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other conditions and wish to be tested themselves. They may also be fearful about participation, concerned that genetic testing might cause them to be denied

accomplish—be visionary! Consider a cure, treatment, clinical trials, diagnostic tests, support for affected individuals, basic research, clinical research, funding

(NIH) designed to help bridge the gap between discovery research and the testing of new drugs in humans. The TRND program partners with a variety of institutions

of approved orphan drugs A 50% tax credit for the costs associated with testing the drug in humans Food and Drug Administration (FDA) assistance in developing

broaden your idea of research. Research is not just people in white coats and test tubes. Sometimes research is finding answers to simple questions. These questions

accordingly. (Download a PDF form to help with this activity File:Worksheet1.pdf) Age of Onset: Early to Late Systems Involvement: One to Many Intensity:

Train people who will be collecting and entering data into the registry (use test cases) Create a process for data entry Schedule and produce reports Ensure

other conditions and wish to be tested themselves. They may also be fearful about participation, concerned that genetic testing might cause them to be denied

Katherine Survey testing and more general testing from DAO and selected members of their community. The testing should focus on: (1) Survey errors (typos

II Testing. After you have completed Phase I Testing and all errors have been resolved, you are ready to move to Phase II Testing. Phase II Testing will