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Showing below up to 100 results in range #1 to #100.

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  1. Speaker selection and management‏‎ (1 revision)
  2. Available Resources‏‎ (1 revision)
  3. Consumers and Researchers: Making It Work‏‎ (1 revision)
  4. Editing Practice‏‎ (1 revision)
  5. Getting a Biobank or Registry Started‏‎ (1 revision)
  6. Registry Questionnaires‏‎ (1 revision)
  7. Characterize Condition‏‎ (1 revision)
  8. Cool Tips‏‎ (1 revision)
  9. Funding‏‎ (1 revision)
  10. Getting an ICD-9 code added for your condition‏‎ (1 revision)
  11. Internet Services‏‎ (1 revision)
  12. Meet Your Neighbors & Organizations‏‎ (1 revision)
  13. Phone Services: Going Beyond the Phone Tree‏‎ (1 revision)
  14. Registry and Biobank Ethics and Governance‏‎ (1 revision)
  15. Accepting Donations‏‎ (1 revision)
  16. Basic Formatting‏‎ (1 revision)
  17. Characterize Resources‏‎ (1 revision)
  18. Councils and Other Advisory Bodies‏‎ (1 revision)
  19. Educating Your Membership about Research‏‎ (1 revision)
  20. Funding Research by Others‏‎ (1 revision)
  21. Harnessing the Resources That Are Hard to Measure‏‎ (1 revision)
  22. Member Dues‏‎ (1 revision)
  23. Planning a Research Conference‏‎ (1 revision)
  24. Starting Points for Planning Materials‏‎ (1 revision)
  25. Working Full-Time on Nonprofit‏‎ (1 revision)
  26. Accessibility of Tools‏‎ (1 revision)
  27. Becoming the Organization You Imagine‏‎ (1 revision)
  28. Creating New Pages‏‎ (1 revision)
  29. Education of Members, Providers, and the Public‏‎ (1 revision)
  30. Health care Providers and Specialists‏‎ (1 revision)
  31. Mentors‏‎ (1 revision)
  32. Policy Tools & Resources‏‎ (1 revision)
  33. Research Model 1: Recessive Disorder‏‎ (1 revision)
  34. State-Specific Issues‏‎ (1 revision)
  35. Creating a Natural History Survey‏‎ (1 revision)
  36. Emergency Preparedness‏‎ (1 revision)
  37. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (1 revision)
  38. NAC Best Practices‏‎ (1 revision)
  39. Preparing for and Handling Publicity‏‎ (1 revision)
  40. Research Model 2: Chromosomal Disorder‏‎ (1 revision)
  41. Additional/Supplemental Resources‏‎ (1 revision)
  42. History of Advocacy Organizations and Genetic Alliance‏‎ (1 revision)
  43. National Awareness Day‏‎ (1 revision)
  44. Press Kits‏‎ (1 revision)
  45. Research Model 3: Dominant Disorder‏‎ (1 revision)
  46. Choosing Internet Service Provider‏‎ (1 revision)
  47. Events‏‎ (1 revision)
  48. How to: Create a New Wiki Page‏‎ (1 revision)
  49. National Institutes of Health (NIH)‏‎ (1 revision)
  50. Promoting Research‏‎ (1 revision)
  51. Research Models‏‎ (1 revision)
  52. Advocacy‏‎ (1 revision)
  53. Choosing an Internet Service Provider‏‎ (1 revision)
  54. Determine Goals‏‎ (1 revision)
  55. Expertise‏‎ (1 revision)
  56. Genetic Alliance‏‎ (1 revision)
  57. How to Get Started‏‎ (1 revision)
  58. Knowing Your Community‏‎ (1 revision)
  59. Promoting Research on a Condition‏‎ (1 revision)
  60. Advocacy Organizations List‏‎ (1 revision)
  61. Biobank and Registry External Relations‏‎ (1 revision)
  62. FARA Patient Registry Q & A‏‎ (1 revision)
  63. How to Obtain Donated Office Space‏‎ (1 revision)
  64. Leadership‏‎ (1 revision)
  65. Nonprofit Organization Sample Templates‏‎ (1 revision)
  66. Protecting Member Privacy‏‎ (1 revision)
  67. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (1 revision)
  68. Advocacy Resources‏‎ (1 revision)
  69. Biobank and Registry Financial Management‏‎ (1 revision)
  70. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (1 revision)
  71. Developing the Organization That Can Achieve Your Goals‏‎ (1 revision)
  72. FARA Q & A‏‎ (1 revision)
  73. How to Use This Guide‏‎ (1 revision)
  74. Legislation and Policy Advocacy‏‎ (1 revision)
  75. Protecting Message Boards from Spam‏‎ (1 revision)
  76. Results and Individual Follow-up‏‎ (1 revision)
  77. The Power of Advocacy Organizations‏‎ (1 revision)
  78. Articles, Letters, and Other Media for Lay Publication‏‎ (1 revision)
  79. Blogging‏‎ (1 revision)
  80. Disease Advocacy Organization(DAO)‏‎ (1 revision)
  81. Facilitating Quality Research‏‎ (1 revision)
  82. Genetic Privacy‏‎ (1 revision)
  83. How to post a file on WikiAdvocacy‏‎ (1 revision)
  84. Obtaining and Maintaining Registry Data‏‎ (1 revision)
  85. Scholarships for your participants/families/members‏‎ (1 revision)
  86. Translational Science‏‎ (1 revision)
  87. Individual Speaker Recommendations‏‎ (1 revision)
  88. Maintaining Computer Files‏‎ (1 revision)
  89. Orphan Drug Application‏‎ (1 revision)
  90. Setting up Useful Systems‏‎ (1 revision)
  91. Travel‏‎ (1 revision)
  92. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (1 revision)
  93. Getting Needs on Government and Legislative Agendas‏‎ (1 revision)
  94. Informal Offices or Regional Support Groups‏‎ (1 revision)
  95. Maintaining Your Membership‏‎ (1 revision)
  96. Publisher Recommendations‏‎ (1 revision)
  97. Sharon F. Terry‏‎ (1 revision)
  98. Using Search Tools to Get Found‏‎ (1 revision)
  99. Attending Professionals' Annual Meetings‏‎ (1 revision)
  100. Connecting Organizations‏‎ (1 revision)

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