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Showing below up to 198 results in range #1 to #198.

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  1. (hist) ‎Donations from Canada/Outside the US ‎[34 bytes]
  2. (hist) ‎Disease Advocacy Organization(DAO) ‎[45 bytes]
  3. (hist) ‎Nonprofit Organization Sample Templates ‎[124 bytes]
  4. (hist) ‎Editing Practice ‎[270 bytes]
  5. (hist) ‎PEER Portal ‎[318 bytes]
  6. (hist) ‎Registry and Biobank Weekly Tips ‎[407 bytes]
  7. (hist) ‎Creating New Pages ‎[499 bytes]
  8. (hist) ‎Internet Services ‎[578 bytes]
  9. (hist) ‎Tax and Finance ‎[589 bytes]
  10. (hist) ‎Research Models ‎[704 bytes]
  11. (hist) ‎Start Using WikiAdvocacy ‎[762 bytes]
  12. (hist) ‎Novel Meeting Formats ‎[769 bytes]
  13. (hist) ‎Legislation and Policy Advocacy ‎[797 bytes]
  14. (hist) ‎Publisher Recommendations ‎[825 bytes]
  15. (hist) ‎Genetic Alliance(GA) SOP ‎[910 bytes]
  16. (hist) ‎Webinars ‎[914 bytes]
  17. (hist) ‎Recruiting ‎[951 bytes]
  18. (hist) ‎Connecting Organizations ‎[977 bytes]
  19. (hist) ‎NAC Best Practices ‎[994 bytes]
  20. (hist) ‎Disease Advocacy Organization(DAO) Manual ‎[1,139 bytes]
  21. (hist) ‎Matching Resources ‎[1,143 bytes]
  22. (hist) ‎Working Full-Time on Nonprofit ‎[1,155 bytes]
  23. (hist) ‎Cool Tips ‎[1,228 bytes]
  24. (hist) ‎Getting Needs onto the Research Agenda ‎[1,328 bytes]
  25. (hist) ‎Family Health History Initiative Guidelines ‎[1,334 bytes]
  26. (hist) ‎State-Specific Issues ‎[1,385 bytes]
  27. (hist) ‎National Awareness Day ‎[1,414 bytes]
  28. (hist) ‎Translational Science ‎[1,420 bytes]
  29. (hist) ‎Characterize Resources ‎[1,426 bytes]
  30. (hist) ‎Vision ‎[1,426 bytes]
  31. (hist) ‎Mentors ‎[1,510 bytes]
  32. (hist) ‎Genetic Privacy ‎[1,511 bytes]
  33. (hist) ‎Maintaining Computer Files ‎[1,520 bytes]
  34. (hist) ‎How to Get Started ‎[1,571 bytes]
  35. (hist) ‎Speaker selection and management ‎[1,626 bytes]
  36. (hist) ‎Getting an ICD-9 code added for your condition ‎[1,633 bytes]
  37. (hist) ‎Financial Assets ‎[1,647 bytes]
  38. (hist) ‎Advocacy Resources ‎[1,701 bytes]
  39. (hist) ‎Press Kits ‎[1,704 bytes]
  40. (hist) ‎Accountants ‎[1,733 bytes]
  41. (hist) ‎Sibling Support ‎[1,870 bytes]
  42. (hist) ‎Charity Rating Listings ‎[1,926 bytes]
  43. (hist) ‎How to Use This Guide ‎[1,981 bytes]
  44. (hist) ‎Compare Goals and Resources, with the Characteristics of the Condition ‎[2,011 bytes]
  45. (hist) ‎Articles, Letters, and Other Media for Lay Publication ‎[2,036 bytes]
  46. (hist) ‎Overview of WikiAdvocacy ‎[2,036 bytes]
  47. (hist) ‎Information about Rare Genetic Diseases ‎[2,058 bytes]
  48. (hist) ‎Challenges of 'Splinter Groups' ‎[2,065 bytes]
  49. (hist) ‎Advocacy ‎[2,107 bytes]
  50. (hist) ‎Genetic Alliance ‎[2,109 bytes]
  51. (hist) ‎Member Dues ‎[2,131 bytes]
  52. (hist) ‎How to: Create a New Wiki Page ‎[2,139 bytes]
  53. (hist) ‎Volunteers ‎[2,155 bytes]
  54. (hist) ‎Medical Records ‎[2,209 bytes]
  55. (hist) ‎Expertise ‎[2,246 bytes]
  56. (hist) ‎Media Access ‎[2,342 bytes]
  57. (hist) ‎Funding ‎[2,363 bytes]
  58. (hist) ‎Accepting Donations ‎[2,365 bytes]
  59. (hist) ‎Conference Call Services ‎[2,449 bytes]
  60. (hist) ‎Best Practices ‎[2,475 bytes]
  61. (hist) ‎How to post a file on WikiAdvocacy ‎[2,509 bytes]
  62. (hist) ‎Meet Your Neighbors & Organizations ‎[2,521 bytes]
  63. (hist) ‎Starting Points for Planning Materials ‎[2,525 bytes]
  64. (hist) ‎Educating Your Membership about Research ‎[2,566 bytes]
  65. (hist) ‎Leadership ‎[2,623 bytes]
  66. (hist) ‎Events ‎[2,659 bytes]
  67. (hist) ‎Councils and Other Advisory Bodies ‎[2,682 bytes]
  68. (hist) ‎BioBanks ‎[2,725 bytes]
  69. (hist) ‎Insurance and Policies ‎[2,750 bytes]
  70. (hist) ‎Becoming the Organization You Imagine ‎[2,830 bytes]
  71. (hist) ‎Working with a Lawyer ‎[2,852 bytes]
  72. (hist) ‎Publications ‎[2,857 bytes]
  73. (hist) ‎Individual Speaker Recommendations ‎[2,879 bytes]
  74. (hist) ‎Protecting Message Boards from Spam ‎[2,925 bytes]
  75. (hist) ‎Blogging ‎[2,944 bytes]
  76. (hist) ‎Protecting Member Privacy ‎[3,056 bytes]
  77. (hist) ‎Resources for Nonprofits ‎[3,067 bytes]
  78. (hist) ‎Drug Development ‎[3,080 bytes]
  79. (hist) ‎Results and Individual Follow-up ‎[3,104 bytes]
  80. (hist) ‎Defining Our Terms ‎[3,108 bytes]
  81. (hist) ‎Advocacy Organizations List ‎[3,135 bytes]
  82. (hist) ‎Travel ‎[3,140 bytes]
  83. (hist) ‎Emergency Preparedness ‎[3,157 bytes]
  84. (hist) ‎The Power of Advocacy Organizations ‎[3,169 bytes]
  85. (hist) ‎Education of Members, Providers, and the Public ‎[3,182 bytes]
  86. (hist) ‎Assistive Technology ‎[3,190 bytes]
  87. (hist) ‎Finding a Lawyer ‎[3,231 bytes]
  88. (hist) ‎Resources for School Success ‎[3,315 bytes]
  89. (hist) ‎Research Model 3: Dominant Disorder ‎[3,405 bytes]
  90. (hist) ‎Developing the Organization That Can Achieve Your Goals ‎[3,483 bytes]
  91. (hist) ‎Recruiting Celebrities ‎[3,489 bytes]
  92. (hist) ‎Celebrity Spokesperson ‎[3,489 bytes]
  93. (hist) ‎How to Obtain Donated Office Space ‎[3,508 bytes]
  94. (hist) ‎Children's Hopes and Dreams Foundations ‎[3,538 bytes]
  95. (hist) ‎State Registration ‎[3,604 bytes]
  96. (hist) ‎Choosing an Internet Service Provider ‎[3,618 bytes]
  97. (hist) ‎Choosing Internet Service Provider ‎[3,618 bytes]
  98. (hist) ‎Preparing for and Handling Publicity ‎[3,697 bytes]
  99. (hist) ‎Autopsies and Tissue Collection ‎[3,830 bytes]
  100. (hist) ‎Patient's Bill of Rights ‎[3,857 bytes]
  101. (hist) ‎Research Model 2: Chromosomal Disorder ‎[3,906 bytes]
  102. (hist) ‎Sharon F. Terry ‎[4,010 bytes]
  103. (hist) ‎Getting Needs on Government and Legislative Agendas ‎[4,037 bytes]
  104. (hist) ‎Getting Your Needs on Government and Legislative Agendas ‎[4,037 bytes]
  105. (hist) ‎Consumers and Researchers: Making It Work ‎[4,087 bytes]
  106. (hist) ‎Functions of Advocacy Organization ‎[4,121 bytes]
  107. (hist) ‎Health care Providers and Specialists ‎[4,172 bytes]
  108. (hist) ‎Planning a Research Conference ‎[4,181 bytes]
  109. (hist) ‎International Offices ‎[4,192 bytes]
  110. (hist) ‎Policy Tools & Resources ‎[4,196 bytes]
  111. (hist) ‎Ensuring Cultural Competence ‎[4,318 bytes]
  112. (hist) ‎General Resources ‎[4,326 bytes]
  113. (hist) ‎Overview ‎[4,440 bytes]
  114. (hist) ‎Attaining 501(c)(3) Status (Not-For-Profit Determination) ‎[4,508 bytes]
  115. (hist) ‎Harnessing the Resources That Are Hard to Measure ‎[4,529 bytes]
  116. (hist) ‎Considering Starting a Support Group for a Condition that Already Has One? ‎[4,582 bytes]
  117. (hist) ‎Informal Offices or Regional Support Groups ‎[4,648 bytes]
  118. (hist) ‎Basic Formatting ‎[4,649 bytes]
  119. (hist) ‎Promoting Research ‎[4,746 bytes]
  120. (hist) ‎Promoting Research on a Condition ‎[4,746 bytes]
  121. (hist) ‎Research Model 1: Recessive Disorder ‎[4,746 bytes]
  122. (hist) ‎Available Resources ‎[4,764 bytes]
  123. (hist) ‎Financial and Summary Statement ‎[4,768 bytes]
  124. (hist) ‎Registry Questionnaires ‎[4,781 bytes]
  125. (hist) ‎Consumer Medical Information ‎[4,855 bytes]
  126. (hist) ‎Fundraising Appeals ‎[4,886 bytes]
  127. (hist) ‎Bylaws and Articles ‎[4,913 bytes]
  128. (hist) ‎Characterize Condition ‎[4,930 bytes]
  129. (hist) ‎Family Health History ‎[5,037 bytes]
  130. (hist) ‎Using Search Tools to Get Found ‎[5,107 bytes]
  131. (hist) ‎Biobank and Registry Financial Management ‎[5,345 bytes]
  132. (hist) ‎Funding Research by Others ‎[5,346 bytes]
  133. (hist) ‎Audits ‎[5,357 bytes]
  134. (hist) ‎Benefits of Collaboration with Advocacy Organization Community ‎[5,412 bytes]
  135. (hist) ‎Phone Services: Going Beyond the Phone Tree ‎[5,421 bytes]
  136. (hist) ‎Determine Goals ‎[5,465 bytes]
  137. (hist) ‎Educating Membership about Research ‎[5,603 bytes]
  138. (hist) ‎Media Tips ‎[5,649 bytes]
  139. (hist) ‎Taking Credit Cards on the Web ‎[5,712 bytes]
  140. (hist) ‎Clinician- and Researcher-Focused Materials ‎[5,815 bytes]
  141. (hist) ‎Internet Services: Websites, Chat Rooms, and Newsgroups ‎[5,825 bytes]
  142. (hist) ‎Registries ‎[5,887 bytes]
  143. (hist) ‎Facilitating Quality Research ‎[5,928 bytes]
  144. (hist) ‎Working Remotely ‎[6,180 bytes]
  145. (hist) ‎FARA Q & A ‎[6,256 bytes]
  146. (hist) ‎FARA Patient Registry Q & A ‎[6,256 bytes]
  147. (hist) ‎Volunteer - Peer Coaches ‎[6,267 bytes]
  148. (hist) ‎Intended Goal ‎[6,277 bytes]
  149. (hist) ‎Internet and Web Resources ‎[6,400 bytes]
  150. (hist) ‎Genetic Alliance BioBank ‎[6,467 bytes]
  151. (hist) ‎The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates ‎[6,564 bytes]
  152. (hist) ‎Brochures and Fact Sheets ‎[6,675 bytes]
  153. (hist) ‎Connecting Individuals ‎[6,700 bytes]
  154. (hist) ‎Creating a Natural History Survey ‎[6,736 bytes]
  155. (hist) ‎People and Roles ‎[6,832 bytes]
  156. (hist) ‎History of Advocacy Organizations and Genetic Alliance ‎[6,988 bytes]
  157. (hist) ‎Staff ‎[7,011 bytes]
  158. (hist) ‎Additional/Supplemental Resources ‎[7,565 bytes]
  159. (hist) ‎Obtaining and Maintaining Registry Data ‎[7,643 bytes]
  160. (hist) ‎Dealing with Death ‎[7,750 bytes]
  161. (hist) ‎Childcare ‎[7,770 bytes]
  162. (hist) ‎Accessibility of Tools ‎[7,861 bytes]
  163. (hist) ‎Barriers to Rare Disease Research ‎[7,893 bytes]
  164. (hist) ‎Getting Your Community Interested ‎[7,917 bytes]
  165. (hist) ‎Scholarships for your participants/families/members ‎[7,955 bytes]
  166. (hist) ‎Main Page ‎[7,994 bytes]
  167. (hist) ‎Advisory Boards ‎[8,014 bytes]
  168. (hist) ‎National Institutes of Health (NIH) ‎[8,098 bytes]
  169. (hist) ‎Knowing Your Community ‎[8,241 bytes]
  170. (hist) ‎Internet Services: Listserv Guidelines Netiquitte Help ‎[8,455 bytes]
  171. (hist) ‎Why Go There? ‎[8,509 bytes]
  172. (hist) ‎Setting up Useful Systems ‎[8,513 bytes]
  173. (hist) ‎Maintaining Your Membership ‎[8,722 bytes]
  174. (hist) ‎Helping Your Membership Help Your Group ‎[9,032 bytes]
  175. (hist) ‎Blood and Tissue Banks ‎[9,047 bytes]
  176. (hist) ‎Support for Individuals and Families ‎[9,531 bytes]
  177. (hist) ‎Registry and Biobank Ethics and Governance ‎[9,561 bytes]
  178. (hist) ‎Biobank Sample Collection ‎[9,900 bytes]
  179. (hist) ‎Youth to Adult Transition Issues ‎[10,417 bytes]
  180. (hist) ‎Developing a Governance Board ‎[11,311 bytes]
  181. (hist) ‎Getting Grants ‎[11,513 bytes]
  182. (hist) ‎Attending Professionals' Annual Meetings ‎[12,221 bytes]
  183. (hist) ‎Newsletters and Bulletins ‎[12,571 bytes]
  184. (hist) ‎Orphan Drug Application ‎[12,595 bytes]
  185. (hist) ‎Getting a Biobank or Registry Started ‎[13,141 bytes]
  186. (hist) ‎Internet Services: Mailing Lists ‎[14,973 bytes]
  187. (hist) ‎Setting Up A National Conference ‎[16,521 bytes]
  188. (hist) ‎Fundraising ‎[17,132 bytes]
  189. (hist) ‎Your Organization's Name Is Important ‎[17,490 bytes]
  190. (hist) ‎Biobank and Registry External Relations ‎[19,047 bytes]
  191. (hist) ‎Building a Website ‎[19,848 bytes]
  192. (hist) ‎Joint Fundraising ‎[21,129 bytes]
  193. (hist) ‎Publicity and General Media ‎[21,298 bytes]
  194. (hist) ‎Fundraising/Third Party ‎[31,913 bytes]
  195. (hist) ‎Conferences, Workshops, and Meetings for Affected Individuals ‎[32,109 bytes]
  196. (hist) ‎Social Networking ‎[35,241 bytes]
  197. (hist) ‎Donations ‎[37,624 bytes]
  198. (hist) ‎Disease Advocacy Organization (DAO) Manual ‎[55,559 bytes]

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