View source for Information about Rare Genetic Diseases

;[http://www.geneticalliance.org/ Genetic Alliance]
:The Disease InfoSearch section is especially resourceful. 
:4301 Connecticut Avenue, NW
:Suite 404
:Washington, DC  20008
:Phone: 202.966.5557 or 800.336.GENE
:Fax: 202.966.8553
:Email: info@geneticalliance.org

;[http://www.genome.gov/10000409/ Genetic and Rare Disease Information Center]
:Established by the National Human Genome Research Institute, this center provides information to patients, health care professionals, and researchers. They answer requests in both Spanish and English.
:P.O. Box 8126
:Gaithersburg, MD 20898-8126
:Phone: 888.205.2311
:TTY: 888.205.3223
:Fax: 240.632.9164
:Email: gardinfo@nih.gov

;[http://rarediseases.info.nih.gov/ National Institutes of Health (NIH) Office of Rare Diseases]
:Includes a list of patient travel and lodging options, as well as links to current genetic news, clinical resources, recent research and scientific programs, and advocacy organizations.

;[http://www.rarediseases.org/ National Organization for Rare Disorders (NORD)]
:55 Kenosia Avenue
:PO Box 1968
:Danbury, CT  06813-1968 
:Phone: 203.744.0100
:Toll-free: 800.999.6673 (voicemail only)
:TDD: 203.797.9590
:Fax: 203.798.2291
:Email: orphan@rarediseases.org

;[http://www.kumc.edu/gec/ The University of Kansas]
:Hosts a comprehensive genetics resource site, which is updated regularly with clinical, research, and educational links.

;[http://www.madisonsfoundation.org/index.php/component/option,com_mpower/Itemid,49/ Madison's Foundation]
:Rare pediatric disease database updated by UCLA medical professionals

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