Best Practices - Revision history

Aguise: /* Down Syndrome */

2018-06-22T17:42:05Z

Down Syndrome

Aguise: /* Spina Bifida */

2018-06-22T15:58:56Z

Spina Bifida

Advocacy Admin at 16:17, 5 March 2014

2014-03-05T16:17:27Z

Advocacy Admin: Created page with "Below is a list of resources for best practices. Each of these genetic disorders have best practices associated with them, however it is often hard to find all of the reliabl..."

2014-02-26T16:03:39Z

Created page with "Below is a list of resources for best practices. Each of these genetic disorders have best practices associated with them, however it is often hard to find all of the reliabl..."

New page

Below is a list of resources for best practices. Each of these genetic disorders have best practices associated with them, however it is often hard to find all of the reliable resources.

==Achondroplasia==
* [http://www.mayoclinic.com/print/dwarfism/DS01012/DSECTION=all&METHOD=print Mayo Clinic: Dwarfism]
* [http://www.lpaonline.org/mc/page.do?sitePageId=84634&orgId=lpa Little People of America: Frequently Asked Lifestyle Questions]
* [http://web.memberclicks.com/mc/page.do?sitePageId=73534&orgId=lpamrs Little People of America: Development]

==Down Syndrome==
* [http://www.ndss.org/index.php?option=com_content&view=article&id=54:down-syndrome-fact-sheet&catid=35:about-down-syndrome&Itemid=74 National Down Syndrome Society: Fact Sheet]
* [http://www.ndss.org/index.php?option=com_content&view=category&id=72:early-intervention National Down Syndrome Society: Best Practices for Early Intervention]
* [http://www.ndss.org/index.php?option=com_content&view=article&id=58&Itemid=83 National Down Syndrome Society: Best Practices for Elementary and Secondary Intervention]
* [http://www.ndss.org/index.php?option=com_content&view=category&id=50&Itemid=141 National Down Syndrome Society: Best Practices for Transition and Adulthood]
* [http://www.ndss.org/index.php?option=com_content&view=category&id=51&Itemid=142 National Down Syndrome Society: Best Practices for Therapies and Development]
* [http://www.nads.org/pages_new/new_parents/health_guide.html National Association for Down Syndrome: Healthcare Guidelines]
* [http://www.nads.org/pages_new/facts.html National Association for Down Syndrome: Fact Sheet]

==Spina Bifida==
* [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2700305/k.C07F/Urologic_Care_and_Management.htm Spinda Bifida Association: Urologic Care and Management]
* [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2700271/k.1779/Latex_Natural_Rubber_Allergy_in_Spina_Bifida.htm Spinda Bifida Association: Latex Allergy]
* [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2642343/k.8D2D/Fact_Sheets.htm Spinda Bifida Association: Fact Sheets]

==External Sources==
[[Wikipedia:Genetics|Wikipedia]] article on this topic.

==Internal Links==
*[[Autopsies and Tissue Collection]]
*[[Conferences, Workshops, and Meetings for Affected Individuals]]
*[[Connecting Individuals]]
*[[Dealing with Death]]
*[[Internet Services]]
**[[Internet Services: Mailing Lists|Mailing Lists]]
**[[Internet Services: Websites, Chat Rooms, and Newsgroups|Websites, Chat Rooms, and Newsgroups]]
*[[Phone Services: Going Beyond the Phone Tree|Phone Services]]
*[[Protecting Member Privacy]]
*[[Setting Up A National Conference]]
*[[Support for Individuals and Families]]
*[[Youth to Adult Transition Issues]]

@@ Line 9: / Line 9: @@
 * [http://www.ndss.org/Down-Syndrome/Down-Syndrome-Facts/ National Down Syndrome Society: Fact Sheet]
 * [http://www.ndss.org/Resources/Therapies-Development/Early-Intervention/ National Down Syndrome Society: Best Practices for Early Intervention]
-* [http://www.ndss.org/Resources/Education/Implementing-Inclusion/ National Down Syndrome Society: Best Practices for Elementary and Secondary Intervention]
+* [https://www.ndss.org/resources/employment-and-volunteer-work/ National Down Syndrome Society: Best Practices for Employment and Volunteer Work]
-* [https://www.ndss.org/Resources/Transition-and-Beyond/Thinking-About-Tomorrow/ National Down Syndrome Society: Best Practices for Transition and Adulthood]
+* [https://www.ndss.org/resources/transition-family/ National Down Syndrome Society: Best Practices for Transition and Adulthood]
 * [http://www.ndss.org/Resources/Therapies-Development/ National Down Syndrome Society: Best Practices for Therapies and Development]
 * [https://www.ndss.org/Resources/Health-Care/Health-Care-Guidelines/ National Association for Down Syndrome: Healthcare Guidelines]
-* [http://www.nads.org/pages_new/facts.html National Association for Down Syndrome: Fact Sheet]
+* [http://www.nads.org/resources/facts-about-down-syndrome/ National Association for Down Syndrome: Fact Sheet]
 ==Spina Bifida==

@@ Line 16: / Line 16: @@
 ==Spina Bifida==
-*  [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2700305/k.C07F/Urologic_Care_and_Management.htm Spinda Bifida Association: Urologic Care and Management]
+*  [http://spinabifidaassociation.org/project/urologic-care-and-management/ Spinda Bifida Association: Urologic Care and Management]
-* [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2700271/k.1779/Latex_Natural_Rubber_Allergy_in_Spina_Bifida.htm Spinda Bifida Association: Latex Allergy]
+* [http://spinabifidaassociation.org/project/natural-rubber-latex-allergy/ Spinda Bifida Association: Latex Allergy]
-* [http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.2642343/k.8D2D/Fact_Sheets.htm Spinda Bifida Association: Fact Sheets]
+* [http://spinabifidaassociation.org/info-sheets/ Spinda Bifida Association: Info Sheets]
 ==External Sources==

@@ Line 7: / Line 7: @@
 ==Down Syndrome==
-* [http://www.ndss.org/index.php?option=com_content&view=article&id=54:down-syndrome-fact-sheet&catid=35:about-down-syndrome&Itemid=74 National Down Syndrome Society: Fact Sheet]
+* [http://www.ndss.org/Down-Syndrome/Down-Syndrome-Facts/ National Down Syndrome Society: Fact Sheet]
-* [http://www.ndss.org/index.php?option=com_content&view=category&id=72:early-intervention National Down Syndrome Society: Best Practices for Early Intervention]
+* [http://www.ndss.org/Resources/Therapies-Development/Early-Intervention/ National Down Syndrome Society: Best Practices for Early Intervention]
-* [http://www.ndss.org/index.php?option=com_content&view=article&id=58&Itemid=83 National Down Syndrome Society: Best Practices for Elementary and Secondary Intervention]
+* [http://www.ndss.org/Resources/Education/Implementing-Inclusion/ National Down Syndrome Society: Best Practices for Elementary and Secondary Intervention]
-* [http://www.ndss.org/index.php?option=com_content&view=category&id=50&Itemid=141 National Down Syndrome Society: Best Practices for Transition and Adulthood]
+* [https://www.ndss.org/Resources/Transition-and-Beyond/Thinking-About-Tomorrow/ National Down Syndrome Society: Best Practices for Transition and Adulthood]
-* [http://www.ndss.org/index.php?option=com_content&view=category&id=51&Itemid=142 National Down Syndrome Society: Best Practices for Therapies and Development]
+* [http://www.ndss.org/Resources/Therapies-Development/ National Down Syndrome Society: Best Practices for Therapies and Development]
-* [http://www.nads.org/pages_new/new_parents/health_guide.html National Association for Down Syndrome: Healthcare Guidelines]
+* [https://www.ndss.org/Resources/Health-Care/Health-Care-Guidelines/ National Association for Down Syndrome: Healthcare Guidelines]
 * [http://www.nads.org/pages_new/facts.html National Association for Down Syndrome: Fact Sheet]