Starting Points for Planning Materials

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Many websites have a section called FAQ (frequently asked questions). Devised as introductions to the text-only discussions that preceded the web, these were simple collections of questions and answers that came up over and over again, so that users new to the forum could (hopefully!) get an orientation before plunging into the discussion. FAQ for your organization can be a useful place to collect the basic information that you will use to paint the face of your organization.

Log contacts: It's a good idea to log contacts to your organization, whatever the reason. People call to confirm addresses, get basic information about your organization or the condition it supports, make a request that involves research or analysis, or get involved in your organization. Keep track of the general volume of calls and their purpose, and that can help you focus on what people need to know.

Ask your members: Meetings and newsletters can offer good avenues for collecting information about what is useful and practical for families and individuals. Do they need quick information cards for teachers? Can they use calendars for tracking management or monitoring a condition? What can you develop for your membership that will assist them in helping coworkers and others in the community get involved in fundraising activities?

Ask professional advisors: Physicians, other direct care providers, and veteran affected individuals can help you develop pieces aimed at primary-care providers, emergency personnel, or other professionals with which your membership may come in contact.

Presenting our Organization to the Public through Print

Melissa Aylstock, Founder
Klinefelter Syndrome and Associates

"One thing I do think Klinefelter Syndrome and Associates have done well is how we have presented our image through print.

From the very beginning we chose to spend money on better paper, two color ink runs, and graphic artists when needed. I think this has paid off in rich dividends. We have a large presence—larger than you would expect with our limited budget.

We look good when we exhibit at conferences and I think that makes a difference in our credibility with the physicians.

We just don't skimp on the printing!"

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