Difference between revisions of "Disease Advocacy Organization(DAO) Manual"

Latest revision as of 16:00, 16 December 2014

The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal

DAO-Flowchart

Initial Consultation with Genetic Alliance

Expectations

PEER Portal Overview

Timeline

To be updated...

Pre-Outreach Efforts

To be updated...

PEER Portal Design Decisions

To be updated...

Portal Content & User Interface(UI)

To be updated...

Video & Guides Development

To be updated...

Survey Questions & Development

To be updated...

Survey Question Formatting

To be updated...

Using the PEER Questions Manager

To be updated...

Editing Current Surveys

To be updated...

Setting Up User Support Team

To be updated...

IRB Approval

To be updated...

Selected Audience Testing

To be updated...

Launch

To be updated...

Organizational Full Outreach and Community Engagement

To be updated...

Research & Data

To be updated...

Additional Surveys & Updates

To be updated...

Customer Support

To be updated...

@@ Line 1: / Line 1: @@
-==Obtaining Donations==
+The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal
+[[File:dao-manual.png|200px|thumb|400px|right|DAO-Flowchart]]
+==Initial Consultation with Genetic Alliance==
+===Expectations===
-==International Donations==
+===PEER Portal Overview===
-Many organizations are looking for ways to function and get donations internationally. This becomes especially important for rare conditions; the international support is quite necessary with a small population of affected individuals. Arrangements of this nature are a difficult issue, due to differing donation and tax exemption regulations.
+===Timeline===
-The criteria for donations and taxes varies widely among countries. There are individual standards, though there is usually the expectation of a physical presence and offering resources and supports to residents in that country of agreement. Getting status as a charity in the country of operation might also be required. Here are some questions and plans to consider:
+To be updated...
+==Pre-Outreach Efforts==
+To be updated...
+==PEER Portal Design Decisions==
+To be updated...
+===Portal Content & User Interface(UI)===
+To be updated...
+===Video & Guides Development===
+To be updated...
+==Survey Questions & Development==
+To be updated...
+===Survey Question Formatting===
+To be updated...
+===Using the PEER Questions Manager===
+To be updated...
+===Editing Current Surveys===
+To be updated...
+===Setting Up User Support Team===
+To be updated...
+==IRB Approval==
+To be updated...
+==Selected Audience Testing==
+To be updated...
+==Launch==
+To be updated...
+==Organizational Full Outreach and Community Engagement==
+To be updated...
+==Research & Data==
+To be updated...
+==Additional Surveys & Updates==
+To be updated...
+==Customer Support==
+To be updated...