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- Creating a Natural History Survey
- Dealing with Death
- Defining Our Terms
- Determine Goals
- Developing a Governance Board
- Developing the Organization That Can Achieve Your Goals
- Disease Advocacy Organization(DAO)
- Disease Advocacy Organization(DAO) Manual
- Disease Advocacy Organization (DAO) Manual
- Donations
- Donations from Canada/Outside the US
- Drug Development
- Editing Practice
- Educating Membership about Research
- Educating Your Membership about Research
- Education of Members, Providers, and the Public
- Emergency Preparedness
- Ensuring Cultural Competence
- Events
- Expertise
- FARA Patient Registry Q & A
- FARA Q & A
- Facilitating Quality Research
- Family Health History
- Family Health History Initiative Guidelines
- Financial Assets
- Financial and Summary Statement
- Finding a Lawyer
- Functions of Advocacy Organization
- Funding
- Funding Research by Others
- Fundraising
- Fundraising/Third Party
- Fundraising Appeals
- General Resources
- Genetic Alliance
- Genetic Alliance(GA) SOP
- Genetic Alliance BioBank
- Genetic Privacy
- Getting Grants
- Getting Needs on Government and Legislative Agendas
- Getting Needs onto the Research Agenda
- Getting Your Community Interested
- Getting Your Needs on Government and Legislative Agendas
- Getting a Biobank or Registry Started
- Getting an ICD-9 code added for your condition
- Harnessing the Resources That Are Hard to Measure
- Health care Providers and Specialists
- Helping Your Membership Help Your Group
- History of Advocacy Organizations and Genetic Alliance