Search results

Consumers and Researchers: Making It Work
diagnosed with Alpha-1 (alpha-1 antitrypsin deficiency) in the spring of 1993 at the age of 40. She is presently the President of the Alpha-1 Association Board

4 KB (628 words) - 16:27, 26 February 2014
Research Model 1: Recessive Disorder
Application Patient's Bill of Rights Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3:

5 KB (752 words) - 16:59, 26 February 2014
Research Models
Research models are discussed in this section. Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant Disorder

704 bytes (73 words) - 16:18, 26 February 2014
Funding Research by Others
use the NIH scale of 1.0 to 5.0 (for example, 2.4), with 1.0 indicating the highest level of enthusiasm for funding. Scores of 1.0 - 3.0 are consistent

5 KB (716 words) - 16:28, 26 February 2014
How to Obtain Donated Office Space
vacation home for 1 week. At the auction, the church received and accepted a bid from Lauren Green equal to the fair rental value of the home for 1 week. Mandy

3 KB (526 words) - 15:48, 26 February 2014
Travel
transportation network. c/o Mercy Medical Airlift 4620 Haygood Road, Suite 1 Virginia Beach, VA 23455 Telephone: 800.296.1217 Email: mercymedical@erols

3 KB (362 words) - 15:28, 26 February 2014
Genetic Privacy
Bill of Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3:

1 KB (171 words) - 16:29, 26 February 2014
Genetic Alliance BioBank
BioBank is developing these functions in two phases. Phase I included functions 1 through 3. Phase II involves functions 4 through 6. The 7th function is ongoing

6 KB (866 words) - 06:25, 15 September 2021
Children's Hopes and Dreams Foundations
888.918.9004 Make-A-Wish Foundation of America Grants wishes to children (2 1/2–18 years) who have terminal and life-threatening conditions. 3550 North Central

3 KB (450 words) - 18:01, 5 March 2014
Donations
(University of) Penn Medicine's Orphan Disease Center. We're fundraising, they're 1:1 matching, and doing the logistics to grant funds to a researcher, for research

37 KB (6,142 words) - 14:42, 22 June 2018
Registries
guide will help you in your registry and repository planning. Area of Focus 1. Will your registry or repository focus on a specific condition? Yes No If

6 KB (827 words) - 13:50, 8 October 2020
Determine Goals (section Goals Model 1: Starting with a Manageable Goal)
What do you want to do, learn, and share? This can be as profound as saving your child from chronic illness, disability or death or as crucial as revitalizing

5 KB (807 words) - 14:55, 26 February 2014
Getting Needs onto the Research Agenda
Bill of Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3:

1 KB (156 words) - 16:29, 26 February 2014
Basic Formatting (section Level 1)
example.org] [http://www.example.org display text] http://www.example.org [1] display text http://www.example.org Sign your posts on talk pages ~~~~ Your

5 KB (97 words) - 17:00, 26 February 2014
Accepting Donations
org/ws_display.asp?filter=donate and http://www.pxe.org/English/FormDonation.asp?x=1. Before you install such a form, you will need to ensure that your website

2 KB (347 words) - 18:02, 26 February 2014
Helping Your Membership Help Your Group
officers. I think the membership question boils down to two items/questions: 1) Do you need the membership dues to sustain your organization? (A financial

9 KB (1,407 words) - 20:15, 23 February 2015
Research Model 3: Dominant Disorder
Bill of Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder

3 KB (460 words) - 17:00, 26 February 2014
Financial and Summary Statement
general). The following are some recommendations for how to go about this: 1. Create a timesheet that makes it easy. The timesheet itself will be a mess

5 KB (698 words) - 18:53, 19 March 2015
Orphan Drug Application
following tips for preparing the application: Number the items on the application, 1-9. Particular emphasis is placed on items 4 and 8. In Item 8, be sure not to

12 KB (1,915 words) - 16:30, 26 February 2014
Promoting Research
Application Patient's Bill of Rights Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3:

5 KB (752 words) - 16:29, 26 February 2014