Pages without language links

Showing below up to 100 results in range #1 to #100.

View (previous 100 | next 100) (20 | 50 | 100 | 250 | 500)

1. Accepting Donations
2. Accessibility of Tools
3. Accountants
4. Additional/Supplemental Resources
5. Advisory Boards
6. Advocacy
7. Advocacy Organizations List
8. Advocacy Resources
9. Articles, Letters, and Other Media for Lay Publication
10. Assistive Technology
11. Attaining 501(c)(3) Status (Not-For-Profit Determination)
12. Attending Professionals' Annual Meetings
13. Audits
14. Autopsies and Tissue Collection
15. Available Resources
16. Barriers to Rare Disease Research
17. Basic Formatting
18. Becoming the Organization You Imagine
19. Benefits of Collaboration with Advocacy Organization Community
20. Best Practices
21. BioBanks
22. Biobank Sample Collection
23. Biobank and Registry External Relations
24. Biobank and Registry Financial Management
25. Blogging
26. Blood and Tissue Banks
27. Brochures and Fact Sheets
28. Building a Website
29. Bylaws and Articles
30. Celebrity Spokesperson
31. Challenges of 'Splinter Groups'
32. Characterize Condition
33. Characterize Resources
34. Charity Rating Listings
35. Childcare
36. Children's Hopes and Dreams Foundations
37. Choosing Internet Service Provider
38. Choosing an Internet Service Provider
39. Clinician- and Researcher-Focused Materials
40. Compare Goals and Resources, with the Characteristics of the Condition
41. Conference Call Services
42. Conferences, Workshops, and Meetings for Affected Individuals
43. Connecting Individuals
44. Connecting Organizations
45. Considering Starting a Support Group for a Condition that Already Has One?
46. Consumer Medical Information
47. Consumers and Researchers: Making It Work
48. Cool Tips
49. Councils and Other Advisory Bodies
50. Creating New Pages
51. Creating a Natural History Survey
52. Dealing with Death
53. Defining Our Terms
54. Determine Goals
55. Developing a Governance Board
56. Developing the Organization That Can Achieve Your Goals
57. Disease Advocacy Organization(DAO)
58. Disease Advocacy Organization(DAO) Manual
59. Disease Advocacy Organization (DAO) Manual
60. Donations
61. Donations from Canada/Outside the US
62. Drug Development
63. Editing Practice
64. Educating Membership about Research
65. Educating Your Membership about Research
66. Education of Members, Providers, and the Public
67. Emergency Preparedness
68. Ensuring Cultural Competence
69. Events
70. Expertise
71. FARA Patient Registry Q & A
72. FARA Q & A
73. Facilitating Quality Research
74. Family Health History
75. Family Health History Initiative Guidelines
76. Financial Assets
77. Financial and Summary Statement
78. Finding a Lawyer
79. Functions of Advocacy Organization
80. Funding
81. Funding Research by Others
82. Fundraising
83. Fundraising/Third Party
84. Fundraising Appeals
85. General Resources
86. Genetic Alliance
87. Genetic Alliance(GA) SOP
88. Genetic Alliance BioBank
89. Genetic Privacy
90. Getting Grants
91. Getting Needs on Government and Legislative Agendas
92. Getting Needs onto the Research Agenda
93. Getting Your Community Interested
94. Getting Your Needs on Government and Legislative Agendas
95. Getting a Biobank or Registry Started
96. Getting an ICD-9 code added for your condition
97. Harnessing the Resources That Are Hard to Measure
98. Health care Providers and Specialists
99. Helping Your Membership Help Your Group
100. History of Advocacy Organizations and Genetic Alliance

View (previous 100 | next 100) (20 | 50 | 100 | 250 | 500)