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  1. (hist) ‎Disease Advocacy Organization (DAO) Manual ‎[55,559 bytes]
  2. (hist) ‎Donations ‎[37,624 bytes]
  3. (hist) ‎Social Networking ‎[35,241 bytes]
  4. (hist) ‎Fundraising/Third Party ‎[31,913 bytes]
  5. (hist) ‎Conferences, Workshops, and Meetings for Affected Individuals ‎[24,559 bytes]
  6. (hist) ‎Publicity and General Media ‎[21,298 bytes]
  7. (hist) ‎Joint Fundraising ‎[21,129 bytes]
  8. (hist) ‎Building a Website ‎[19,848 bytes]
  9. (hist) ‎Biobank and Registry External Relations ‎[19,047 bytes]
  10. (hist) ‎Your Organization's Name Is Important ‎[17,490 bytes]
  11. (hist) ‎Fundraising ‎[17,132 bytes]
  12. (hist) ‎Setting Up A National Conference ‎[16,521 bytes]
  13. (hist) ‎Internet Services: Mailing Lists ‎[14,973 bytes]
  14. (hist) ‎Getting a Biobank or Registry Started ‎[13,141 bytes]
  15. (hist) ‎Orphan Drug Application ‎[12,595 bytes]
  16. (hist) ‎Newsletters and Bulletins ‎[12,571 bytes]
  17. (hist) ‎Attending Professionals' Annual Meetings ‎[12,221 bytes]
  18. (hist) ‎Getting Grants ‎[11,513 bytes]
  19. (hist) ‎Developing a Governance Board ‎[11,311 bytes]
  20. (hist) ‎Youth to Adult Transition Issues ‎[10,417 bytes]
  21. (hist) ‎Biobank Sample Collection ‎[9,901 bytes]
  22. (hist) ‎Registry and Biobank Ethics and Governance ‎[9,561 bytes]
  23. (hist) ‎Support for Individuals and Families ‎[9,531 bytes]
  24. (hist) ‎Blood and Tissue Banks ‎[9,047 bytes]
  25. (hist) ‎Helping Your Membership Help Your Group ‎[9,032 bytes]
  26. (hist) ‎Maintaining Your Membership ‎[8,722 bytes]
  27. (hist) ‎Setting up Useful Systems ‎[8,513 bytes]
  28. (hist) ‎Why Go There? ‎[8,509 bytes]
  29. (hist) ‎Internet Services: Listserv Guidelines Netiquitte Help ‎[8,455 bytes]
  30. (hist) ‎Knowing Your Community ‎[8,241 bytes]
  31. (hist) ‎National Institutes of Health (NIH) ‎[8,098 bytes]
  32. (hist) ‎Advisory Boards ‎[8,014 bytes]
  33. (hist) ‎Main Page ‎[7,994 bytes]
  34. (hist) ‎Scholarships for your participants/families/members ‎[7,955 bytes]
  35. (hist) ‎Getting Your Community Interested ‎[7,917 bytes]
  36. (hist) ‎Barriers to Rare Disease Research ‎[7,893 bytes]
  37. (hist) ‎Accessibility of Tools ‎[7,861 bytes]
  38. (hist) ‎Childcare ‎[7,770 bytes]
  39. (hist) ‎Dealing with Death ‎[7,750 bytes]
  40. (hist) ‎Obtaining and Maintaining Registry Data ‎[7,643 bytes]
  41. (hist) ‎Additional/Supplemental Resources ‎[7,565 bytes]
  42. (hist) ‎History of Advocacy Organizations and Genetic Alliance ‎[6,988 bytes]
  43. (hist) ‎People and Roles ‎[6,832 bytes]
  44. (hist) ‎Creating a Natural History Survey ‎[6,736 bytes]
  45. (hist) ‎Connecting Individuals ‎[6,700 bytes]
  46. (hist) ‎Brochures and Fact Sheets ‎[6,675 bytes]
  47. (hist) ‎The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates ‎[6,564 bytes]
  48. (hist) ‎Genetic Alliance BioBank ‎[6,467 bytes]
  49. (hist) ‎Internet and Web Resources ‎[6,400 bytes]
  50. (hist) ‎Staff ‎[6,363 bytes]

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