Most linked-to pages
From WikiAdvocacy
Showing below up to 155 results in range #1 to #155.
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- Meet Your Neighbors & Organizations (47 links)
- Social Networking (33 links)
- Donations (32 links)
- Conference Call Services (31 links)
- Getting Grants (31 links)
- Taking Credit Cards on the Web (31 links)
- Recruiting (30 links)
- Maintaining Your Membership (30 links)
- Charity Rating Listings (30 links)
- Events (30 links)
- Harnessing the Resources That Are Hard to Measure (30 links)
- Helping Your Membership Help Your Group (30 links)
- Building a Website (30 links)
- Member Dues (30 links)
- People and Roles (30 links)
- Becoming the Organization You Imagine (30 links)
- How to Obtain Donated Office Space (30 links)
- Publicity and General Media (29 links)
- Health care Providers and Specialists (27 links)
- Maintaining Computer Files (27 links)
- Internet and Web Resources (27 links)
- Using Search Tools to Get Found (27 links)
- Attending Professionals' Annual Meetings (27 links)
- Choosing an Internet Service Provider (26 links)
- Recruiting Celebrities (26 links)
- Media Tips (26 links)
- Funding Research by Others (24 links)
- Getting Needs onto the Research Agenda (24 links)
- Research Models (24 links)
- Facilitating Quality Research (24 links)
- Consumers and Researchers: Making It Work (24 links)
- Benefits of Collaboration with Advocacy Organization Community (23 links)
- Blood and Tissue Banks (23 links)
- Patient's Bill of Rights (23 links)
- Barriers to Rare Disease Research (23 links)
- Genetic Privacy (23 links)
- Research Model 1: Recessive Disorder (22 links)
- Research Model 2: Chromosomal Disorder (22 links)
- Genetic Alliance BioBank (22 links)
- Research Model 3: Dominant Disorder (22 links)
- Educating Membership about Research (19 links)
- Registries (19 links)
- BioBanks (19 links)
- Blogging (19 links)
- Orphan Drug Application (19 links)
- Fundraising (18 links)
- Promoting Research (18 links)
- Information about Rare Genetic Diseases (18 links)
- Support for Individuals and Families (18 links)
- Advocacy Organizations List (17 links)
- Conferences, Workshops, and Meetings for Affected Individuals (17 links)
- Dealing with Death (17 links)
- Emergency Preparedness (17 links)
- Travel (17 links)
- Advocacy Resources (17 links)
- Connecting Individuals (17 links)
- State Registration (17 links)
- Matching Resources (17 links)
- Protecting Member Privacy (17 links)
- Resources for Nonprofits (17 links)
- Assistive Technology (17 links)
- Children's Hopes and Dreams Foundations (17 links)
- Fundraising Appeals (17 links)
- Publications (17 links)
- Autopsies and Tissue Collection (17 links)
- Consumer Medical Information (17 links)
- General Resources (17 links)
- Internet Services (17 links)
- Sibling Support (17 links)
- Phone Services: Going Beyond the Phone Tree (17 links)
- Youth to Adult Transition Issues (16 links)
- Internet Services: Mailing Lists (15 links)
- Internet Services: Websites, Chat Rooms, and Newsgroups (15 links)
- Funding (13 links)
- Setting Up A National Conference (13 links)
- Characterize Condition (12 links)
- Characterize Resources (12 links)
- Volunteers (12 links)
- Determine Goals (12 links)
- Compare Goals and Resources, with the Characteristics of the Condition (12 links)
- Vision (11 links)
- Advisory Boards (11 links)
- Best Practices (11 links)
- Newsletters and Bulletins (11 links)
- Press Kits (11 links)
- Starting Points for Planning Materials (11 links)
- Expertise (11 links)
- Articles, Letters, and Other Media for Lay Publication (11 links)
- Leadership (11 links)
- Brochures and Fact Sheets (11 links)
- Media Access (11 links)
- Clinician- and Researcher-Focused Materials (11 links)
- Mentors (11 links)
- Staff (10 links)
- Tax and Finance (10 links)
- Publisher Recommendations (10 links)
- Working with a Lawyer (10 links)
- Bylaws and Articles (10 links)
- Finding a Lawyer (10 links)
- Your Organization's Name Is Important (9 links)
- Setting up Useful Systems (9 links)
- National Institutes of Health (NIH) (9 links)
- Accepting Donations (9 links)
- State-Specific Issues (9 links)
- Registry and Biobank Weekly Tips (9 links)
- Attaining 501(c)(3) Status (Not-For-Profit Determination) (9 links)
- Audits (9 links)
- Developing a Governance Board (9 links)
- Family Health History (9 links)
- Working Remotely (9 links)
- Financial and Summary Statement (9 links)
- Councils and Other Advisory Bodies (9 links)
- The Power of Advocacy Organizations (8 links)
- How to Use This Guide (8 links)
- Policy Tools & Resources (8 links)
- Defining Our Terms (8 links)
- Getting an ICD-9 code added for your condition (8 links)
- Accountants (8 links)
- Why Go There? (8 links)
- History of Advocacy Organizations and Genetic Alliance (8 links)
- The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates (8 links)
- Help:Contents (7 links)
- Registry and Biobank Ethics and Governance (7 links)
- Biobank Sample Collection (7 links)
- Getting Needs on Government and Legislative Agendas (7 links)
- Biobank and Registry External Relations (7 links)
- Editing Practice (7 links)
- Biobank and Registry Financial Management (7 links)
- Overview of WikiAdvocacy (7 links)
- Start Using WikiAdvocacy (7 links)
- Getting a Biobank or Registry Started (7 links)
- Obtaining and Maintaining Registry Data (7 links)
- Registry Questionnaires (7 links)
- Basic Formatting (6 links)
- Cool Tips (6 links)
- Creating New Pages (6 links)
- Legislation and Policy Advocacy (5 links)
- Considering Starting a Support Group for a Condition that Already Has One? (5 links)
- Promoting Research on a Condition (4 links)
- Educating Your Membership about Research (4 links)
- International Offices (4 links)
- Genetic Alliance (4 links)
- Protecting Message Boards from Spam (4 links)
- WikiAdvocacy:Community Portal (3 links)
- Getting Your Needs on Government and Legislative Agendas (3 links)
- Celebrity Spokesperson (3 links)
- Preparing for and Handling Publicity (3 links)
- Choosing Internet Service Provider (3 links)
- Creating a Natural History Survey (2 links)
- Functions of Advocacy Organization (2 links)
- Planning a Research Conference (2 links)
- Education of Members, Providers, and the Public (2 links)
- Getting Your Community Interested (2 links)
- Scholarships for your participants/families/members (2 links)
- Disease Advocacy Organization (DAO) Manual (2 links)
