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Showing below up to 148 results in range #51 to #198.
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- People and Roles (3 revisions)
- Barriers to Rare Disease Research (3 revisions)
- Educating Membership about Research (3 revisions)
- Webinars (3 revisions)
- Registry and Biobank Weekly Tips (3 revisions)
- Internet Services: Mailing Lists (3 revisions)
- Accountants (3 revisions)
- Helping Your Membership Help Your Group (3 revisions)
- Fundraising Appeals (2 revisions)
- Internet and Web Resources (2 revisions)
- Working with a Lawyer (2 revisions)
- Biobank Sample Collection (2 revisions)
- Resources for Nonprofits (2 revisions)
- Clinician- and Researcher-Focused Materials (2 revisions)
- Tax and Finance (2 revisions)
- Genetic Alliance BioBank (2 revisions)
- Novel Meeting Formats (2 revisions)
- Publications (2 revisions)
- Assistive Technology (2 revisions)
- Connecting Individuals (2 revisions)
- Family Health History Initiative Guidelines (2 revisions)
- Sibling Support (2 revisions)
- Autopsies and Tissue Collection (2 revisions)
- Consumer Medical Information (2 revisions)
- Registries (2 revisions)
- Functions of Advocacy Organization (2 revisions)
- Internet Services: Listserv Guidelines Netiquitte Help (2 revisions)
- Start Using WikiAdvocacy (2 revisions)
- Why Go There? (2 revisions)
- Charity Rating Listings (2 revisions)
- Benefits of Collaboration with Advocacy Organization Community (2 revisions)
- Childcare (2 revisions)
- Additional/Supplemental Resources (1 revision)
- History of Advocacy Organizations and Genetic Alliance (1 revision)
- National Awareness Day (1 revision)
- Press Kits (1 revision)
- Research Model 3: Dominant Disorder (1 revision)
- Choosing Internet Service Provider (1 revision)
- Events (1 revision)
- How to: Create a New Wiki Page (1 revision)
- National Institutes of Health (NIH) (1 revision)
- Promoting Research (1 revision)
- Research Models (1 revision)
- Advocacy (1 revision)
- Choosing an Internet Service Provider (1 revision)
- Determine Goals (1 revision)
- Expertise (1 revision)
- Genetic Alliance (1 revision)
- How to Get Started (1 revision)
- Knowing Your Community (1 revision)
- Promoting Research on a Condition (1 revision)
- Advocacy Organizations List (1 revision)
- Biobank and Registry External Relations (1 revision)
- FARA Patient Registry Q & A (1 revision)
- How to Obtain Donated Office Space (1 revision)
- Leadership (1 revision)
- Nonprofit Organization Sample Templates (1 revision)
- Protecting Member Privacy (1 revision)
- Advocacy Resources (1 revision)
- Biobank and Registry Financial Management (1 revision)
- Compare Goals and Resources, with the Characteristics of the Condition (1 revision)
- Developing the Organization That Can Achieve Your Goals (1 revision)
- FARA Q & A (1 revision)
- How to Use This Guide (1 revision)
- Legislation and Policy Advocacy (1 revision)
- Protecting Message Boards from Spam (1 revision)
- Results and Individual Follow-up (1 revision)
- The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates (1 revision)
- Articles, Letters, and Other Media for Lay Publication (1 revision)
- Blogging (1 revision)
- Disease Advocacy Organization(DAO) (1 revision)
- Facilitating Quality Research (1 revision)
- Genetic Privacy (1 revision)
- How to post a file on WikiAdvocacy (1 revision)
- Obtaining and Maintaining Registry Data (1 revision)
- Scholarships for your participants/families/members (1 revision)
- The Power of Advocacy Organizations (1 revision)
- Individual Speaker Recommendations (1 revision)
- Maintaining Computer Files (1 revision)
- Orphan Drug Application (1 revision)
- Translational Science (1 revision)
- Attaining 501(c)(3) Status (Not-For-Profit Determination) (1 revision)
- Getting Needs on Government and Legislative Agendas (1 revision)
- Informal Offices or Regional Support Groups (1 revision)
- Maintaining Your Membership (1 revision)
- Publisher Recommendations (1 revision)
- Setting up Useful Systems (1 revision)
- Travel (1 revision)
- Attending Professionals' Annual Meetings (1 revision)
- Connecting Organizations (1 revision)
- Financial Assets (1 revision)
- Getting Needs onto the Research Agenda (1 revision)
- Information about Rare Genetic Diseases (1 revision)
- Matching Resources (1 revision)
- Overview of WikiAdvocacy (1 revision)
- Recruiting (1 revision)
- Sharon F. Terry (1 revision)
- Using Search Tools to Get Found (1 revision)
- Considering Starting a Support Group for a Condition that Already Has One? (1 revision)
- Getting Your Community Interested (1 revision)
- Media Access (1 revision)
- Recruiting Celebrities (1 revision)
- Vision (1 revision)
- Celebrity Spokesperson (1 revision)
- Getting Your Needs on Government and Legislative Agendas (1 revision)
- Intended Goal (1 revision)
- Media Tips (1 revision)
- Patient's Bill of Rights (1 revision)
- Available Resources (1 revision)
- Consumers and Researchers: Making It Work (1 revision)
- Editing Practice (1 revision)
- Getting a Biobank or Registry Started (1 revision)
- Registry Questionnaires (1 revision)
- Speaker selection and management (1 revision)
- Characterize Condition (1 revision)
- Cool Tips (1 revision)
- Funding (1 revision)
- Getting an ICD-9 code added for your condition (1 revision)
- Internet Services (1 revision)
- Meet Your Neighbors & Organizations (1 revision)
- Phone Services: Going Beyond the Phone Tree (1 revision)
- Registry and Biobank Ethics and Governance (1 revision)
- Accepting Donations (1 revision)
- Basic Formatting (1 revision)
- Characterize Resources (1 revision)
- Councils and Other Advisory Bodies (1 revision)
- Educating Your Membership about Research (1 revision)
- Funding Research by Others (1 revision)
- Harnessing the Resources That Are Hard to Measure (1 revision)
- Member Dues (1 revision)
- Planning a Research Conference (1 revision)
- Accessibility of Tools (1 revision)
- Becoming the Organization You Imagine (1 revision)
- Creating New Pages (1 revision)
- Education of Members, Providers, and the Public (1 revision)
- Health care Providers and Specialists (1 revision)
- Mentors (1 revision)
- Policy Tools & Resources (1 revision)
- Research Model 1: Recessive Disorder (1 revision)
- Starting Points for Planning Materials (1 revision)
- Working Full-Time on Nonprofit (1 revision)
- Creating a Natural History Survey (1 revision)
- Emergency Preparedness (1 revision)
- Internet Services: Websites, Chat Rooms, and Newsgroups (1 revision)
- NAC Best Practices (1 revision)
- Preparing for and Handling Publicity (1 revision)
- Research Model 2: Chromosomal Disorder (1 revision)
- State-Specific Issues (1 revision)
