Overview
The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in a chronological manner.
Key: GA - Genetic Alliance, PA - Private Access, DAO - Disease Advocacy Organization
Grant Proposals (GA)
To be updated...
Private Access Portal Setup (PA)
Ditto
Initial Consultation Meeting (GA & DAO)
Ditto
Plan and Set Goals and Objectives
Ditto
GA expectations/ DAO checklist
Ditto
Survey questions development (DAO)
DAO will have access to the new PEER to input and/or write their survey questions right into the PEER before IRB approval and export a copy to sent to IRB for instance.
IRB Approval (DAO)
DAO can start writing and editing their final version of their survey questions into the new PEER.
Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)
DAO are given access to their Portal so they can start inputting their Guides, Videos, setting their privacy settings. They will also be able to input their survey questions into the system if needed.
Pre-Outreach (DAO)
Ditto
GA/DAO Follow-up Meeting
(1) At this point, DAO should be ready or come with their 'Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos' completed.
(2) DAO will then work with GA if they have any questions or encounter any difficulties inputting their survey questions into the new PEER.
