directly with physicians and scientists to design, populate, and report on studies. With this shift, advocacy organizations have developed a powerful potential to make a significant, positive impact on knowledge about their members' conditions, the availability and efficacy of treatment, and corporate and government policies.
[edit] Internal Links
- Educating Your Membership about Research
- Patient's Bill of Rights
- Genetic Privacy
- Promoting Research on a Condition
- Funding Research by Others
- Barriers to Rare Disease Research
- Consumers and Researchers: Making It Work
- Benefits of Collaboration with Advocacy Organization Community
- Facilitating Quality Research
- Research Models
- Blood and Tissue Banks
