https://wikiadvocacy.org/w/index.php?action=history&feed=atom&title=AdvocacyAdvocacy - Revision history2026-05-09T15:28:18ZRevision history for this page on the wikiMediaWiki 1.35.0https://wikiadvocacy.org/w/index.php?title=Advocacy&diff=140&oldid=prevAdvocacy Admin: Created page with "One of the functions of advocacy organizations, '''advocacy''' is explained in this section. ==Advocacy: Topics== *Getting Needs on Government and Legislative Agendas *[..."2014-02-26T16:52:22Z<p>Created page with "One of the functions of advocacy organizations, '''advocacy''' is explained in this section. ==Advocacy: Topics== *<a href="/Getting_Needs_on_Government_and_Legislative_Agendas" title="Getting Needs on Government and Legislative Agendas">Getting Needs on Government and Legislative Agendas</a> *[..."</p>
<p><b>New page</b></p><div>One of the functions of advocacy organizations, '''advocacy''' is explained in this section.<br />
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==Advocacy: Topics==<br />
*[[Getting Needs on Government and Legislative Agendas]] <br />
*[[National Institutes of Health (NIH)]] <br />
*[[Councils and Other Advisory Bodies]]<br />
*[[Getting an ICD-9 code added for your condition]]<br />
*[[Legislation and Policy Advocacy]]<br />
<br />
==Internal Links==<br />
==== Support ====<br />
*[[Support for Individuals and Families]]<br />
*[[Youth to Adult Transition Issues]]<br />
*[[Conferences, Workshops, and Meetings for Affected Individuals]]<br />
*[[Connecting Individuals]]<br />
*[[Internet Services]]<br />
**[[Internet Services: Mailing Lists|Mailing Lists]]<br />
**[[Internet Services: Websites, Chat Rooms, and Newsgroups|Websites, Chat Rooms, and Newsgroups]]<br />
*[[Phone Services: Going Beyond the Phone Tree|Phone Services]]<br />
*[[Protecting Member Privacy]]<br />
*[[Dealing with Death]]<br />
*[[Autopsies and Tissue Collection]]<br />
<br />
==== Education ====<br />
*[[Education of Members, Providers, and the Public]]<br />
*[[Starting Points for Planning Materials]]<br />
*[[Newsletters and Bulletins]]<br />
*[[Brochures and Fact Sheets]]<br />
*[[Articles, Letters, and Other Media for Lay Publication]]<br />
*[[Clinician- and Researcher-Focused Materials]]<br />
*[[Press Kits]]<br />
*[[Publisher Recommendations]]<br />
<br />
==== Research ====<br />
*[[Getting Needs onto the Research Agenda]]<br />
*[[Educating Your Membership about Research]]<br />
*[[Patient's Bill of Rights]] <br />
*[[Genetic Privacy]]<br />
*[[Promoting Research on a Condition]]<br />
*[[Funding Research by Others]]<br />
*[[Barriers to Rare Disease Research]]<br />
*[[Consumers and Researchers: Making It Work]]<br />
*[[Benefits of Collaboration with Advocacy Organization Community]]<br />
*[[Facilitating Quality Research]]<br />
*[[Research Models]]<br />
**[[Research Model 1: Recessive Disorder]]<br />
**[[Research Model 2: Chromosomal Disorder]]<br />
**[[Research Model 3: Dominant Disorder]]<br />
*[[Blood and Tissue Banks]]<br />
**[[Genetic Alliance BioBank]]<br />
<br />
==== Advocacy ====<br />
*[[Getting Your Needs on Government and Legislative Agendas]]<br />
*[[National Institutes of Health (NIH)]]<br />
*[[Councils and Other Advisory Bodies]]<br />
*[[Getting an ICD-9 code added for your condition]]<br />
*[[Legislation and Policy Advocacy]]</div>Advocacy Admin