- 16:15, 26 February 2014 diff hist +1,420 N Translational Science Created page with "==Definition== Translational science is scientific research that aims to develop practical material to help people. The term is used mostly used in the health sciences for met..." current
- 16:15, 26 February 2014 diff hist +2,682 N Councils and Other Advisory Bodies Created page with "==Councils and Other Advisory Bodies== Agencies and other associations often have opportunities for members of the public or for health advocates to participate in committees ..." current
- 16:14, 26 February 2014 diff hist +12,001 N Setting Up A National Conference Created page with "National conferences are a great way to engage with people from all different areas who share a common interest. Many advocacy organizations hold annual national conferences a..."
- 16:14, 26 February 2014 diff hist +1,633 N Getting an ICD-9 code added for your condition Created page with "'''Why the organization is requesting a code'''--usually because there isn't a specific code and this makes it very difficult for researchers studying the disorder/disease to ..." current
- 16:14, 26 February 2014 diff hist +4,037 N Getting Needs on Government and Legislative Agendas Created page with "==Alliances and Coalitions== Alliances and coalitions can bring many benefits back to your organization. They can offer visibility, yield networking opportunities, and creat..." current
- 16:13, 26 February 2014 diff hist +3,468 N Resources for School Success Created page with "School can be overwhelming for anyone, but with a little extra planning, fears can be eased for children with special healthcare needs and genetic conditions. Check out some o..."
- 16:13, 26 February 2014 diff hist +4,648 N Informal Offices or Regional Support Groups Created page with "==Examples of Suggestions for Local/Regional Offices and Support Groups:== ===PXE International, Inc.=== PXE International, Inc.'s mission is two fold: to support patients and..." current
- 16:12, 26 February 2014 diff hist +3,056 N Protecting Member Privacy Created page with "Your work with individuals and families whose lives have been touched by genetic conditions naturally will lead you into situations you may not anticipate. For example, you m..." current
- 16:11, 26 February 2014 diff hist +5,421 N Phone Services: Going Beyond the Phone Tree Created page with "Back in the old days, everyone got a phone list, and a shortlist of people they were assigned to. When the big news came in, one person received it and called three people—..." current
- 16:11, 26 February 2014 diff hist +797 N Legislation and Policy Advocacy Created page with "==Legislative Reform== One way that an advocacy group can reach the public is by interacting with legislation to ensure better laws for the public. One example of this kind o..." current
- 16:11, 26 February 2014 diff hist +578 N Internet Services Created page with "==Internet Services: Topics== *Internet Services: Mailing Lists *Internet Services: Websites, Chat Rooms, and Newsgroups *Protecting Message Boards from Spam ==In..." current
- 16:11, 26 February 2014 diff hist +8,098 N National Institutes of Health (NIH) Created page with "==National Institutes of Health (NIH)== The NIH is one of the eight agencies of the Public Health Service, a part of the United States Department of Health and Human Services..." current
- 16:09, 26 February 2014 diff hist +4,196 N Policy Tools & Resources Created page with "==Policy Tools & Resources== One of the most important parts of advocacy is enacting policy. To do so, there are many methods of outreach that one may use to reach policymaker..." current
- 16:09, 26 February 2014 diff hist +3,877 N Dealing with Death Created page with "Organizations often struggle with how to provide for families who have lost a loved one to the condition and still offer hope to the families who are struggling to hang on to ..."
- 16:09, 26 February 2014 diff hist +3,135 N Advocacy Organizations List Created page with "*[http://www.aota.org/ American Occupational Therapy Association] :A professional organization of over 50,000 practitioners dedicated to providing services to individuals wit..." current
- 16:08, 26 February 2014 diff hist +977 N Connecting Organizations Created page with "Sometimes, advocacy organizations hope to improve and/or connect local organizations to form a larger network of support across the nation. One example of this is the [http://..." current
- 16:08, 26 February 2014 diff hist +1,701 N Advocacy Resources Created page with ";[http://www.usdoj.gov/crt/ada/ Americans with Disabilities Act (ADA) Home Page] :Information and Technical Assistance on the ADA :Phone: 800.514.0301 :Fax: 202.514.6193 ;[h..." current
- 16:08, 26 February 2014 diff hist +6,269 N Connecting Individuals Created page with "==International Contacts/Support Groups== The world is no longer divided with big barriers between countries. The Internet provides for all of us access to the whole world..."
- 16:07, 26 February 2014 diff hist +3,168 N Assistive Technology Created page with ";[http://www.abledata.com/ AbleData] :This website is part of the National Institute on Disability and Rehabilitation Research, US Department of Education. Provides informati..."
- 16:07, 26 February 2014 diff hist +2,725 N BioBanks Created page with "== Organizations == ;[http://www.biobankcentral.org/ BioBank Central] :Provides an overall description of biobanking including why biobanks are needed and how they work. :emai..."