Overview

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The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in a chronological manner.

Flowchart1 (Brown: GA & DAO, Orange: DAO, Purple: GA)
Flowchart2
Flowchart3

Key:

GA - Genetic Alliance,

PA - Private Access,

DAO - Disease Advocacy Organization

Grant Proposals (GA)

To be updated...

Private Access Portal Setup (PA)

Ditto

Initial Consultation Meeting (GA & DAO)

Plan and Set Goals and Objectives

Ditto

GA expectations/ DAO checklist

Ditto

Survey questions development (DAO)

DAO will have access to the new PEER to input and/or write their survey questions right into the PEER before IRB approval and export a copy to sent to IRB for instance.

IRB Approval (DAO)

DAO can start writing and editing their final version of their survey questions into the new PEER.

Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)

DAO are given access to their Portal so they can start inputting their Guides, Videos, setting their privacy settings. They will also be able to input their survey questions into the system if needed.

Pre-Outreach (DAO)

Ditto

GA/DAO Follow-up Meeting

Portal ready, Survey polishing & Development Phase

(1) At this point, DAO should be ready or come with their 'Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos' completed.

(2) DAO will then work with GA if they have any questions or encounter any difficulties inputting their survey questions into the new PEER.

Set up Customer Support (DAO)

[This step can come before this meeting and be introduced in the first meeting]

DAO assign a team within their organization to be in charge of helping survey takers whenever they encounter mid-level survey problems. A few examples are problems with logging in, creating an account, setting a suitable password or challenge questions.