Long pages
From WikiAdvocacy
Showing below up to 100 results in range #1 to #100.
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- (hist) Disease Advocacy Organization (DAO) Manual [55,559 bytes]
- (hist) Donations [37,624 bytes]
- (hist) Social Networking [35,241 bytes]
- (hist) Conferences, Workshops, and Meetings for Affected Individuals [32,109 bytes]
- (hist) Fundraising/Third Party [31,913 bytes]
- (hist) Publicity and General Media [21,298 bytes]
- (hist) Joint Fundraising [21,129 bytes]
- (hist) Building a Website [19,848 bytes]
- (hist) Biobank and Registry External Relations [19,047 bytes]
- (hist) Your Organization's Name Is Important [17,490 bytes]
- (hist) Fundraising [17,132 bytes]
- (hist) Setting Up A National Conference [16,521 bytes]
- (hist) Internet Services: Mailing Lists [14,973 bytes]
- (hist) Getting a Biobank or Registry Started [13,141 bytes]
- (hist) Orphan Drug Application [12,595 bytes]
- (hist) Newsletters and Bulletins [12,571 bytes]
- (hist) Attending Professionals' Annual Meetings [12,221 bytes]
- (hist) Getting Grants [11,513 bytes]
- (hist) Developing a Governance Board [11,311 bytes]
- (hist) Youth to Adult Transition Issues [10,417 bytes]
- (hist) Biobank Sample Collection [9,900 bytes]
- (hist) Registry and Biobank Ethics and Governance [9,561 bytes]
- (hist) Support for Individuals and Families [9,531 bytes]
- (hist) Blood and Tissue Banks [9,047 bytes]
- (hist) Helping Your Membership Help Your Group [9,032 bytes]
- (hist) Maintaining Your Membership [8,722 bytes]
- (hist) Setting up Useful Systems [8,513 bytes]
- (hist) Why Go There? [8,509 bytes]
- (hist) Internet Services: Listserv Guidelines Netiquitte Help [8,455 bytes]
- (hist) Knowing Your Community [8,241 bytes]
- (hist) National Institutes of Health (NIH) [8,098 bytes]
- (hist) Advisory Boards [8,014 bytes]
- (hist) Main Page [7,994 bytes]
- (hist) Scholarships for your participants/families/members [7,955 bytes]
- (hist) Getting Your Community Interested [7,917 bytes]
- (hist) Barriers to Rare Disease Research [7,893 bytes]
- (hist) Accessibility of Tools [7,861 bytes]
- (hist) Childcare [7,770 bytes]
- (hist) Dealing with Death [7,750 bytes]
- (hist) Obtaining and Maintaining Registry Data [7,643 bytes]
- (hist) Additional/Supplemental Resources [7,565 bytes]
- (hist) Staff [7,011 bytes]
- (hist) History of Advocacy Organizations and Genetic Alliance [6,988 bytes]
- (hist) People and Roles [6,832 bytes]
- (hist) Creating a Natural History Survey [6,736 bytes]
- (hist) Connecting Individuals [6,700 bytes]
- (hist) Brochures and Fact Sheets [6,675 bytes]
- (hist) The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates [6,564 bytes]
- (hist) Genetic Alliance BioBank [6,467 bytes]
- (hist) Internet and Web Resources [6,400 bytes]
- (hist) Intended Goal [6,277 bytes]
- (hist) Volunteer - Peer Coaches [6,267 bytes]
- (hist) FARA Patient Registry Q & A [6,256 bytes]
- (hist) FARA Q & A [6,256 bytes]
- (hist) Working Remotely [6,180 bytes]
- (hist) Facilitating Quality Research [5,928 bytes]
- (hist) Registries [5,887 bytes]
- (hist) Internet Services: Websites, Chat Rooms, and Newsgroups [5,825 bytes]
- (hist) Clinician- and Researcher-Focused Materials [5,815 bytes]
- (hist) Taking Credit Cards on the Web [5,712 bytes]
- (hist) Media Tips [5,649 bytes]
- (hist) Educating Membership about Research [5,603 bytes]
- (hist) Determine Goals [5,465 bytes]
- (hist) Phone Services: Going Beyond the Phone Tree [5,421 bytes]
- (hist) Benefits of Collaboration with Advocacy Organization Community [5,412 bytes]
- (hist) Audits [5,357 bytes]
- (hist) Funding Research by Others [5,346 bytes]
- (hist) Biobank and Registry Financial Management [5,345 bytes]
- (hist) Using Search Tools to Get Found [5,107 bytes]
- (hist) Family Health History [5,037 bytes]
- (hist) Characterize Condition [4,930 bytes]
- (hist) Bylaws and Articles [4,913 bytes]
- (hist) Fundraising Appeals [4,886 bytes]
- (hist) Consumer Medical Information [4,855 bytes]
- (hist) Registry Questionnaires [4,781 bytes]
- (hist) Financial and Summary Statement [4,768 bytes]
- (hist) Available Resources [4,764 bytes]
- (hist) Research Model 1: Recessive Disorder [4,746 bytes]
- (hist) Promoting Research on a Condition [4,746 bytes]
- (hist) Promoting Research [4,746 bytes]
- (hist) Basic Formatting [4,649 bytes]
- (hist) Informal Offices or Regional Support Groups [4,648 bytes]
- (hist) Considering Starting a Support Group for a Condition that Already Has One? [4,582 bytes]
- (hist) Harnessing the Resources That Are Hard to Measure [4,529 bytes]
- (hist) Attaining 501(c)(3) Status (Not-For-Profit Determination) [4,508 bytes]
- (hist) Overview [4,440 bytes]
- (hist) General Resources [4,326 bytes]
- (hist) Ensuring Cultural Competence [4,318 bytes]
- (hist) Policy Tools & Resources [4,196 bytes]
- (hist) International Offices [4,192 bytes]
- (hist) Planning a Research Conference [4,181 bytes]
- (hist) Health care Providers and Specialists [4,172 bytes]
- (hist) Functions of Advocacy Organization [4,121 bytes]
- (hist) Consumers and Researchers: Making It Work [4,087 bytes]
- (hist) Getting Your Needs on Government and Legislative Agendas [4,037 bytes]
- (hist) Getting Needs on Government and Legislative Agendas [4,037 bytes]
- (hist) Sharon F. Terry [4,010 bytes]
- (hist) Research Model 2: Chromosomal Disorder [3,906 bytes]
- (hist) Patient's Bill of Rights [3,857 bytes]
- (hist) Autopsies and Tissue Collection [3,830 bytes]