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  1. The Power of Advocacy Organizations‏‎ (16:26, 25 February 2014)
  2. How to Use This Guide‏‎ (10:40, 26 February 2014)
  3. How to Get Started‏‎ (10:41, 26 February 2014)
  4. How to: Create a New Wiki Page‏‎ (10:47, 26 February 2014)
  5. How to post a file on WikiAdvocacy‏‎ (10:48, 26 February 2014)
  6. History of Advocacy Organizations and Genetic Alliance‏‎ (10:51, 26 February 2014)
  7. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (10:54, 26 February 2014)
  8. Genetic Alliance‏‎ (10:54, 26 February 2014)
  9. Determine Goals‏‎ (10:55, 26 February 2014)
  10. Characterize Condition‏‎ (10:55, 26 February 2014)
  11. Characterize Resources‏‎ (10:56, 26 February 2014)
  12. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (10:56, 26 February 2014)
  13. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (10:56, 26 February 2014)
  14. Developing the Organization That Can Achieve Your Goals‏‎ (10:57, 26 February 2014)
  15. NAC Best Practices‏‎ (11:07, 26 February 2014)
  16. Becoming the Organization You Imagine‏‎ (11:24, 26 February 2014)
  17. Individual Speaker Recommendations‏‎ (11:27, 26 February 2014)
  18. Travel‏‎ (11:28, 26 February 2014)
  19. Charity Rating Listings‏‎ (11:29, 26 February 2014)
  20. Events‏‎ (11:35, 26 February 2014)
  21. Financial Assets‏‎ (11:35, 26 February 2014)
  22. Meet Your Neighbors & Organizations‏‎ (11:36, 26 February 2014)
  23. Matching Resources‏‎ (11:36, 26 February 2014)
  24. Information about Rare Genetic Diseases‏‎ (11:42, 26 February 2014)
  25. Harnessing the Resources That Are Hard to Measure‏‎ (11:46, 26 February 2014)
  26. How to Obtain Donated Office Space‏‎ (11:48, 26 February 2014)
  27. Choosing an Internet Service Provider‏‎ (11:48, 26 February 2014)
  28. Emergency Preparedness‏‎ (11:49, 26 February 2014)
  29. Maintaining Computer Files‏‎ (11:49, 26 February 2014)
  30. Maintaining Your Membership‏‎ (11:52, 26 February 2014)
  31. Member Dues‏‎ (11:57, 26 February 2014)
  32. Recruiting‏‎ (12:00, 26 February 2014)
  33. Blogging‏‎ (12:05, 26 February 2014)
  34. Advocacy Resources‏‎ (12:08, 26 February 2014)
  35. Connecting Organizations‏‎ (12:08, 26 February 2014)
  36. Advocacy Organizations List‏‎ (12:09, 26 February 2014)
  37. Policy Tools & Resources‏‎ (12:09, 26 February 2014)
  38. National Institutes of Health (NIH)‏‎ (12:11, 26 February 2014)
  39. Internet Services‏‎ (12:11, 26 February 2014)
  40. Legislation and Policy Advocacy‏‎ (12:11, 26 February 2014)
  41. Phone Services: Going Beyond the Phone Tree‏‎ (12:11, 26 February 2014)
  42. Protecting Member Privacy‏‎ (12:12, 26 February 2014)
  43. Informal Offices or Regional Support Groups‏‎ (12:13, 26 February 2014)
  44. Getting Needs on Government and Legislative Agendas‏‎ (12:14, 26 February 2014)
  45. Getting an ICD-9 code added for your condition‏‎ (12:14, 26 February 2014)
  46. Councils and Other Advisory Bodies‏‎ (12:15, 26 February 2014)
  47. Translational Science‏‎ (12:15, 26 February 2014)
  48. Research Models‏‎ (12:18, 26 February 2014)
  49. Registries‏‎ (12:19, 26 February 2014)
  50. Articles, Letters, and Other Media for Lay Publication‏‎ (12:19, 26 February 2014)
  51. Press Kits‏‎ (12:23, 26 February 2014)
  52. Publisher Recommendations‏‎ (12:24, 26 February 2014)
  53. Starting Points for Planning Materials‏‎ (12:24, 26 February 2014)
  54. Consumers and Researchers: Making It Work‏‎ (12:27, 26 February 2014)
  55. Creating a Natural History Survey‏‎ (12:27, 26 February 2014)
  56. Facilitating Quality Research‏‎ (12:28, 26 February 2014)
  57. Funding Research by Others‏‎ (12:28, 26 February 2014)
  58. Getting Needs onto the Research Agenda‏‎ (12:29, 26 February 2014)
  59. Genetic Privacy‏‎ (12:29, 26 February 2014)
  60. Promoting Research‏‎ (12:29, 26 February 2014)
  61. Orphan Drug Application‏‎ (12:30, 26 February 2014)
  62. Patient's Bill of Rights‏‎ (12:30, 26 February 2014)
  63. Planning a Research Conference‏‎ (12:32, 26 February 2014)
  64. Editing Practice‏‎ (12:34, 26 February 2014)
  65. Media Tips‏‎ (12:34, 26 February 2014)
  66. Recruiting Celebrities‏‎ (12:35, 26 February 2014)
  67. Health care Providers and Specialists‏‎ (12:35, 26 February 2014)
  68. Attending Professionals' Annual Meetings‏‎ (12:36, 26 February 2014)
  69. Using Search Tools to Get Found‏‎ (12:41, 26 February 2014)
  70. Advocacy‏‎ (12:52, 26 February 2014)
  71. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (12:53, 26 February 2014)
  72. Protecting Message Boards from Spam‏‎ (12:54, 26 February 2014)
  73. Education of Members, Providers, and the Public‏‎ (12:56, 26 February 2014)
  74. Educating Your Membership about Research‏‎ (12:57, 26 February 2014)
  75. Genetic Alliance BioBank‏‎ (12:57, 26 February 2014)
  76. Promoting Research on a Condition‏‎ (12:58, 26 February 2014)
  77. Overview of WikiAdvocacy‏‎ (12:59, 26 February 2014)
  78. Research Model 1: Recessive Disorder‏‎ (12:59, 26 February 2014)
  79. Research Model 2: Chromosomal Disorder‏‎ (13:00, 26 February 2014)
  80. Creating New Pages‏‎ (13:00, 26 February 2014)
  81. Research Model 3: Dominant Disorder‏‎ (13:00, 26 February 2014)
  82. Basic Formatting‏‎ (13:00, 26 February 2014)
  83. Getting Your Needs on Government and Legislative Agendas‏‎ (13:01, 26 February 2014)
  84. Cool Tips‏‎ (13:02, 26 February 2014)
  85. Getting a Biobank or Registry Started‏‎ (13:03, 26 February 2014)
  86. Biobank and Registry External Relations‏‎ (13:03, 26 February 2014)
  87. Biobank and Registry Financial Management‏‎ (13:03, 26 February 2014)
  88. Biobank Sample Collection‏‎ (13:04, 26 February 2014)
  89. Obtaining and Maintaining Registry Data‏‎ (13:04, 26 February 2014)
  90. Registry and Biobank Ethics and Governance‏‎ (13:04, 26 February 2014)
  91. Registry Questionnaires‏‎ (13:05, 26 February 2014)
  92. Intended Goal‏‎ (13:16, 26 February 2014)
  93. Getting Your Community Interested‏‎ (13:18, 26 February 2014)
  94. Knowing Your Community‏‎ (13:18, 26 February 2014)
  95. Accessibility of Tools‏‎ (13:19, 26 February 2014)
  96. Available Resources‏‎ (13:19, 26 February 2014)
  97. Additional/Supplemental Resources‏‎ (13:20, 26 February 2014)
  98. Results and Individual Follow-up‏‎ (13:20, 26 February 2014)
  99. Family Health History Initiative Guidelines‏‎ (13:21, 26 February 2014)
  100. Preparing for and Handling Publicity‏‎ (13:22, 26 February 2014)

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