Difference between revisions of "Overview"
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The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in a chronological manner. | The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in a chronological manner. | ||
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DAO - Disease Advocacy Organization | DAO - Disease Advocacy Organization | ||
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==Private Access Portal Setup (PA)== | ==Private Access Portal Setup (PA)== | ||
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===Plan and Set Goals and Objectives=== | ===Plan and Set Goals and Objectives=== | ||
| − | + | '''Katherine''' | |
===GA expectations/ DAO checklist=== | ===GA expectations/ DAO checklist=== | ||
| − | + | '''Katherine | |
| + | ''' | ||
====(1) Survey questions development (DAO)==== | ====(1) Survey questions development (DAO)==== | ||
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| + | '''Wayne | ||
| + | ''' | ||
DAO will have access to the new PEER to input and/or write their survey questions right into the PEER before IRB approval and export a copy to sent to IRB for instance. | DAO will have access to the new PEER to input and/or write their survey questions right into the PEER before IRB approval and export a copy to sent to IRB for instance. | ||
| − | =====IRB Approval (DAO) | + | =====IRB Approval (DAO)===== |
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| + | '''Erika | ||
| + | ''' | ||
DAO can start writing and editing their final version of their survey questions into the new PEER. | DAO can start writing and editing their final version of their survey questions into the new PEER. | ||
====(2) Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)==== | ====(2) Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)==== | ||
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| + | '''Tanya''' | ||
DAO are given access to their Portal so they can start inputting their Guides, Videos, setting their privacy settings. They will also be able to input their survey questions into the system if needed. | DAO are given access to their Portal so they can start inputting their Guides, Videos, setting their privacy settings. They will also be able to input their survey questions into the system if needed. | ||
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====(3) Pre-Outreach (DAO)==== | ====(3) Pre-Outreach (DAO)==== | ||
| − | + | '''Katherine''' | |
==GA/DAO Follow-up Meeting== | ==GA/DAO Follow-up Meeting== | ||
===Portal ready, Survey polishing & Development Phase=== | ===Portal ready, Survey polishing & Development Phase=== | ||
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| + | '''Wayne''' | ||
(1) At this point, DAO should be ready or come with their 'Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos' completed. | (1) At this point, DAO should be ready or come with their 'Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos' completed. | ||
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===Set up Customer Support (DAO)=== | ===Set up Customer Support (DAO)=== | ||
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| + | '''Tanya''' | ||
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[This step can come before the follow-up meeting and be introduced in the initial meeting] | [This step can come before the follow-up meeting and be introduced in the initial meeting] | ||
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'''''Assign Customer Support Team (DAO)''''' | '''''Assign Customer Support Team (DAO)''''' | ||
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| + | '''Tanya''' | ||
DAO assign a team within their organization to be in charge of helping survey takers whenever they encounter mid-level survey problems. A few examples are problems with logging in, creating an account, setting a suitable password or challenge questions. | DAO assign a team within their organization to be in charge of helping survey takers whenever they encounter mid-level survey problems. A few examples are problems with logging in, creating an account, setting a suitable password or challenge questions. | ||
===Overall Portal/Survey Check (GA)=== | ===Overall Portal/Survey Check (GA)=== | ||
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| + | '''Wayne''' | ||
GA obtain DAO Portal Badge and give it DAO, the final piece the latter would need along with their Live/Demo Portal Code which are all entered into their appropriate DAO secure URL. | GA obtain DAO Portal Badge and give it DAO, the final piece the latter would need along with their Live/Demo Portal Code which are all entered into their appropriate DAO secure URL. | ||
| + | ===External Testing (DAO)=== | ||
| − | + | '''Katherine''''' | |
Survey testing and more general testing from DAO and selected members of their community. | Survey testing and more general testing from DAO and selected members of their community. | ||
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===Internal Testing? (GA)=== | ===Internal Testing? (GA)=== | ||
| − | + | '''Delete?''' | |
===Final Check (GA)=== | ===Final Check (GA)=== | ||
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| + | '''Wayne''' | ||
Overview of all components, and brief review. | Overview of all components, and brief review. | ||
| + | ===Main Outreach (DAO)=== | ||
| − | + | '''Katherine - move Renee content. Rename?''' | |
Main outreach before survey launch. | Main outreach before survey launch. | ||
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==Launch== | ==Launch== | ||
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===Research and Data Analysis (DAO, GA?)=== | ===Research and Data Analysis (DAO, GA?)=== | ||
| − | ==== | + | ====REDCap==== |
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| + | '''Is this changing?''' | ||
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====Mixpanel==== | ====Mixpanel==== | ||
| − | + | ||
| + | '''Katherine''' | ||
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====i2b2==== | ====i2b2==== | ||
Ditto | Ditto | ||
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===Customer Support (DAO)=== | ===Customer Support (DAO)=== | ||
| − | + | '''Wayne will start''' | |
===Technical Support (GA, PA)=== | ===Technical Support (GA, PA)=== | ||
| + | |||
| + | '''Wayne will start''' | ||
Technical difficulties that cannot be resolved by DAO. Refer to SOP Question type Difficulty/Importance scale list. | Technical difficulties that cannot be resolved by DAO. Refer to SOP Question type Difficulty/Importance scale list. | ||
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===Ongoing Outreach (DAO)=== | ===Ongoing Outreach (DAO)=== | ||
| − | + | '''Erika - move Renee content''' | |
==Additional Follow-up Surveys [Optional] (DAO)== | ==Additional Follow-up Surveys [Optional] (DAO)== | ||
Latest revision as of 18:35, 23 January 2015
This is an unfinished page. Please check back later.
The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in a chronological manner.
Key:
GA - Genetic Alliance
PA - Private Access
DAO - Disease Advocacy Organization
Private Access Portal Setup (PA)
Ditto
Initial Consultation Meeting (GA & DAO)
Plan and Set Goals and Objectives
Katherine
GA expectations/ DAO checklist
Katherine
(1) Survey questions development (DAO)
Wayne
DAO will have access to the new PEER to input and/or write their survey questions right into the PEER before IRB approval and export a copy to sent to IRB for instance.
IRB Approval (DAO)
Erika
DAO can start writing and editing their final version of their survey questions into the new PEER.
(2) Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)
Tanya
DAO are given access to their Portal so they can start inputting their Guides, Videos, setting their privacy settings. They will also be able to input their survey questions into the system if needed.
DAO need to set-up two secure URLs for their Portals (Demo and Live Portals).
(3) Pre-Outreach (DAO)
Katherine
GA/DAO Follow-up Meeting
Portal ready, Survey polishing & Development Phase
Wayne
(1) At this point, DAO should be ready or come with their 'Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos' completed.
(2) DAO will then work with GA if they have any questions or encounter any difficulties inputting their survey questions into the new PEER.
Set up Customer Support (DAO)
Tanya
[This step can come before the follow-up meeting and be introduced in the initial meeting]
DAO are given a SOP for Customer Support (which could be in the original SOP/Manual they are given at the initial meeting) containing instructions on errors encountered in the survey after the launch. Problem types are given a Difficulty/Importance scale and are dealt accordingly. In general, from low to high difficulty, the group to address the survey problems is as follows: DAO < GA < PA
Assign Customer Support Team (DAO)
Tanya
DAO assign a team within their organization to be in charge of helping survey takers whenever they encounter mid-level survey problems. A few examples are problems with logging in, creating an account, setting a suitable password or challenge questions.
Overall Portal/Survey Check (GA)
Wayne
GA obtain DAO Portal Badge and give it DAO, the final piece the latter would need along with their Live/Demo Portal Code which are all entered into their appropriate DAO secure URL.
External Testing (DAO)
Katherine
Survey testing and more general testing from DAO and selected members of their community.
The testing should focus on:
(1) Survey errors (typos, branching, unexpected behaviors, technical difficulties).
(2) Content (Phrasing, message, tone, survey choice, qualitative and quantitative aspects).
Fix errors (refer to their SOP Question type Difficulty/Importance scale list)
Internal Testing? (GA)
Delete?
Final Check (GA)
Wayne
Overview of all components, and brief review.
Main Outreach (DAO)
Katherine - move Renee content. Rename?
Main outreach before survey launch.
Launch
Research and Data Analysis (DAO, GA?)
REDCap
Is this changing?
Mixpanel
Katherine
i2b2
Ditto
Customer Support (DAO)
Wayne will start
Technical Support (GA, PA)
Wayne will start
Technical difficulties that cannot be resolved by DAO. Refer to SOP Question type Difficulty/Importance scale list.
Future Updates (GA/PA)
(1)PEER CDE updates
(2)'Denovo' PEER technology features
DAO are automatically alerted.
Ongoing Outreach (DAO)
Erika - move Renee content
Additional Follow-up Surveys [Optional] (DAO)
Longitudinal (DAO)
Ditto
Additional Surveys [new] (DAO)
Ditto
Update to Existing Survey Questions (DAO)
GA Fee. Cost estimation/model.
