Difference between revisions of "Consumer Medical Information"

Latest revision as of 17:58, 5 March 2014

Advocacy for Patients with Chronic Illness, Inc.: Free legal information, advice and advocacy services for patients with chronic illnesses in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location nationwide.

Catalyst Center, funded by the Maternal and Child Health Bureau of the Health Resources and Services Administration, works to improve the health care coverage and financing for children and youth with special health care needs. The Center offers educational publications, answers questions, and conducts research in this very important field.

Boston University School of Public Health

715 Albany Street

Talbot Building, 2d Floor West

Boston, MA 02118-2526

Phone: 617.638.1930

Citizens for the Right to Know: Network of consumer and disease organizations dedicated to providing access to information on health care plans in order to make informed consumer choices.; 925 L Street, Suite 600; Sacramento, CA 95814; Phone: 866.RTK.NATL (866.785.6285); Email form

Consumers Union: An independent, nonprofit testing and information organization serving only consumers. Publishes Consumer Reports.; 101 Truman Avenue; Yonkers, NY 10703-1057; Telephone: 914.378.2000

Families USA: A national nonprofit, non-partisan organization dedicated to the achievement of high-quality, affordable health care for all Americans. See its Health Care Reform Resources to learn more about the Patient Protection and Affordable Care Act and important consumer protections that have gone and will go into effect.; 1201 New York Ave; Suite 1100; Washington, DC 20005; Phone: 202.628.3030; Fax: 202.347.2417; Email: info@familiesusa.org

Medline: Health information from the National Library of Medicine at the US National Institutes of Health.

Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide: A web portal for resources and websites related to maternal and child health provided by the Institute for Child Health Policy at the University of Florida.

Patient Advocate Foundation: The Patient Advocate Foundation has recently developed "The National Underinsured Resource Directory" to help the uninsured locate resources and alternative options for coverage. The guide may be searched in two ways: by keyword or by completing the interactive tool to help the individual find the missing pieces surrounding his or her particular situation.

Patient-Centered Primary Care Collaborative: The Patient-Centered Primary Care Collaborative provides information about the concept of a medical home. Focusing on pilot projects for the implementation of the patient-centered medical home, PCPCC has created the Center for Consumer Engagement to encourage you to participate in awareness activities.

SNPedia: Wikipedia + SNPs (single nucleotide polymorphisms) = SNPedia; a free, community annotated website focusing on common DNA variations with medical consequences. Entries are referenced to scientific articles and related genetic databases, and are intended for a wide audience including researchers, physicians, and the general public.

Statehealthfacts.org: A project of the Henry J. Kaiser Family Foundation designed to provide free, up-to-date, and easy-to-use health data for all 50 states on over 700 health topics. Some categories include: health status, health coverage and the uninsured, minority health, women's health, health costs and budgets, and many more.

Web MD: A source for a variety of health information.

WikiGenetics: An open source, user-generated encyclopedia on human genetics for the public. It provides credible and up-to-date information on human genetics.

@@ Line 10: / Line 10: @@
 :Phone: 617.638.1930
-;[http://rtk.org/ Citizens for the Right to Know]
+;[http://www.rtknet.org/ Citizens for the Right to Know]
 :Network of consumer and disease organizations dedicated to providing access to information on health care plans in order to make informed consumer choices.
 :925 L Street, Suite 600
@@ Line 35: / Line 35: @@
 :Health information from the National Library of Medicine at the US National Institutes of Health.
-;[http://mchneighborhood.ichp.edu/ Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide]
+;[http://cms.hhs.gov/Research-Statistics-Data-and-Systems/Research/HealthCareFinancingReview/Downloads/02Fallpg27.pdf Obtaining Quality Managed Care for Children with Disabilities or Chronic Illnesses: A Resource and Research Guide]
 :A web portal for resources and websites related to maternal and child health provided by the Institute for Child Health Policy at the University of Florida.
@@ Line 41: / Line 41: @@
 :The Patient Advocate Foundation has recently developed "The National Underinsured Resource Directory" to help the uninsured locate resources and alternative options for coverage. The guide may be searched in two ways: by keyword or by completing the interactive tool to help the individual find the missing pieces surrounding his or her particular situation.
-;[http://www.pcpcc.net/consumers-and-patients Patient-Centered Primary Care Collaborative]
+;[http://www.pcpcc.org/guide/consumer-education-english-spanish Patient-Centered Primary Care Collaborative]
 :The Patient-Centered Primary Care Collaborative provides information about the concept of a medical home. Focusing on pilot projects for the implementation of the patient-centered medical home, PCPCC has created the Center for Consumer Engagement to encourage you to participate in awareness activities.

Difference between revisions of "Consumer Medical Information"

Latest revision as of 17:58, 5 March 2014

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