Search results

Developing the Organization That Can Achieve Your Goals (section Resources for Development)
financial resources, and intangibles unique to the organization. The quality and quantity of these resources fuel the organization. Functions: For most advocacy

3 KB (452 words) - 14:57, 26 February 2014
Main Page
Organization Development: Resources for Development

8 KB (60 words) - 17:06, 3 August 2018
Becoming the Organization You Imagine
For a small organization, development can be a very daunting topic, probably because of all the baggage that money carries with it, sometimes, as individuals

3 KB (422 words) - 15:24, 26 February 2014
Harnessing the Resources That Are Hard to Measure
Energy, vision, passion, and enthusiasm are resources that your members can bring your efforts, resources that can multiply in a group of individuals with

4 KB (699 words) - 15:46, 26 February 2014
Advocacy Resources
Appeals General Resources Information about Rare Genetic Diseases Matching Resources Meet Your Neighbors & Organizations Publications Resources for Nonprofits

2 KB (199 words) - 16:08, 26 February 2014
Available Resources (section Is funding available for printing?)
check out health books, for example. The people and organizations that you interact with daily may be great resources in the development of these tools. When

5 KB (686 words) - 17:19, 26 February 2014
Taking Credit Cards on the Web
Terminal Taking cards on the Web directly involves more development at your website. Some web development companies, such as https://www.webtrix.com/, can help

6 KB (856 words) - 20:12, 30 July 2018
Resources for Nonprofits
TechSoup Shop for non-profit technology needs, this site offers information, resources, and support. Advocacy Organizations List Advocacy Resources Assistive

3 KB (366 words) - 17:46, 5 March 2014
Publications
Appeals General Resources Information about Rare Genetic Diseases Matching Resources Meet Your Neighbors & Organizations Resources for Nonprofits Sibling

3 KB (334 words) - 17:47, 5 March 2014
General Resources
Information about Rare Genetic Diseases Matching Resources Meet Your Neighbors & Organizations Publications Resources for Nonprofits Sibling Support State Registration

4 KB (530 words) - 17:49, 5 March 2014
Orphan Drug Application (section Suggestions for Preparing the Application)
cases, be unable to recover the drug development costs through sales alone. The group of conditions lacking therapies for this reason is collectively known

12 KB (1,915 words) - 16:30, 26 February 2014
Best Practices
Practices for Transition and Adulthood National Down Syndrome Society: Best Practices for Therapies and Development National Association for Down Syndrome:

2 KB (175 words) - 17:42, 22 June 2018
Advisory Boards (section Additional Resources)
guidelines for professionals who participate in genetic advocacy organizations: Provide background material and expertise to assist in policy development Advise

8 KB (1,035 words) - 19:10, 20 June 2018
Research Model 3: Dominant Disorder
translation from bench to bedside Funds provided for travel to semi-annual CWW meetings and for travel between labs for collaborations Multi-year grant awards to

3 KB (460 words) - 17:00, 26 February 2014
Genetic Alliance BioBank
state-of-the-art, web-based informatics core, which is suitable for both research and product development [FDA compliant] studies. The centralized management and

6 KB (866 words) - 06:25, 15 September 2021
Youth to Adult Transition Issues (section Resources Created for Youth by Youth)
preparing for college, it is never too late (or too early) to start looking for funds. “Where do I start?” you may wonder. There are many resources available

10 KB (1,306 words) - 15:49, 1 August 2018
Getting an ICD-9 code added for your condition
very difficult for researchers studying the disorder/disease to accurately track or identify patients for epidemiology studies, development of new treatments

2 KB (262 words) - 16:14, 26 February 2014
Policy Tools & Resources (section Policy Tools & Resources)
Resource Repository. Learn from Karen Hendricks, Director of Policy Development at the Trust for America's Health, who teaches Genetics Day on the Hill participants

4 KB (539 words) - 16:09, 26 February 2014
Building a Website (section Evaluating Resources)
to build intricate sites for them, in order to provide sophisticated services like message boards and databases of resources for disorders. Hiring a web

19 KB (3,145 words) - 18:55, 30 July 2018
The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates
the subject citing the fact that "it wasn't written for lay people." This became the catalyst for our founding Klinefelter Syndrome and Associates. Your

6 KB (1,109 words) - 14:54, 26 February 2014