Consumer Medical Information

From WikiAdvocacy
Advocacy for Patients with Chronic Illness, Inc.
Free legal information, advice and advocacy services for patients with chronic illnesses in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location nationwide.

Catalyst Center

Catalyst Center, funded by the Maternal and Child Health Bureau of the Health Resources and Services Administration, works to improve the health care coverage and financing for children and youth with special health care needs. The Center offers educational publications, answers questions, and conducts research in this very important field.
Boston University School of Public Health
715 Albany Street
Talbot Building, 2d Floor West
Boston, MA 02118-2526
Phone: 617.638.1930
Citizens for the Right to Know
Network of consumer and disease organizations dedicated to providing access to information on health care plans in order to make informed consumer choices.
925 L Street, Suite 600
Sacramento, CA 95814
Phone: 866.RTK.NATL (866.785.6285)
Email form
Consumers Union
An independent, nonprofit testing and information organization serving only consumers. Publishes Consumer Reports.
101 Truman Avenue
Yonkers, NY 10703-1057
Telephone: 914.378.2000
Families USA
A national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. See its Health Care Reform Resources to learn more about the Patient Protection and Affordable Care Act and important consumer protections that have gone and will go into effect.
1201 New York Ave
Suite 1100
Washington, DC 20005
Phone: 202.628.3030
Fax: 202.347.2417
Health information from the National Library of Medicine at the US National Institutes of Health.
Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide
A web portal for resources and websites related to maternal and child health provided by the Institute for Child Health Policy at the University of Florida.
Patient Advocate Foundation
The Patient Advocate Foundation has recently developed "The National Underinsured Resource Directory" to help the uninsured locate resources and alternative options for coverage. The guide may be searched in two ways: by keyword or by completing the interactive tool to help the individual find the missing pieces surrounding his or her particular situation.
Patient-Centered Primary Care Collaborative
The Patient-Centered Primary Care Collaborative provides information about the concept of a medical home. Focusing on pilot projects for the implementation of the patient-centered medical home, PCPCC has created the Center for Consumer Engagement to encourage you to participate in awareness activities.
Wikipedia + SNPs (single nucleotide polymorphisms) = SNPedia; a free, community annotated website focusing on common DNA variations with medical consequences. Entries are referenced to scientific articles and related genetic databases, and are intended for a wide audience including researchers, physicians, and the general public.
A project of the Henry J. Kaiser Family Foundation designed to provide free, up-to-date, and easy-to-use health data for all 50 states on over 700 health topics. Some categories include: health status, health coverage and the uninsured, minority health, women's health, health costs and budgets, and many more.
Web MD
A source for a variety of health information.
An open source, user-generated encyclopedia on human genetics for the public. It provides credible and up-to-date information on human genetics.

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