https://wikiadvocacy.org/w/index.php?action=history&feed=atom&title=Information_about_Rare_Genetic_DiseasesInformation about Rare Genetic Diseases - Revision history2026-05-13T10:09:39ZRevision history for this page on the wikiMediaWiki 1.35.0https://wikiadvocacy.org/w/index.php?title=Information_about_Rare_Genetic_Diseases&diff=58&oldid=prevAdvocacy Admin: Created page with ";[http://www.geneticalliance.org/ Genetic Alliance] :The Disease InfoSearch section is especially resourceful. :4301 Connecticut Avenue, NW :Suite 404 :Washington, DC 20008 ..."2014-02-26T15:42:36Z<p>Created page with ";[http://www.geneticalliance.org/ Genetic Alliance] :The Disease InfoSearch section is especially resourceful. :4301 Connecticut Avenue, NW :Suite 404 :Washington, DC 20008 ..."</p>
<p><b>New page</b></p><div>;[http://www.geneticalliance.org/ Genetic Alliance]<br />
:The Disease InfoSearch section is especially resourceful. <br />
:4301 Connecticut Avenue, NW<br />
:Suite 404<br />
:Washington, DC 20008<br />
:Phone: 202.966.5557 or 800.336.GENE<br />
:Fax: 202.966.8553<br />
:Email: info@geneticalliance.org<br />
<br />
;[http://www.genome.gov/10000409/ Genetic and Rare Disease Information Center]<br />
:Established by the National Human Genome Research Institute, this center provides information to patients, health care professionals, and researchers. They answer requests in both Spanish and English.<br />
:P.O. Box 8126<br />
:Gaithersburg, MD 20898-8126<br />
:Phone: 888.205.2311<br />
:TTY: 888.205.3223<br />
:Fax: 240.632.9164<br />
:Email: gardinfo@nih.gov<br />
<br />
;[http://rarediseases.info.nih.gov/ National Institutes of Health (NIH) Office of Rare Diseases]<br />
:Includes a list of patient travel and lodging options, as well as links to current genetic news, clinical resources, recent research and scientific programs, and advocacy organizations.<br />
<br />
;[http://www.rarediseases.org/ National Organization for Rare Disorders (NORD)]<br />
:55 Kenosia Avenue<br />
:PO Box 1968<br />
:Danbury, CT 06813-1968 <br />
:Phone: 203.744.0100<br />
:Toll-free: 800.999.6673 (voicemail only)<br />
:TDD: 203.797.9590<br />
:Fax: 203.798.2291<br />
:Email: orphan@rarediseases.org<br />
<br />
;[http://www.kumc.edu/gec/ The University of Kansas]<br />
:Hosts a comprehensive genetics resource site, which is updated regularly with clinical, research, and educational links.<br />
<br />
;[http://www.madisonsfoundation.org/index.php/component/option,com_mpower/Itemid,49/ Madison's Foundation]<br />
:Rare pediatric disease database updated by UCLA medical professionals<br />
<br />
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