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  1. The Power of Advocacy Organizations‏‎ (16:26, 25 February 2014)
  2. How to Use This Guide‏‎ (10:40, 26 February 2014)
  3. How to Get Started‏‎ (10:41, 26 February 2014)
  4. How to: Create a New Wiki Page‏‎ (10:47, 26 February 2014)
  5. How to post a file on WikiAdvocacy‏‎ (10:48, 26 February 2014)
  6. History of Advocacy Organizations and Genetic Alliance‏‎ (10:51, 26 February 2014)
  7. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (10:54, 26 February 2014)
  8. Genetic Alliance‏‎ (10:54, 26 February 2014)
  9. Determine Goals‏‎ (10:55, 26 February 2014)
  10. Characterize Condition‏‎ (10:55, 26 February 2014)
  11. Characterize Resources‏‎ (10:56, 26 February 2014)
  12. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (10:56, 26 February 2014)
  13. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (10:56, 26 February 2014)
  14. Developing the Organization That Can Achieve Your Goals‏‎ (10:57, 26 February 2014)
  15. NAC Best Practices‏‎ (11:07, 26 February 2014)
  16. Becoming the Organization You Imagine‏‎ (11:24, 26 February 2014)
  17. Individual Speaker Recommendations‏‎ (11:27, 26 February 2014)
  18. Travel‏‎ (11:28, 26 February 2014)
  19. Charity Rating Listings‏‎ (11:29, 26 February 2014)
  20. Events‏‎ (11:35, 26 February 2014)
  21. Financial Assets‏‎ (11:35, 26 February 2014)
  22. Meet Your Neighbors & Organizations‏‎ (11:36, 26 February 2014)
  23. Matching Resources‏‎ (11:36, 26 February 2014)
  24. Information about Rare Genetic Diseases‏‎ (11:42, 26 February 2014)
  25. Harnessing the Resources That Are Hard to Measure‏‎ (11:46, 26 February 2014)
  26. How to Obtain Donated Office Space‏‎ (11:48, 26 February 2014)
  27. Choosing an Internet Service Provider‏‎ (11:48, 26 February 2014)
  28. Emergency Preparedness‏‎ (11:49, 26 February 2014)
  29. Maintaining Computer Files‏‎ (11:49, 26 February 2014)
  30. Maintaining Your Membership‏‎ (11:52, 26 February 2014)
  31. Member Dues‏‎ (11:57, 26 February 2014)
  32. Recruiting‏‎ (12:00, 26 February 2014)
  33. Blogging‏‎ (12:05, 26 February 2014)
  34. Advocacy Resources‏‎ (12:08, 26 February 2014)
  35. Connecting Organizations‏‎ (12:08, 26 February 2014)
  36. Advocacy Organizations List‏‎ (12:09, 26 February 2014)
  37. Policy Tools & Resources‏‎ (12:09, 26 February 2014)
  38. National Institutes of Health (NIH)‏‎ (12:11, 26 February 2014)
  39. Internet Services‏‎ (12:11, 26 February 2014)
  40. Legislation and Policy Advocacy‏‎ (12:11, 26 February 2014)
  41. Phone Services: Going Beyond the Phone Tree‏‎ (12:11, 26 February 2014)
  42. Protecting Member Privacy‏‎ (12:12, 26 February 2014)
  43. Informal Offices or Regional Support Groups‏‎ (12:13, 26 February 2014)
  44. Getting Needs on Government and Legislative Agendas‏‎ (12:14, 26 February 2014)
  45. Getting an ICD-9 code added for your condition‏‎ (12:14, 26 February 2014)
  46. Councils and Other Advisory Bodies‏‎ (12:15, 26 February 2014)
  47. Translational Science‏‎ (12:15, 26 February 2014)
  48. Research Models‏‎ (12:18, 26 February 2014)
  49. Registries‏‎ (12:19, 26 February 2014)
  50. Articles, Letters, and Other Media for Lay Publication‏‎ (12:19, 26 February 2014)
  51. Press Kits‏‎ (12:23, 26 February 2014)
  52. Publisher Recommendations‏‎ (12:24, 26 February 2014)
  53. Starting Points for Planning Materials‏‎ (12:24, 26 February 2014)
  54. Consumers and Researchers: Making It Work‏‎ (12:27, 26 February 2014)
  55. Creating a Natural History Survey‏‎ (12:27, 26 February 2014)
  56. Facilitating Quality Research‏‎ (12:28, 26 February 2014)
  57. Funding Research by Others‏‎ (12:28, 26 February 2014)
  58. Getting Needs onto the Research Agenda‏‎ (12:29, 26 February 2014)
  59. Genetic Privacy‏‎ (12:29, 26 February 2014)
  60. Promoting Research‏‎ (12:29, 26 February 2014)
  61. Orphan Drug Application‏‎ (12:30, 26 February 2014)
  62. Patient's Bill of Rights‏‎ (12:30, 26 February 2014)
  63. Planning a Research Conference‏‎ (12:32, 26 February 2014)
  64. Editing Practice‏‎ (12:34, 26 February 2014)
  65. Media Tips‏‎ (12:34, 26 February 2014)
  66. Recruiting Celebrities‏‎ (12:35, 26 February 2014)
  67. Health care Providers and Specialists‏‎ (12:35, 26 February 2014)
  68. Attending Professionals' Annual Meetings‏‎ (12:36, 26 February 2014)
  69. Using Search Tools to Get Found‏‎ (12:41, 26 February 2014)
  70. Advocacy‏‎ (12:52, 26 February 2014)
  71. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (12:53, 26 February 2014)
  72. Protecting Message Boards from Spam‏‎ (12:54, 26 February 2014)
  73. Education of Members, Providers, and the Public‏‎ (12:56, 26 February 2014)
  74. Educating Your Membership about Research‏‎ (12:57, 26 February 2014)
  75. Genetic Alliance BioBank‏‎ (12:57, 26 February 2014)
  76. Promoting Research on a Condition‏‎ (12:58, 26 February 2014)
  77. Overview of WikiAdvocacy‏‎ (12:59, 26 February 2014)
  78. Research Model 1: Recessive Disorder‏‎ (12:59, 26 February 2014)
  79. Research Model 2: Chromosomal Disorder‏‎ (13:00, 26 February 2014)
  80. Creating New Pages‏‎ (13:00, 26 February 2014)
  81. Research Model 3: Dominant Disorder‏‎ (13:00, 26 February 2014)
  82. Basic Formatting‏‎ (13:00, 26 February 2014)
  83. Getting Your Needs on Government and Legislative Agendas‏‎ (13:01, 26 February 2014)
  84. Cool Tips‏‎ (13:02, 26 February 2014)
  85. Getting a Biobank or Registry Started‏‎ (13:03, 26 February 2014)
  86. Biobank and Registry External Relations‏‎ (13:03, 26 February 2014)
  87. Biobank and Registry Financial Management‏‎ (13:03, 26 February 2014)
  88. Biobank Sample Collection‏‎ (13:04, 26 February 2014)
  89. Obtaining and Maintaining Registry Data‏‎ (13:04, 26 February 2014)
  90. Registry and Biobank Ethics and Governance‏‎ (13:04, 26 February 2014)
  91. Registry Questionnaires‏‎ (13:05, 26 February 2014)
  92. Intended Goal‏‎ (13:16, 26 February 2014)
  93. Getting Your Community Interested‏‎ (13:18, 26 February 2014)
  94. Knowing Your Community‏‎ (13:18, 26 February 2014)
  95. Accessibility of Tools‏‎ (13:19, 26 February 2014)
  96. Available Resources‏‎ (13:19, 26 February 2014)
  97. Additional/Supplemental Resources‏‎ (13:20, 26 February 2014)
  98. Results and Individual Follow-up‏‎ (13:20, 26 February 2014)
  99. Family Health History Initiative Guidelines‏‎ (13:21, 26 February 2014)
  100. Preparing for and Handling Publicity‏‎ (13:22, 26 February 2014)
  101. Choosing Internet Service Provider‏‎ (13:22, 26 February 2014)
  102. National Awareness Day‏‎ (13:24, 26 February 2014)
  103. Scholarships for your participants/families/members‏‎ (13:32, 26 February 2014)
  104. Speaker selection and management‏‎ (13:34, 26 February 2014)
  105. Novel Meeting Formats‏‎ (13:36, 26 February 2014)
  106. Why Go There?‏‎ (13:36, 26 February 2014)
  107. Funding‏‎ (13:37, 26 February 2014)
  108. Leadership‏‎ (13:37, 26 February 2014)
  109. Mentors‏‎ (13:38, 26 February 2014)
  110. Expertise‏‎ (13:39, 26 February 2014)
  111. Sharon F. Terry‏‎ (13:47, 26 February 2014)
  112. Vision‏‎ (13:53, 26 February 2014)
  113. Media Access‏‎ (13:53, 26 February 2014)
  114. Celebrity Spokesperson‏‎ (13:56, 26 February 2014)
  115. Working with a Lawyer‏‎ (13:58, 26 February 2014)
  116. Setting up Useful Systems‏‎ (14:00, 26 February 2014)
  117. State-Specific Issues‏‎ (14:01, 26 February 2014)
  118. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (14:02, 26 February 2014)
  119. Accepting Donations‏‎ (14:02, 26 February 2014)
  120. Working Full-Time on Nonprofit‏‎ (14:04, 26 February 2014)
  121. Finding a Lawyer‏‎ (14:09, 26 February 2014)
  122. Tax and Finance‏‎ (11:14, 27 February 2014)
  123. Autopsies and Tissue Collection‏‎ (12:21, 5 March 2014)
  124. Medical Records‏‎ (12:25, 5 March 2014)
  125. Bylaws and Articles‏‎ (13:02, 5 March 2014)
  126. Sibling Support‏‎ (13:43, 5 March 2014)
  127. Resources for Nonprofits‏‎ (13:46, 5 March 2014)
  128. Publications‏‎ (13:47, 5 March 2014)
  129. General Resources‏‎ (13:49, 5 March 2014)
  130. Fundraising Appeals‏‎ (13:50, 5 March 2014)
  131. Consumer Medical Information‏‎ (13:58, 5 March 2014)
  132. Children's Hopes and Dreams Foundations‏‎ (14:01, 5 March 2014)
  133. Assistive Technology‏‎ (14:07, 5 March 2014)
  134. Internet and Web Resources‏‎ (14:19, 5 March 2014)
  135. Start Using WikiAdvocacy‏‎ (11:17, 6 March 2014)
  136. Conference Call Services‏‎ (08:50, 6 May 2014)
  137. Volunteer - Peer Coaches‏‎ (14:58, 7 May 2014)
  138. FARA Q & A‏‎ (15:06, 7 May 2014)
  139. Registry and Biobank Weekly Tips‏‎ (15:07, 7 May 2014)
  140. FARA Patient Registry Q & A‏‎ (15:08, 7 May 2014)
  141. Internet Services: Mailing Lists‏‎ (15:18, 7 May 2014)
  142. Brochures and Fact Sheets‏‎ (09:45, 29 October 2014)
  143. Newsletters and Bulletins‏‎ (09:46, 29 October 2014)
  144. Your Organization's Name Is Important‏‎ (10:46, 31 October 2014)
  145. Educating Membership about Research‏‎ (10:37, 12 November 2014)
  146. Setting Up A National Conference‏‎ (12:18, 8 December 2014)
  147. Disease Advocacy Organization(DAO)‏‎ (10:28, 10 December 2014)
  148. Disease Advocacy Organization(DAO) Manual‏‎ (12:00, 16 December 2014)
  149. PEER Portal‏‎ (16:33, 23 December 2014)
  150. Overview‏‎ (14:35, 23 January 2015)
  151. Genetic Alliance(GA) SOP‏‎ (14:35, 23 January 2015)
  152. Webinars‏‎ (15:14, 6 February 2015)
  153. Staff‏‎ (15:43, 10 February 2015)
  154. Disease Advocacy Organization (DAO) Manual‏‎ (12:52, 11 February 2015)
  155. Clinician- and Researcher-Focused Materials‏‎ (15:29, 12 February 2015)
  156. Helping Your Membership Help Your Group‏‎ (16:15, 23 February 2015)
  157. Internet Services: Listserv Guidelines Netiquitte Help‏‎ (16:16, 23 February 2015)
  158. Financial and Summary Statement‏‎ (14:53, 19 March 2015)
  159. Joint Fundraising‏‎ (09:40, 12 August 2015)
  160. Fundraising/Third Party‏‎ (15:33, 12 August 2015)
  161. BioBanks‏‎ (10:51, 4 February 2016)
  162. Blood and Tissue Banks‏‎ (10:53, 4 February 2016)
  163. Fundraising‏‎ (21:09, 15 April 2016)
  164. International Offices‏‎ (21:34, 15 April 2016)
  165. Accountants‏‎ (20:37, 28 August 2016)
  166. Developing a Governance Board‏‎ (21:55, 28 August 2016)
  167. Connecting Individuals‏‎ (19:44, 30 August 2016)
  168. Conferences, Workshops, and Meetings for Affected Individuals‏‎ (19:48, 30 August 2016)
  169. Audits‏‎ (21:56, 13 December 2016)
  170. Functions of Advocacy Organization‏‎ (14:01, 8 April 2018)
  171. Drug Development‏‎ (14:24, 8 April 2018)
  172. Childcare‏‎ (11:46, 15 April 2018)
  173. Advisory Boards‏‎ (15:10, 20 June 2018)
  174. Ensuring Cultural Competence‏‎ (15:47, 20 June 2018)
  175. Insurance and Policies‏‎ (15:51, 20 June 2018)
  176. Donations‏‎ (10:42, 22 June 2018)
  177. People and Roles‏‎ (11:30, 22 June 2018)
  178. Best Practices‏‎ (13:42, 22 June 2018)
  179. Dealing with Death‏‎ (14:21, 22 June 2018)
  180. Resources for School Success‏‎ (14:58, 22 June 2018)
  181. Family Health History‏‎ (11:16, 17 July 2018)
  182. Volunteers‏‎ (14:49, 30 July 2018)
  183. Working Remotely‏‎ (14:50, 30 July 2018)
  184. Building a Website‏‎ (14:55, 30 July 2018)
  185. Getting Grants‏‎ (16:10, 30 July 2018)
  186. Taking Credit Cards on the Web‏‎ (16:12, 30 July 2018)
  187. Donations from Canada/Outside the US‏‎ (16:37, 30 July 2018)
  188. Social Networking‏‎ (11:15, 1 August 2018)
  189. Support for Individuals and Families‏‎ (11:23, 1 August 2018)
  190. Youth to Adult Transition Issues‏‎ (11:49, 1 August 2018)
  191. Publicity and General Media‏‎ (12:40, 1 August 2018)
  192. Barriers to Rare Disease Research‏‎ (12:40, 2 August 2018)
  193. Benefits of Collaboration with Advocacy Organization Community‏‎ (12:48, 2 August 2018)
  194. Main Page‏‎ (13:06, 3 August 2018)
  195. Nonprofit Organization Sample Templates‏‎ (13:26, 3 August 2018)
  196. State Registration‏‎ (13:24, 20 September 2018)
  197. Challenges of 'Splinter Groups'‏‎ (00:07, 20 March 2019)
  198. Defining Our Terms‏‎ (14:08, 1 April 2019)

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