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Showing below up to 100 results in range #1 to #100.
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- The Power of Advocacy Organizations (20:26, 25 February 2014)
- How to Use This Guide (14:40, 26 February 2014)
- How to Get Started (14:41, 26 February 2014)
- How to: Create a New Wiki Page (14:47, 26 February 2014)
- How to post a file on WikiAdvocacy (14:48, 26 February 2014)
- History of Advocacy Organizations and Genetic Alliance (14:51, 26 February 2014)
- The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates (14:54, 26 February 2014)
- Genetic Alliance (14:54, 26 February 2014)
- Determine Goals (14:55, 26 February 2014)
- Characterize Condition (14:55, 26 February 2014)
- Characterize Resources (14:56, 26 February 2014)
- Compare Goals and Resources, with the Characteristics of the Condition (14:56, 26 February 2014)
- Considering Starting a Support Group for a Condition that Already Has One? (14:56, 26 February 2014)
- Developing the Organization That Can Achieve Your Goals (14:57, 26 February 2014)
- NAC Best Practices (15:07, 26 February 2014)
- Becoming the Organization You Imagine (15:24, 26 February 2014)
- Individual Speaker Recommendations (15:27, 26 February 2014)
- Travel (15:28, 26 February 2014)
- Charity Rating Listings (15:29, 26 February 2014)
- Events (15:35, 26 February 2014)
- Financial Assets (15:35, 26 February 2014)
- Meet Your Neighbors & Organizations (15:36, 26 February 2014)
- Matching Resources (15:36, 26 February 2014)
- Information about Rare Genetic Diseases (15:42, 26 February 2014)
- Harnessing the Resources That Are Hard to Measure (15:46, 26 February 2014)
- How to Obtain Donated Office Space (15:48, 26 February 2014)
- Choosing an Internet Service Provider (15:48, 26 February 2014)
- Emergency Preparedness (15:49, 26 February 2014)
- Maintaining Computer Files (15:49, 26 February 2014)
- Maintaining Your Membership (15:52, 26 February 2014)
- Member Dues (15:57, 26 February 2014)
- Recruiting (16:00, 26 February 2014)
- Blogging (16:05, 26 February 2014)
- Advocacy Resources (16:08, 26 February 2014)
- Connecting Organizations (16:08, 26 February 2014)
- Advocacy Organizations List (16:09, 26 February 2014)
- Policy Tools & Resources (16:09, 26 February 2014)
- National Institutes of Health (NIH) (16:11, 26 February 2014)
- Internet Services (16:11, 26 February 2014)
- Legislation and Policy Advocacy (16:11, 26 February 2014)
- Phone Services: Going Beyond the Phone Tree (16:11, 26 February 2014)
- Protecting Member Privacy (16:12, 26 February 2014)
- Informal Offices or Regional Support Groups (16:13, 26 February 2014)
- Getting Needs on Government and Legislative Agendas (16:14, 26 February 2014)
- Getting an ICD-9 code added for your condition (16:14, 26 February 2014)
- Councils and Other Advisory Bodies (16:15, 26 February 2014)
- Translational Science (16:15, 26 February 2014)
- Research Models (16:18, 26 February 2014)
- Articles, Letters, and Other Media for Lay Publication (16:19, 26 February 2014)
- Press Kits (16:23, 26 February 2014)
- Publisher Recommendations (16:24, 26 February 2014)
- Starting Points for Planning Materials (16:24, 26 February 2014)
- Consumers and Researchers: Making It Work (16:27, 26 February 2014)
- Creating a Natural History Survey (16:27, 26 February 2014)
- Facilitating Quality Research (16:28, 26 February 2014)
- Funding Research by Others (16:28, 26 February 2014)
- Getting Needs onto the Research Agenda (16:29, 26 February 2014)
- Genetic Privacy (16:29, 26 February 2014)
- Promoting Research (16:29, 26 February 2014)
- Orphan Drug Application (16:30, 26 February 2014)
- Patient's Bill of Rights (16:30, 26 February 2014)
- Planning a Research Conference (16:32, 26 February 2014)
- Editing Practice (16:34, 26 February 2014)
- Media Tips (16:34, 26 February 2014)
- Recruiting Celebrities (16:35, 26 February 2014)
- Health care Providers and Specialists (16:35, 26 February 2014)
- Attending Professionals' Annual Meetings (16:36, 26 February 2014)
- Using Search Tools to Get Found (16:41, 26 February 2014)
- Advocacy (16:52, 26 February 2014)
- Internet Services: Websites, Chat Rooms, and Newsgroups (16:53, 26 February 2014)
- Protecting Message Boards from Spam (16:54, 26 February 2014)
- Education of Members, Providers, and the Public (16:56, 26 February 2014)
- Educating Your Membership about Research (16:57, 26 February 2014)
- Promoting Research on a Condition (16:58, 26 February 2014)
- Overview of WikiAdvocacy (16:59, 26 February 2014)
- Research Model 1: Recessive Disorder (16:59, 26 February 2014)
- Research Model 2: Chromosomal Disorder (17:00, 26 February 2014)
- Creating New Pages (17:00, 26 February 2014)
- Research Model 3: Dominant Disorder (17:00, 26 February 2014)
- Basic Formatting (17:00, 26 February 2014)
- Getting Your Needs on Government and Legislative Agendas (17:01, 26 February 2014)
- Cool Tips (17:02, 26 February 2014)
- Getting a Biobank or Registry Started (17:03, 26 February 2014)
- Biobank and Registry External Relations (17:03, 26 February 2014)
- Biobank and Registry Financial Management (17:03, 26 February 2014)
- Obtaining and Maintaining Registry Data (17:04, 26 February 2014)
- Registry and Biobank Ethics and Governance (17:04, 26 February 2014)
- Registry Questionnaires (17:05, 26 February 2014)
- Intended Goal (17:16, 26 February 2014)
- Getting Your Community Interested (17:18, 26 February 2014)
- Knowing Your Community (17:18, 26 February 2014)
- Accessibility of Tools (17:19, 26 February 2014)
- Available Resources (17:19, 26 February 2014)
- Additional/Supplemental Resources (17:20, 26 February 2014)
- Results and Individual Follow-up (17:20, 26 February 2014)
- Family Health History Initiative Guidelines (17:21, 26 February 2014)
- Preparing for and Handling Publicity (17:22, 26 February 2014)
- Choosing Internet Service Provider (17:22, 26 February 2014)
- National Awareness Day (17:24, 26 February 2014)
- Scholarships for your participants/families/members (17:32, 26 February 2014)