Disease Advocacy Organization (DAO) Manual - Revision history

Advocacy Admin: /* Pre-Outreach Efforts */

2015-02-11T16:52:52Z

Pre-Outreach Efforts

2015-02-11T16:51:37Z

Pre-Launch Outreach and Community Engagement

2015-02-04T18:31:49Z

2015-02-04T16:51:22Z

2015-01-30T16:05:24Z

Survey Questions and Development

2015-01-30T15:42:52Z

Survey Questions and Development

2015-01-30T15:29:25Z

Survey Questions and Development

2015-01-30T15:28:50Z

2015-01-30T15:25:22Z

Survey Questions and Development

2015-01-30T15:24:51Z

Survey Questions and Development

@@ Line 60: / Line 60: @@
 Smartsheet? Excel?
-==Pre-Outreach Efforts==
+==Pre-Launch Outreach Efforts==
 '''Katherine - move Renee content'''

@@ Line 265: / Line 265: @@
 #Once all issues have been resolved (one to two days after your Phase II testers take the survey), you are ready to launch the next day.<br /><br />
-==Pre-Launch Outreach and Community Engagement==
+==Outreach and Community Engagement During and After Launch==
 '''Erika adapting Renee

@@ Line 382: / Line 382: @@
 *Find other similar or interested groups on Yahoogroups, Googlegroups and others. Contact them about promoting your project
-===Media: News Outlets===
+====Media: News Outlets====
 *Send a press release at launch. Be sure to post it on your website so that you can link to it on social media.
 *Identify bloggers and others who have written on your subject or who write about populations related to you.
@@ Line 390: / Line 390: @@
-===Blogs and other internet posts===
+====Blogs and other internet posts====
 ''Blogs and YouTube''
 *Ask bloggers to post about your project
@@ Line 402: / Line 402: @@
 *Contact the author of medical articles/papers and ask them to help with outreach to their patients
-===Advertisements===
+====Advertisements====
 ''Paid Advertisements''

@@ Line 121: / Line 121: @@
 '''Wayne'''
-=IRB Application Process=
+===IRB Application Process===
 Each organization must '''complete their outreach plan before beginning the IRB application.''' If the outreach plan changes, the organization must reapply for IRB approval
@@ Line 265: / Line 265: @@
 #Once all issues have been resolved (one to two days after your Phase II testers take the survey), you are ready to launch the next day.<br /><br />
-=Outreach and Community Engagement=
+==Pre-Launch Outreach and Community Engagement==
 '''Erika adapting Renee
@@ Line 287: / Line 287: @@
 [[File:Privacy Preferences .jpg|400px|thumb|center|Patient Preferences]]
-==Launch Day==
+===Launch Day===
 Organizations must notify Genetic Alliance '''4 days''' before launch
@@ Line 299: / Line 299: @@
 '''Remember''' it often takes '''three reminders''' for people to start filling out the survey. So while it is critical to notify people before launch, you must continue to do so during and after launch
-==Post Launch==
+==Checkpoint: Launch==
 Your continued outreach will involve messaging to your members and others on a regular basis through a number of means, depending upon your ability. You will develop a specific plan for your own organization. Below are ideas for outreach to member participants and non-member, potential participants. These are meant to help you to think about what you might do, but is not meant to be directive.

@@ Line 91: / Line 91: @@
 [[File:6b.jpg|504px|thumb|center|Detailed: View All Entries]]
 '''PEER Info Panel'''
@@ Line 102: / Line 103: @@
 *PEER View
 [[File:7b.jpg|646px|thumb|center]]
 '''Outcome:''' the user is well-informed throughout, and the survey is intuitive.
 ===Using the PEER Questions Manager===

@@ Line 87: / Line 87: @@
 '''PEER Question Breakdown'''
-[[File:6a.jpg|577px|thumb|center|PEER Question]]
+[[File:6a.jpg|577px|thumb|center|PEER Questions Layout]]
-[[File:6b.jpg|504px|thumb|center|View All Entries]]
+[[File:6b.jpg|504px|thumb|center|Detailed: View All Entries]]
 ===Using the PEER Questions Manager===

← Older revision		Revision as of 15:25, 30 January 2015
Line 91:		Line 91:
	[[File:6b.jpg\|504px\|thumb\|left]]		[[File:6b.jpg\|504px\|thumb\|left]]

		+	<br/>

	===Using the PEER Questions Manager===		===Using the PEER Questions Manager===

← Older revision		Revision as of 15:24, 30 January 2015
Line 90:		Line 90:

	[[File:6b.jpg\|504px\|thumb\|left]]		[[File:6b.jpg\|504px\|thumb\|left]]
		+

	===Using the PEER Questions Manager===		===Using the PEER Questions Manager===