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Showing below up to 198 results in range #1 to #198.

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  1. The Power of Advocacy Organizations‏‎ (20:26, 25 February 2014)
  2. How to Use This Guide‏‎ (14:40, 26 February 2014)
  3. How to Get Started‏‎ (14:41, 26 February 2014)
  4. How to: Create a New Wiki Page‏‎ (14:47, 26 February 2014)
  5. How to post a file on WikiAdvocacy‏‎ (14:48, 26 February 2014)
  6. History of Advocacy Organizations and Genetic Alliance‏‎ (14:51, 26 February 2014)
  7. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (14:54, 26 February 2014)
  8. Genetic Alliance‏‎ (14:54, 26 February 2014)
  9. Determine Goals‏‎ (14:55, 26 February 2014)
  10. Characterize Condition‏‎ (14:55, 26 February 2014)
  11. Characterize Resources‏‎ (14:56, 26 February 2014)
  12. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (14:56, 26 February 2014)
  13. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (14:56, 26 February 2014)
  14. Developing the Organization That Can Achieve Your Goals‏‎ (14:57, 26 February 2014)
  15. NAC Best Practices‏‎ (15:07, 26 February 2014)
  16. Becoming the Organization You Imagine‏‎ (15:24, 26 February 2014)
  17. Individual Speaker Recommendations‏‎ (15:27, 26 February 2014)
  18. Travel‏‎ (15:28, 26 February 2014)
  19. Charity Rating Listings‏‎ (15:29, 26 February 2014)
  20. Events‏‎ (15:35, 26 February 2014)
  21. Financial Assets‏‎ (15:35, 26 February 2014)
  22. Meet Your Neighbors & Organizations‏‎ (15:36, 26 February 2014)
  23. Matching Resources‏‎ (15:36, 26 February 2014)
  24. Information about Rare Genetic Diseases‏‎ (15:42, 26 February 2014)
  25. Harnessing the Resources That Are Hard to Measure‏‎ (15:46, 26 February 2014)
  26. How to Obtain Donated Office Space‏‎ (15:48, 26 February 2014)
  27. Choosing an Internet Service Provider‏‎ (15:48, 26 February 2014)
  28. Emergency Preparedness‏‎ (15:49, 26 February 2014)
  29. Maintaining Computer Files‏‎ (15:49, 26 February 2014)
  30. Maintaining Your Membership‏‎ (15:52, 26 February 2014)
  31. Member Dues‏‎ (15:57, 26 February 2014)
  32. Recruiting‏‎ (16:00, 26 February 2014)
  33. Blogging‏‎ (16:05, 26 February 2014)
  34. Advocacy Resources‏‎ (16:08, 26 February 2014)
  35. Connecting Organizations‏‎ (16:08, 26 February 2014)
  36. Advocacy Organizations List‏‎ (16:09, 26 February 2014)
  37. Policy Tools & Resources‏‎ (16:09, 26 February 2014)
  38. National Institutes of Health (NIH)‏‎ (16:11, 26 February 2014)
  39. Internet Services‏‎ (16:11, 26 February 2014)
  40. Legislation and Policy Advocacy‏‎ (16:11, 26 February 2014)
  41. Phone Services: Going Beyond the Phone Tree‏‎ (16:11, 26 February 2014)
  42. Protecting Member Privacy‏‎ (16:12, 26 February 2014)
  43. Informal Offices or Regional Support Groups‏‎ (16:13, 26 February 2014)
  44. Getting Needs on Government and Legislative Agendas‏‎ (16:14, 26 February 2014)
  45. Getting an ICD-9 code added for your condition‏‎ (16:14, 26 February 2014)
  46. Councils and Other Advisory Bodies‏‎ (16:15, 26 February 2014)
  47. Translational Science‏‎ (16:15, 26 February 2014)
  48. Research Models‏‎ (16:18, 26 February 2014)
  49. Articles, Letters, and Other Media for Lay Publication‏‎ (16:19, 26 February 2014)
  50. Press Kits‏‎ (16:23, 26 February 2014)
  51. Publisher Recommendations‏‎ (16:24, 26 February 2014)
  52. Starting Points for Planning Materials‏‎ (16:24, 26 February 2014)
  53. Consumers and Researchers: Making It Work‏‎ (16:27, 26 February 2014)
  54. Creating a Natural History Survey‏‎ (16:27, 26 February 2014)
  55. Facilitating Quality Research‏‎ (16:28, 26 February 2014)
  56. Funding Research by Others‏‎ (16:28, 26 February 2014)
  57. Getting Needs onto the Research Agenda‏‎ (16:29, 26 February 2014)
  58. Genetic Privacy‏‎ (16:29, 26 February 2014)
  59. Promoting Research‏‎ (16:29, 26 February 2014)
  60. Orphan Drug Application‏‎ (16:30, 26 February 2014)
  61. Patient's Bill of Rights‏‎ (16:30, 26 February 2014)
  62. Planning a Research Conference‏‎ (16:32, 26 February 2014)
  63. Editing Practice‏‎ (16:34, 26 February 2014)
  64. Media Tips‏‎ (16:34, 26 February 2014)
  65. Recruiting Celebrities‏‎ (16:35, 26 February 2014)
  66. Health care Providers and Specialists‏‎ (16:35, 26 February 2014)
  67. Attending Professionals' Annual Meetings‏‎ (16:36, 26 February 2014)
  68. Using Search Tools to Get Found‏‎ (16:41, 26 February 2014)
  69. Advocacy‏‎ (16:52, 26 February 2014)
  70. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (16:53, 26 February 2014)
  71. Protecting Message Boards from Spam‏‎ (16:54, 26 February 2014)
  72. Education of Members, Providers, and the Public‏‎ (16:56, 26 February 2014)
  73. Educating Your Membership about Research‏‎ (16:57, 26 February 2014)
  74. Promoting Research on a Condition‏‎ (16:58, 26 February 2014)
  75. Overview of WikiAdvocacy‏‎ (16:59, 26 February 2014)
  76. Research Model 1: Recessive Disorder‏‎ (16:59, 26 February 2014)
  77. Research Model 2: Chromosomal Disorder‏‎ (17:00, 26 February 2014)
  78. Creating New Pages‏‎ (17:00, 26 February 2014)
  79. Research Model 3: Dominant Disorder‏‎ (17:00, 26 February 2014)
  80. Basic Formatting‏‎ (17:00, 26 February 2014)
  81. Getting Your Needs on Government and Legislative Agendas‏‎ (17:01, 26 February 2014)
  82. Cool Tips‏‎ (17:02, 26 February 2014)
  83. Getting a Biobank or Registry Started‏‎ (17:03, 26 February 2014)
  84. Biobank and Registry External Relations‏‎ (17:03, 26 February 2014)
  85. Biobank and Registry Financial Management‏‎ (17:03, 26 February 2014)
  86. Obtaining and Maintaining Registry Data‏‎ (17:04, 26 February 2014)
  87. Registry and Biobank Ethics and Governance‏‎ (17:04, 26 February 2014)
  88. Registry Questionnaires‏‎ (17:05, 26 February 2014)
  89. Intended Goal‏‎ (17:16, 26 February 2014)
  90. Getting Your Community Interested‏‎ (17:18, 26 February 2014)
  91. Knowing Your Community‏‎ (17:18, 26 February 2014)
  92. Accessibility of Tools‏‎ (17:19, 26 February 2014)
  93. Available Resources‏‎ (17:19, 26 February 2014)
  94. Additional/Supplemental Resources‏‎ (17:20, 26 February 2014)
  95. Results and Individual Follow-up‏‎ (17:20, 26 February 2014)
  96. Family Health History Initiative Guidelines‏‎ (17:21, 26 February 2014)
  97. Preparing for and Handling Publicity‏‎ (17:22, 26 February 2014)
  98. Choosing Internet Service Provider‏‎ (17:22, 26 February 2014)
  99. National Awareness Day‏‎ (17:24, 26 February 2014)
  100. Scholarships for your participants/families/members‏‎ (17:32, 26 February 2014)
  101. Speaker selection and management‏‎ (17:34, 26 February 2014)
  102. Novel Meeting Formats‏‎ (17:36, 26 February 2014)
  103. Why Go There?‏‎ (17:36, 26 February 2014)
  104. Funding‏‎ (17:37, 26 February 2014)
  105. Leadership‏‎ (17:37, 26 February 2014)
  106. Mentors‏‎ (17:38, 26 February 2014)
  107. Expertise‏‎ (17:39, 26 February 2014)
  108. Sharon F. Terry‏‎ (17:47, 26 February 2014)
  109. Vision‏‎ (17:53, 26 February 2014)
  110. Media Access‏‎ (17:53, 26 February 2014)
  111. Celebrity Spokesperson‏‎ (17:56, 26 February 2014)
  112. Working with a Lawyer‏‎ (17:58, 26 February 2014)
  113. Setting up Useful Systems‏‎ (18:00, 26 February 2014)
  114. State-Specific Issues‏‎ (18:01, 26 February 2014)
  115. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (18:02, 26 February 2014)
  116. Accepting Donations‏‎ (18:02, 26 February 2014)
  117. Working Full-Time on Nonprofit‏‎ (18:04, 26 February 2014)
  118. Finding a Lawyer‏‎ (18:09, 26 February 2014)
  119. Tax and Finance‏‎ (15:14, 27 February 2014)
  120. Autopsies and Tissue Collection‏‎ (16:21, 5 March 2014)
  121. Medical Records‏‎ (16:25, 5 March 2014)
  122. Bylaws and Articles‏‎ (17:02, 5 March 2014)
  123. Sibling Support‏‎ (17:43, 5 March 2014)
  124. Resources for Nonprofits‏‎ (17:46, 5 March 2014)
  125. Publications‏‎ (17:47, 5 March 2014)
  126. General Resources‏‎ (17:49, 5 March 2014)
  127. Fundraising Appeals‏‎ (17:50, 5 March 2014)
  128. Consumer Medical Information‏‎ (17:58, 5 March 2014)
  129. Children's Hopes and Dreams Foundations‏‎ (18:01, 5 March 2014)
  130. Assistive Technology‏‎ (18:07, 5 March 2014)
  131. Internet and Web Resources‏‎ (18:19, 5 March 2014)
  132. Start Using WikiAdvocacy‏‎ (15:17, 6 March 2014)
  133. Conference Call Services‏‎ (12:50, 6 May 2014)
  134. Volunteer - Peer Coaches‏‎ (18:58, 7 May 2014)
  135. FARA Q & A‏‎ (19:06, 7 May 2014)
  136. Registry and Biobank Weekly Tips‏‎ (19:07, 7 May 2014)
  137. FARA Patient Registry Q & A‏‎ (19:08, 7 May 2014)
  138. Internet Services: Mailing Lists‏‎ (19:18, 7 May 2014)
  139. Brochures and Fact Sheets‏‎ (13:45, 29 October 2014)
  140. Newsletters and Bulletins‏‎ (13:46, 29 October 2014)
  141. Your Organization's Name Is Important‏‎ (14:46, 31 October 2014)
  142. Educating Membership about Research‏‎ (14:37, 12 November 2014)
  143. Setting Up A National Conference‏‎ (16:18, 8 December 2014)
  144. Disease Advocacy Organization(DAO)‏‎ (14:28, 10 December 2014)
  145. Disease Advocacy Organization(DAO) Manual‏‎ (16:00, 16 December 2014)
  146. PEER Portal‏‎ (20:33, 23 December 2014)
  147. Overview‏‎ (18:35, 23 January 2015)
  148. Genetic Alliance(GA) SOP‏‎ (18:35, 23 January 2015)
  149. Webinars‏‎ (19:14, 6 February 2015)
  150. Disease Advocacy Organization (DAO) Manual‏‎ (16:52, 11 February 2015)
  151. Clinician- and Researcher-Focused Materials‏‎ (19:29, 12 February 2015)
  152. Helping Your Membership Help Your Group‏‎ (20:15, 23 February 2015)
  153. Internet Services: Listserv Guidelines Netiquitte Help‏‎ (20:16, 23 February 2015)
  154. Financial and Summary Statement‏‎ (18:53, 19 March 2015)
  155. Joint Fundraising‏‎ (13:40, 12 August 2015)
  156. Fundraising/Third Party‏‎ (19:33, 12 August 2015)
  157. BioBanks‏‎ (14:51, 4 February 2016)
  158. Blood and Tissue Banks‏‎ (14:53, 4 February 2016)
  159. Fundraising‏‎ (01:09, 16 April 2016)
  160. International Offices‏‎ (01:34, 16 April 2016)
  161. Accountants‏‎ (00:37, 29 August 2016)
  162. Developing a Governance Board‏‎ (01:55, 29 August 2016)
  163. Connecting Individuals‏‎ (23:44, 30 August 2016)
  164. Audits‏‎ (01:56, 14 December 2016)
  165. Functions of Advocacy Organization‏‎ (18:01, 8 April 2018)
  166. Drug Development‏‎ (18:24, 8 April 2018)
  167. Childcare‏‎ (15:46, 15 April 2018)
  168. Advisory Boards‏‎ (19:10, 20 June 2018)
  169. Ensuring Cultural Competence‏‎ (19:47, 20 June 2018)
  170. Insurance and Policies‏‎ (19:51, 20 June 2018)
  171. Donations‏‎ (14:42, 22 June 2018)
  172. People and Roles‏‎ (15:30, 22 June 2018)
  173. Best Practices‏‎ (17:42, 22 June 2018)
  174. Dealing with Death‏‎ (18:21, 22 June 2018)
  175. Resources for School Success‏‎ (18:58, 22 June 2018)
  176. Family Health History‏‎ (15:16, 17 July 2018)
  177. Volunteers‏‎ (18:49, 30 July 2018)
  178. Working Remotely‏‎ (18:50, 30 July 2018)
  179. Building a Website‏‎ (18:55, 30 July 2018)
  180. Getting Grants‏‎ (20:10, 30 July 2018)
  181. Taking Credit Cards on the Web‏‎ (20:12, 30 July 2018)
  182. Donations from Canada/Outside the US‏‎ (20:37, 30 July 2018)
  183. Social Networking‏‎ (15:15, 1 August 2018)
  184. Support for Individuals and Families‏‎ (15:23, 1 August 2018)
  185. Youth to Adult Transition Issues‏‎ (15:49, 1 August 2018)
  186. Publicity and General Media‏‎ (16:40, 1 August 2018)
  187. Barriers to Rare Disease Research‏‎ (16:40, 2 August 2018)
  188. Benefits of Collaboration with Advocacy Organization Community‏‎ (16:48, 2 August 2018)
  189. Main Page‏‎ (17:06, 3 August 2018)
  190. Nonprofit Organization Sample Templates‏‎ (17:26, 3 August 2018)
  191. State Registration‏‎ (17:24, 20 September 2018)
  192. Challenges of 'Splinter Groups'‏‎ (04:07, 20 March 2019)
  193. Registries‏‎ (13:50, 8 October 2020)
  194. Staff‏‎ (20:38, 17 January 2021)
  195. Genetic Alliance BioBank‏‎ (06:25, 15 September 2021)
  196. Conferences, Workshops, and Meetings for Affected Individuals‏‎ (02:09, 21 September 2021)
  197. Biobank Sample Collection‏‎ (14:40, 25 March 2022)
  198. Defining Our Terms‏‎ (03:30, 21 November 2023)

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