BioBanks - Revision history

Advocacy Admin: /* Organizations */

2016-02-04T14:51:49Z

Organizations

Advocacy Admin at 18:03, 5 March 2014

2014-03-05T18:03:20Z

Advocacy Admin at 15:06, 5 March 2014

2014-03-05T15:06:23Z

Advocacy Admin: Created page with "== Organizations == ;[http://www.biobankcentral.org/ BioBank Central] :Provides an overall description of biobanking including why biobanks are needed and how they work. :emai..."

2014-02-26T16:07:06Z

Created page with "== Organizations == ;[http://www.biobankcentral.org/ BioBank Central] :Provides an overall description of biobanking including why biobanks are needed and how they work. :emai..."

New page

== Organizations ==
;[http://www.biobankcentral.org/ BioBank Central]
:Provides an overall description of biobanking including why biobanks are needed and how they work.
:email: info@biobankcentral.org

;[http://www.biobank.org/ Genetic Alliance Registry and BioBank]
:Genetic Alliance Registry and BioBank (GARB) has developed resources tailored for organizations interested in establishing or already managing a registry and/or biobank. GARB is a repository for the standardized collection, storage, and distribution of biological samples and clinical data for research purposes.
:Phone: 202.966.5557 x201
:Email: sterry@geneticalliance.org or lhorn@geneticalliance.org

== Resources ==
*[http://www.geneticalliance.org/biobank.bootcamp Registry Boot Camp] training sessions to provide a comprehensive overview of what is needed to establish and maintain a registry.
:*Sessions:
::*New York - March 7, 2011.
::*Bethesda ([http://www.geneticalliance.org/25celebration Genetic Alliance 25th Annual Conference]) - June 26, 2011
*A [http://www.geneticalliance.org/biobank.bulletin monthly bulletin] to keep you you informed of developments in the biobanking field.
*A [http://www.biobank.org/english/View.asp?x=1426 weekly tip series] focused on registries and biobanks. These tips are designed for advocacy organizations in all stages on the journey of creating and cultivating a registry or biobank.

==== Webinars ====

* [http://www.resourcerepository.org/av/YmlvYmFua2dvdmVybmFuY2U=/ Biobank Governance]
* [http://www.resourcerepository.org/av/cmVnaXN0cnlhbmRiaW9iYW5rcXVlc3Rpb25hbmRhbnN3ZXJzZXNzaW9u/ Registry and BioBank Quesiton and Answer Session]
* [http://www.resourcerepository.org/av/bWFraW5neW91cm9yZ2FuaXphdGlvbuKAmXNyZWdpc3RyeWFuZC9vcmJpb2JhbmthcmVhbGl0eQ==/ Making Your Organization's Registry and/or Biobank a Reality]
* [http://www.resourcerepository.org/av/Z2VuZXRpY2FsbGlhbmNlYmlvYmFua2dyYW50YXBwbGljYXRpb24=/ Genetic Alliance BioBank Grant Application]
* [http://www.resourcerepository.org/documents/1872/geneticalliancebiobank:avirtualtourofregistrysolutionstoaccelerateresearch/ Genetic Alliance BioBank: A Virtual Tour of Registry Solutions to Accelerate Research]

==Internal Links==
*[[Advocacy Organizations List]]
*[[Advocacy Resources]]
*[[Assistive Technology]]
*[[Blogging]]
*[[Blood and Tissue Banks]]
*[[Children's Hopes and Dreams Foundations]]
*[[Consumer Medical Information]]
*[[Emergency Preparedness]]
*[[Fundraising]]
*[[Fundraising Appeals]]
*[[General Resources]]
*[[Information about Rare Genetic Diseases]]
*[[Matching Resources]]
*[[Meet Your Neighbors & Organizations]]
*[[Publications]]
*[[Resources for Nonprofits]]
*[[Sibling Support]]
*[[State Registration]]
*[[Travel]]

@@ Line 7: / Line 7: @@
 :Genetic Alliance Registry and BioBank (GARB) has developed resources tailored for organizations interested in establishing or already managing a registry and/or biobank. GARB is a repository for the standardized collection, storage, and distribution of biological samples and clinical data for research purposes.
 :Phone: 202.966.5557 x201
-:Email: sterry@geneticalliance.org or lhorn@geneticalliance.org
+:Email: sterry@geneticalliance.org
 == Resources ==

@@ Line 10: / Line 10: @@
 == Resources ==
-*[http://www.geneticalliance.org/biobank.bootcamp Registry Boot Camp] training sessions to provide a comprehensive overview of what is needed to establish and maintain a registry.
+*[http://www.geneticalliance.org/sites/default/files/eventsarchive/2012bootcampagenda.pdf Registry Boot Camp] training sessions to provide a comprehensive overview of what is needed to establish and maintain a registry.
 :*Sessions:
 ::*New York - March 7, 2011.
 ::*Bethesda ([http://www.geneticalliance.org/25celebration Genetic Alliance 25th Annual Conference]) - June 26, 2011
-*A [http://www.geneticalliance.org/biobank.bulletin monthly bulletin] to keep you you informed of developments in the biobanking field.
+*A [http://geneticalliance.org/about/mailinglist/biobank Monthly Bulletin] to keep you you informed of developments in the biobanking field.
-*A [http://biobank.org/Weekly_Tips weekly tip series] focused on registries and biobanks. These tips are designed for advocacy organizations in all stages on the journey of creating and cultivating a registry or biobank.
+*A [http://biobank.org/Weekly_Tips Weekly Tip Series] focused on registries and biobanks. These tips are designed for advocacy organizations in all stages on the journey of creating and cultivating a registry or biobank.
 ==== Webinars ====