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Showing below up to 198 results in range #1 to #198.

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  1. Additional/Supplemental Resources‏‎ (1 revision)
  2. History of Advocacy Organizations and Genetic Alliance‏‎ (1 revision)
  3. National Awareness Day‏‎ (1 revision)
  4. Press Kits‏‎ (1 revision)
  5. Research Model 3: Dominant Disorder‏‎ (1 revision)
  6. Choosing Internet Service Provider‏‎ (1 revision)
  7. Events‏‎ (1 revision)
  8. How to: Create a New Wiki Page‏‎ (1 revision)
  9. National Institutes of Health (NIH)‏‎ (1 revision)
  10. Promoting Research‏‎ (1 revision)
  11. Research Models‏‎ (1 revision)
  12. Advocacy‏‎ (1 revision)
  13. Choosing an Internet Service Provider‏‎ (1 revision)
  14. Determine Goals‏‎ (1 revision)
  15. Expertise‏‎ (1 revision)
  16. Genetic Alliance‏‎ (1 revision)
  17. How to Get Started‏‎ (1 revision)
  18. Knowing Your Community‏‎ (1 revision)
  19. Promoting Research on a Condition‏‎ (1 revision)
  20. Advocacy Organizations List‏‎ (1 revision)
  21. Biobank and Registry External Relations‏‎ (1 revision)
  22. FARA Patient Registry Q & A‏‎ (1 revision)
  23. How to Obtain Donated Office Space‏‎ (1 revision)
  24. Leadership‏‎ (1 revision)
  25. Nonprofit Organization Sample Templates‏‎ (1 revision)
  26. Protecting Member Privacy‏‎ (1 revision)
  27. Advocacy Resources‏‎ (1 revision)
  28. Biobank and Registry Financial Management‏‎ (1 revision)
  29. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (1 revision)
  30. Developing the Organization That Can Achieve Your Goals‏‎ (1 revision)
  31. FARA Q & A‏‎ (1 revision)
  32. How to Use This Guide‏‎ (1 revision)
  33. Legislation and Policy Advocacy‏‎ (1 revision)
  34. Protecting Message Boards from Spam‏‎ (1 revision)
  35. Results and Individual Follow-up‏‎ (1 revision)
  36. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (1 revision)
  37. Articles, Letters, and Other Media for Lay Publication‏‎ (1 revision)
  38. Blogging‏‎ (1 revision)
  39. Disease Advocacy Organization(DAO)‏‎ (1 revision)
  40. Facilitating Quality Research‏‎ (1 revision)
  41. Genetic Privacy‏‎ (1 revision)
  42. How to post a file on WikiAdvocacy‏‎ (1 revision)
  43. Obtaining and Maintaining Registry Data‏‎ (1 revision)
  44. Scholarships for your participants/families/members‏‎ (1 revision)
  45. The Power of Advocacy Organizations‏‎ (1 revision)
  46. Individual Speaker Recommendations‏‎ (1 revision)
  47. Maintaining Computer Files‏‎ (1 revision)
  48. Orphan Drug Application‏‎ (1 revision)
  49. Translational Science‏‎ (1 revision)
  50. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (1 revision)
  51. Getting Needs on Government and Legislative Agendas‏‎ (1 revision)
  52. Informal Offices or Regional Support Groups‏‎ (1 revision)
  53. Maintaining Your Membership‏‎ (1 revision)
  54. Publisher Recommendations‏‎ (1 revision)
  55. Setting up Useful Systems‏‎ (1 revision)
  56. Travel‏‎ (1 revision)
  57. Attending Professionals' Annual Meetings‏‎ (1 revision)
  58. Connecting Organizations‏‎ (1 revision)
  59. Financial Assets‏‎ (1 revision)
  60. Getting Needs onto the Research Agenda‏‎ (1 revision)
  61. Information about Rare Genetic Diseases‏‎ (1 revision)
  62. Matching Resources‏‎ (1 revision)
  63. Overview of WikiAdvocacy‏‎ (1 revision)
  64. Recruiting‏‎ (1 revision)
  65. Sharon F. Terry‏‎ (1 revision)
  66. Using Search Tools to Get Found‏‎ (1 revision)
  67. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (1 revision)
  68. Getting Your Community Interested‏‎ (1 revision)
  69. Media Access‏‎ (1 revision)
  70. Recruiting Celebrities‏‎ (1 revision)
  71. Vision‏‎ (1 revision)
  72. Celebrity Spokesperson‏‎ (1 revision)
  73. Getting Your Needs on Government and Legislative Agendas‏‎ (1 revision)
  74. Intended Goal‏‎ (1 revision)
  75. Media Tips‏‎ (1 revision)
  76. Patient's Bill of Rights‏‎ (1 revision)
  77. Available Resources‏‎ (1 revision)
  78. Consumers and Researchers: Making It Work‏‎ (1 revision)
  79. Editing Practice‏‎ (1 revision)
  80. Getting a Biobank or Registry Started‏‎ (1 revision)
  81. Registry Questionnaires‏‎ (1 revision)
  82. Speaker selection and management‏‎ (1 revision)
  83. Characterize Condition‏‎ (1 revision)
  84. Cool Tips‏‎ (1 revision)
  85. Funding‏‎ (1 revision)
  86. Getting an ICD-9 code added for your condition‏‎ (1 revision)
  87. Internet Services‏‎ (1 revision)
  88. Meet Your Neighbors & Organizations‏‎ (1 revision)
  89. Phone Services: Going Beyond the Phone Tree‏‎ (1 revision)
  90. Registry and Biobank Ethics and Governance‏‎ (1 revision)
  91. Accepting Donations‏‎ (1 revision)
  92. Basic Formatting‏‎ (1 revision)
  93. Characterize Resources‏‎ (1 revision)
  94. Councils and Other Advisory Bodies‏‎ (1 revision)
  95. Educating Your Membership about Research‏‎ (1 revision)
  96. Funding Research by Others‏‎ (1 revision)
  97. Harnessing the Resources That Are Hard to Measure‏‎ (1 revision)
  98. Member Dues‏‎ (1 revision)
  99. Planning a Research Conference‏‎ (1 revision)
  100. Accessibility of Tools‏‎ (1 revision)
  101. Becoming the Organization You Imagine‏‎ (1 revision)
  102. Creating New Pages‏‎ (1 revision)
  103. Education of Members, Providers, and the Public‏‎ (1 revision)
  104. Health care Providers and Specialists‏‎ (1 revision)
  105. Mentors‏‎ (1 revision)
  106. Policy Tools & Resources‏‎ (1 revision)
  107. Research Model 1: Recessive Disorder‏‎ (1 revision)
  108. Starting Points for Planning Materials‏‎ (1 revision)
  109. Working Full-Time on Nonprofit‏‎ (1 revision)
  110. Creating a Natural History Survey‏‎ (1 revision)
  111. Emergency Preparedness‏‎ (1 revision)
  112. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (1 revision)
  113. NAC Best Practices‏‎ (1 revision)
  114. Preparing for and Handling Publicity‏‎ (1 revision)
  115. Research Model 2: Chromosomal Disorder‏‎ (1 revision)
  116. State-Specific Issues‏‎ (1 revision)
  117. Fundraising Appeals‏‎ (2 revisions)
  118. Internet and Web Resources‏‎ (2 revisions)
  119. Working with a Lawyer‏‎ (2 revisions)
  120. Biobank Sample Collection‏‎ (2 revisions)
  121. Resources for Nonprofits‏‎ (2 revisions)
  122. Clinician- and Researcher-Focused Materials‏‎ (2 revisions)
  123. Tax and Finance‏‎ (2 revisions)
  124. Genetic Alliance BioBank‏‎ (2 revisions)
  125. Novel Meeting Formats‏‎ (2 revisions)
  126. Publications‏‎ (2 revisions)
  127. Assistive Technology‏‎ (2 revisions)
  128. Connecting Individuals‏‎ (2 revisions)
  129. Family Health History Initiative Guidelines‏‎ (2 revisions)
  130. Sibling Support‏‎ (2 revisions)
  131. Autopsies and Tissue Collection‏‎ (2 revisions)
  132. Consumer Medical Information‏‎ (2 revisions)
  133. Registries‏‎ (2 revisions)
  134. Functions of Advocacy Organization‏‎ (2 revisions)
  135. Internet Services: Listserv Guidelines Netiquitte Help‏‎ (2 revisions)
  136. Start Using WikiAdvocacy‏‎ (2 revisions)
  137. Why Go There?‏‎ (2 revisions)
  138. Charity Rating Listings‏‎ (2 revisions)
  139. Benefits of Collaboration with Advocacy Organization Community‏‎ (2 revisions)
  140. Childcare‏‎ (2 revisions)
  141. Children's Hopes and Dreams Foundations‏‎ (3 revisions)
  142. Defining Our Terms‏‎ (3 revisions)
  143. General Resources‏‎ (3 revisions)
  144. Joint Fundraising‏‎ (3 revisions)
  145. Conference Call Services‏‎ (3 revisions)
  146. Blood and Tissue Banks‏‎ (3 revisions)
  147. Family Health History‏‎ (3 revisions)
  148. Bylaws and Articles‏‎ (3 revisions)
  149. Financial and Summary Statement‏‎ (3 revisions)
  150. Finding a Lawyer‏‎ (3 revisions)
  151. Volunteer - Peer Coaches‏‎ (3 revisions)
  152. Medical Records‏‎ (3 revisions)
  153. People and Roles‏‎ (3 revisions)
  154. Barriers to Rare Disease Research‏‎ (3 revisions)
  155. Educating Membership about Research‏‎ (3 revisions)
  156. Webinars‏‎ (3 revisions)
  157. Registry and Biobank Weekly Tips‏‎ (3 revisions)
  158. Internet Services: Mailing Lists‏‎ (3 revisions)
  159. Accountants‏‎ (3 revisions)
  160. Helping Your Membership Help Your Group‏‎ (3 revisions)
  161. Best Practices‏‎ (4 revisions)
  162. BioBanks‏‎ (4 revisions)
  163. Taking Credit Cards on the Web‏‎ (4 revisions)
  164. Genetic Alliance(GA) SOP‏‎ (4 revisions)
  165. Resources for School Success‏‎ (4 revisions)
  166. Brochures and Fact Sheets‏‎ (4 revisions)
  167. Insurance and Policies‏‎ (4 revisions)
  168. PEER Portal‏‎ (4 revisions)
  169. International Offices‏‎ (4 revisions)
  170. Volunteers‏‎ (4 revisions)
  171. Support for Individuals and Families‏‎ (5 revisions)
  172. Newsletters and Bulletins‏‎ (5 revisions)
  173. Setting Up A National Conference‏‎ (5 revisions)
  174. Challenges of 'Splinter Groups'‏‎ (5 revisions)
  175. Ensuring Cultural Competence‏‎ (6 revisions)
  176. State Registration‏‎ (6 revisions)
  177. Getting Grants‏‎ (6 revisions)
  178. Donations from Canada/Outside the US‏‎ (6 revisions)
  179. Drug Development‏‎ (6 revisions)
  180. Working Remotely‏‎ (6 revisions)
  181. Advisory Boards‏‎ (7 revisions)
  182. Your Organization's Name Is Important‏‎ (7 revisions)
  183. Audits‏‎ (7 revisions)
  184. Fundraising/Third Party‏‎ (7 revisions)
  185. Youth to Adult Transition Issues‏‎ (8 revisions)
  186. Publicity and General Media‏‎ (8 revisions)
  187. Dealing with Death‏‎ (9 revisions)
  188. Staff‏‎ (9 revisions)
  189. Developing a Governance Board‏‎ (10 revisions)
  190. Fundraising‏‎ (14 revisions)
  191. Disease Advocacy Organization(DAO) Manual‏‎ (15 revisions)
  192. Building a Website‏‎ (16 revisions)
  193. Conferences, Workshops, and Meetings for Affected Individuals‏‎ (21 revisions)
  194. Donations‏‎ (25 revisions)
  195. Social Networking‏‎ (36 revisions)
  196. Main Page‏‎ (41 revisions)
  197. Overview‏‎ (65 revisions)
  198. Disease Advocacy Organization (DAO) Manual‏‎ (438 revisions)

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