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- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant8 KB (1,061 words) - 16:40, 2 August 2018
- populations it may affect--in this part the group should provide any research data that researchers may have and can also address the fact that the LACK of specific2 KB (262 words) - 16:14, 26 February 2014
- This is an unfinished page. Please check back later. The following is a global overview of the PEER process. Both GA/PA and DAO's steps are covered in4 KB (482 words) - 18:35, 23 January 2015
- or other sensitive data? How do we respect diverse opinions about data sharing within our communities? How do we engage in research with our communities54 KB (8,126 words) - 16:52, 11 February 2015
- The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal To be1 KB (76 words) - 16:00, 16 December 2014
- co-authorship for data or sample access. Data/sample acknowledgement policies should be explained to investigators prior to release of data or samples, and19 KB (2,693 words) - 17:03, 26 February 2014
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant6 KB (866 words) - 06:25, 15 September 2021
- of Rights Promoting Research Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant Disorder6 KB (827 words) - 13:50, 8 October 2020
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant5 KB (856 words) - 14:37, 12 November 2014
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant9 KB (1,294 words) - 14:53, 4 February 2016
- Center offers educational publications, answers questions, and conducts research in this very important field. Boston University School of Public Health5 KB (589 words) - 17:58, 5 March 2014
- collection, storage, and distribution of biological samples and clinical data for research purposes. Phone: 202.966.5557 x201 Email: sterry@geneticalliance.org3 KB (239 words) - 14:51, 4 February 2016
- Consumers and Researchers Educating Membership about Research Facilitating Quality Research Funding Research by Others Getting Needs onto the Research Agenda5 KB (752 words) - 16:59, 26 February 2014
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant5 KB (716 words) - 16:28, 26 February 2014
- biobank, you are conducting a research study, and research ethics are an important consideration. Broadly, each research study must consider the following:9 KB (1,314 words) - 17:04, 26 February 2014
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant12 KB (1,915 words) - 16:30, 26 February 2014
- Consumers and Researchers Educating Membership about Research Facilitating Quality Research Funding Research by Others Getting Needs onto the Research Agenda5 KB (752 words) - 16:29, 26 February 2014
- Rights Promoting Research Registries Research Models Research Model 1: Recessive Disorder Research Model 2: Chromosomal Disorder Research Model 3: Dominant6 KB (928 words) - 16:28, 26 February 2014
- Consumers and Researchers Educating Membership about Research Facilitating Quality Research Funding Research by Others Getting Needs onto the Research Agenda4 KB (544 words) - 17:00, 26 February 2014
- bolster their economy and research, but it is also a bit short sighted to think that they can’t or shouldn’t aggressively support research in their 10x the size37 KB (6,142 words) - 14:42, 22 June 2018
- biobank, it is important to develop a research study design. Your study design will be influenced by the research question(s) you are trying to answer.13 KB (1,925 words) - 17:03, 26 February 2014
- likelihood that data collected today will be compatible with data collected a few years from now, and will facilitate pooling of data between related registries5 KB (652 words) - 17:05, 26 February 2014
- direct the research being done on their disease or condition of interest. Well-characterized biological samples are a very valuable research tool. However10 KB (1,352 words) - 14:40, 25 March 2022
- In the case of a research meeting such as the Society of Investigative Dermatology meeting, you would encourage members of your research advisory board or12 KB (1,863 words) - 16:36, 26 February 2014
- involved in research, sometimes referred to as "subjects." That terminology reduces the individual to little more than a laboratory specimen or data point.3 KB (441 words) - 03:30, 21 November 2023
- Database fees – These may include fees to create records, fees for querying, or data use fees. Sample collection costs – These may include collection kits and5 KB (777 words) - 17:03, 26 February 2014
- Consumers and Researchers Educating Membership about Research Facilitating Quality Research Funding Research by Others Getting Needs onto the Research Agenda5 KB (752 words) - 16:58, 26 February 2014
- 800.IBM.4YOU National Assistive Technology Research Institute (NATRI) Conducts assistive technology research and helps to move those findings into practice3 KB (372 words) - 18:07, 5 March 2014
- Diseases Research (ORDR) to see if they can offer guidance on building a database that complies with recognized standards for this kind of data collection7 KB (1,035 words) - 16:27, 26 February 2014
- have about Smart Patients is that, like Facebook, it does share anonymized data with third parties without the consent of members: https://www.smartpatients34 KB (5,620 words) - 15:15, 1 August 2018
- with FA to participate in clinical research studies or trials. All researchers who would like to request registry data will fill out an application to FARA6 KB (996 words) - 19:08, 7 May 2014
- tool addresses conditions that are relevant to your target audience. Do research and speak with health care professionals in your area so you include appropriate8 KB (1,062 words) - 17:19, 26 February 2014
- with FA to participate in clinical research studies or trials. All researchers who would like to request registry data will fill out an application to FARA6 KB (996 words) - 19:06, 7 May 2014