- 22:33, 9 January 2015 diff hist -20 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:23, 9 January 2015 diff hist -72 Disease Advocacy Organization (DAO) Manual →Full Outreach and Community Engagement
- 22:23, 9 January 2015 diff hist +72 Disease Advocacy Organization (DAO) Manual →Full Outreach and Community Engagement
- 22:22, 9 January 2015 diff hist +39 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:15, 9 January 2015 diff hist -44 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:13, 9 January 2015 diff hist -4 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:12, 9 January 2015 diff hist -7 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:11, 9 January 2015 diff hist +4 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 22:10, 9 January 2015 diff hist +87 Disease Advocacy Organization (DAO) Manual →Phase I Testing
- 21:58, 9 January 2015 diff hist +60 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:56, 9 January 2015 diff hist -26 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:56, 9 January 2015 diff hist +2 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:55, 9 January 2015 diff hist -33 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:42, 9 January 2015 diff hist +1 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:38, 9 January 2015 diff hist +17 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 21:37, 9 January 2015 diff hist -55 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 19:42, 9 January 2015 diff hist -12 Disease Advocacy Organization (DAO) Manual →Phase I Testing
- 19:40, 9 January 2015 diff hist -6 Disease Advocacy Organization (DAO) Manual →Phase I Point Person Instructions
- 19:39, 9 January 2015 diff hist +37 Disease Advocacy Organization (DAO) Manual →Phase I Testing
- 19:20, 9 January 2015 diff hist -1 Disease Advocacy Organization (DAO) Manual →Phase I Instructions
- 19:20, 9 January 2015 diff hist -1 Disease Advocacy Organization (DAO) Manual →Phase I Instructions
- 19:20, 9 January 2015 diff hist +1 Disease Advocacy Organization (DAO) Manual →Phase I Instructions
- 19:19, 9 January 2015 diff hist +9,153 Disease Advocacy Organization (DAO) Manual →Selected Audience Survey Testing
- 18:55, 9 January 2015 diff hist +94 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:48, 9 January 2015 diff hist +2 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:47, 9 January 2015 diff hist -80 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:43, 9 January 2015 diff hist +30 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:42, 9 January 2015 diff hist +55 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:41, 9 January 2015 diff hist -86 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:06, 9 January 2015 diff hist +90 Disease Advocacy Organization (DAO) Manual →Selected Audience Survey Testing
- 18:03, 9 January 2015 diff hist +5 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 18:02, 9 January 2015 diff hist +1,126 Disease Advocacy Organization (DAO) Manual →Selected Audience Survey Testing
- 17:52, 9 January 2015 diff hist -30 Disease Advocacy Organization (DAO) Manual →Before Phase I Testing
- 17:52, 9 January 2015 diff hist +1,004 Disease Advocacy Organization (DAO) Manual →Selected Audience Survey Testing
- 15:07, 8 January 2015 diff hist +13 Overview →Main Outreach (DAO)
- 21:49, 7 January 2015 diff hist +8 Disease Advocacy Organization (DAO) Manual →User Support
- 21:48, 7 January 2015 diff hist +11 Disease Advocacy Organization (DAO) Manual →Full Outreach and Community Engagement
- 21:48, 7 January 2015 diff hist +5 Disease Advocacy Organization (DAO) Manual →Selected Audience Survey Testing
- 21:47, 7 January 2015 diff hist -21 Disease Advocacy Organization (DAO) Manual →Survey Questions and Development
- 21:46, 7 January 2015 diff hist -4 Disease Advocacy Organization (DAO) Manual →Videos & Guides Development
- 21:46, 7 January 2015 diff hist +24 Disease Advocacy Organization (DAO) Manual →Content and User Interface(UI)
- 21:46, 7 January 2015 diff hist +20 Disease Advocacy Organization (DAO) Manual →Pre-Outreach Efforts
- 21:45, 7 January 2015 diff hist -43 Overview
- 21:44, 7 January 2015 diff hist +12 Overview →Final Check (GA)
- 21:43, 7 January 2015 diff hist +8 Overview →Internal Testing? (GA)
- 21:43, 7 January 2015 diff hist +12 Overview →Overall Portal/Survey Check (GA)
- 21:42, 7 January 2015 diff hist +13 Overview →Set up Customer Support (DAO)
- 21:42, 7 January 2015 diff hist +1 Overview →REDCap
- 21:41, 7 January 2015 diff hist -1 Overview →REDCap
- 21:40, 7 January 2015 diff hist +19 Overview →REDCap
- 21:40, 7 January 2015 diff hist +1 Disease Advocacy Organization (DAO) Manual →Expectations
- 21:39, 7 January 2015 diff hist +24 Overview →Technical Support (GA, PA)
- 21:38, 7 January 2015 diff hist +17 Overview →Customer Support (DAO)
- 21:35, 7 January 2015 diff hist +27 Overview →Ongoing Outreach (DAO)
- 21:31, 7 January 2015 diff hist +1 Overview →Redcap
- 21:31, 7 January 2015 diff hist +12 Overview →Mixpanel
- 21:30, 7 January 2015 diff hist +33 Overview →Main Outreach (DAO)
- 21:28, 7 January 2015 diff hist +19 Overview →External Testing (DAO)
- 21:26, 7 January 2015 diff hist +14 Overview →Set up Customer Support (DAO)
- 21:25, 7 January 2015 diff hist +13 Overview →Portal ready, Survey polishing & Development Phase
- 21:25, 7 January 2015 diff hist +10 Overview →(3) Pre-Outreach (DAO)
- 21:24, 7 January 2015 diff hist +13 Overview →(2) Guides, Privacy Setting, Bios and Overall message, Portal Design, Videos (DAO)
- 21:24, 7 January 2015 diff hist +7 Overview →GA expectations/ DAO checklist
- 21:24, 7 January 2015 diff hist +6 Overview →Plan and Set Goals and Objectives
- 21:24, 7 January 2015 diff hist +2 Overview →(1) Survey questions development (DAO)
- 21:23, 7 January 2015 diff hist +18 Overview →(1) Survey questions development (DAO)
- 21:23, 7 January 2015 diff hist +4 Overview →GA expectations/ DAO checklist
- 21:22, 7 January 2015 diff hist +4 Overview →Plan and Set Goals and Objectives
- 16:30, 7 January 2015 diff hist +8 Overview →IRB Approval (DAO)
- 14:11, 24 December 2014 diff hist +21 Overview
- 14:10, 24 December 2014 diff hist +1,240 Overview
- 13:48, 24 December 2014 diff hist +79 Overview
- 13:46, 24 December 2014 diff hist +12 Overview
- 13:45, 24 December 2014 diff hist +223 Overview
- 13:40, 24 December 2014 diff hist +7 Overview
- 13:39, 24 December 2014 diff hist -3 Overview
- 13:39, 24 December 2014 diff hist 0 Overview
- 13:38, 24 December 2014 diff hist +2 Overview
- 13:37, 24 December 2014 diff hist +43 Overview
- 13:35, 24 December 2014 diff hist +405 Overview
- 13:29, 24 December 2014 diff hist +80 Overview
- 13:28, 24 December 2014 diff hist +292 Overview
- 13:21, 24 December 2014 diff hist +3 Overview
- 21:53, 23 December 2014 diff hist -7 Overview
- 21:53, 23 December 2014 diff hist +5 Overview
- 21:52, 23 December 2014 diff hist +53 Overview
- 21:51, 23 December 2014 diff hist +279 Overview
- 21:48, 23 December 2014 diff hist +33 Overview
- 21:46, 23 December 2014 diff hist +134 Overview
- 21:44, 23 December 2014 diff hist +12 Overview
- 21:43, 23 December 2014 diff hist +3 Overview
- 21:42, 23 December 2014 diff hist -12 Overview
- 21:41, 23 December 2014 diff hist +7 Overview
- 21:40, 23 December 2014 diff hist +586 Overview
- 21:21, 23 December 2014 diff hist +43 Overview
- 21:20, 23 December 2014 diff hist +12 Overview
- 21:19, 23 December 2014 diff hist -14 Overview
- 21:18, 23 December 2014 diff hist -3 Overview
- 21:17, 23 December 2014 diff hist +144 Overview
- 21:12, 23 December 2014 diff hist +72 Overview
- 21:10, 23 December 2014 diff hist 0 N File:IMG 20141208 120132.jpg current
- 21:09, 23 December 2014 diff hist 0 N File:IMG 20141208 120124.jpg current
- 21:08, 23 December 2014 diff hist +130 N File:IMG 20141208 120119.jpg Overall steps for PEER; still a Rough Draft PS: Based on old Redcap system, but just replace the Redcap section with the new PEER current
- 21:00, 23 December 2014 diff hist +62 Overview
- 20:48, 23 December 2014 diff hist +265 Overview
- 20:37, 23 December 2014 diff hist +19 Disease Advocacy Organization (DAO) Manual →Setting Up User Support System
- 20:35, 23 December 2014 diff hist 0 Disease Advocacy Organization (DAO) Manual →Survey Question sand Development
- 20:33, 23 December 2014 diff hist -1 PEER Portal current
- 20:32, 23 December 2014 diff hist +1 PEER Portal
- 16:53, 17 December 2014 diff hist -320 Main Page
- 16:41, 17 December 2014 diff hist -405 PEER Portal
- 16:38, 17 December 2014 diff hist +723 N PEER Portal Created page with "{|style="color:black;width:99%;background-color:#FAF6D9;font-weight:bold;border:1px solid #a3bfb1;" border="0" cellpadding="5" cellspacing="2" align="center" |'''GA PEER Porta..."
- 16:24, 16 December 2014 diff hist -121 Disease Advocacy Organization (DAO) Manual
- 16:22, 16 December 2014 diff hist +400 Disease Advocacy Organization (DAO) Manual
- 16:10, 16 December 2014 diff hist +849 N Disease Advocacy Organization (DAO) Manual Created page with "The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal File:dao-manual.png|200px|..."
- 16:08, 16 December 2014 diff hist +3 Genetic Alliance(GA) SOP
- 16:07, 16 December 2014 diff hist 0 N File:Ga-sop-manual.png current
- 16:06, 16 December 2014 diff hist +849 N Genetic Alliance(GA) SOP Created page with "The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal File:dao-manual.png|200px|..."
- 16:02, 16 December 2014 diff hist +1 Main Page
- 16:00, 16 December 2014 diff hist -16 Disease Advocacy Organization(DAO) Manual current
- 16:00, 16 December 2014 diff hist +16 Disease Advocacy Organization(DAO) Manual
- 15:51, 16 December 2014 diff hist -150 Disease Advocacy Organization(DAO) Manual
- 15:50, 16 December 2014 diff hist +63 Disease Advocacy Organization(DAO) Manual
- 15:49, 16 December 2014 diff hist 0 N File:Dao-manual.png current
- 15:46, 16 December 2014 diff hist +149 Disease Advocacy Organization(DAO) Manual
- 15:43, 16 December 2014 diff hist +116 Disease Advocacy Organization(DAO) Manual
- 15:38, 16 December 2014 diff hist +278 Disease Advocacy Organization(DAO) Manual
- 15:37, 16 December 2014 diff hist +184 Disease Advocacy Organization(DAO) Manual
- 15:33, 16 December 2014 diff hist -22,402 Disease Advocacy Organization(DAO) Manual Replaced content with "The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal ==Initial Consultation ..."
- 15:33, 16 December 2014 diff hist +22,402 Donations
- 15:31, 16 December 2014 diff hist -22,402 Donations Replaced content with "The following is the overview your DAO would have to take to successfully setup and launch a White Label Package connected through the PEER portal ==Initial Consultation ..."
- 15:13, 16 December 2014 diff hist +22,539 Disease Advocacy Organization(DAO) Manual
- 15:12, 16 December 2014 diff hist -700 Disease Advocacy Organization(DAO) Manual
- 15:12, 16 December 2014 diff hist +293 Disease Advocacy Organization(DAO) Manual
- 15:11, 16 December 2014 diff hist +746 Disease Advocacy Organization(DAO) Manual →Obtaining Donations
- 15:11, 16 December 2014 diff hist -67 Disease Advocacy Organization(DAO) Manual →Obtaining Donations
- 15:11, 16 December 2014 diff hist +90 N Disease Advocacy Organization(DAO) Manual Created page with "==Obtaining Donations== :Mary Ann Wilson, Administrative Director :Neurofibromatosis, Inc."
- 19:22, 15 December 2014 diff hist -16 Main Page
- 18:19, 10 December 2014 diff hist -35 Overview
- 14:49, 10 December 2014 diff hist +73 N Overview Created page with "==What is this?== ==What REALLY is this?== ==But actually== ==Seriously=="
- 14:46, 10 December 2014 diff hist +35 Main Page
- 14:46, 10 December 2014 diff hist 0 Main Page →Request an Account
- 14:43, 10 December 2014 diff hist 0 Main Page
- 14:41, 10 December 2014 diff hist 0 Main Page
- 14:40, 10 December 2014 diff hist 0 Main Page
- 14:39, 10 December 2014 diff hist 0 Main Page
- 14:37, 10 December 2014 diff hist -3 Main Page
- 14:35, 10 December 2014 diff hist -106 Main Page
- 14:34, 10 December 2014 diff hist +407 Main Page
- 14:34, 10 December 2014 diff hist -405 Main Page
- 14:33, 10 December 2014 diff hist -38 Main Page
- 14:32, 10 December 2014 diff hist +37 Main Page
- 14:30, 10 December 2014 diff hist +11 Main Page
- 14:28, 10 December 2014 diff hist +45 N Disease Advocacy Organization(DAO) Created page with "sdfghjkkcdfghjklkfdsdfghjhgfdsdfghjhgfdsdfghj" current
- 14:25, 10 December 2014 diff hist +14 Main Page
- 14:24, 10 December 2014 diff hist -431 Main Page
- 14:19, 10 December 2014 diff hist +812 Main Page
- 16:18, 8 December 2014 diff hist +1,831 Setting Up A National Conference →Registration Fees current
- 16:12, 8 December 2014 diff hist +1 Donations →Obtaining Donations
- 16:12, 8 December 2014 diff hist +1,735 Donations →Obtaining Donations
- 16:11, 8 December 2014 diff hist -1,734 Donations →Donation Software and Databases
- 16:10, 8 December 2014 diff hist +1,734 Donations →Donation Software and Databases
- 16:02, 8 December 2014 diff hist +2,312 Staff
- 15:23, 3 December 2014 diff hist +639 Conferences, Workshops, and Meetings for Affected Individuals
- 15:19, 3 December 2014 diff hist -638 Setting Up A National Conference
- 15:13, 3 December 2014 diff hist +638 Setting Up A National Conference
- 18:43, 1 December 2014 diff hist +261 International Offices
- 14:42, 18 November 2014 diff hist +399 Dealing with Death
- 19:03, 17 November 2014 diff hist +1,591 Dealing with Death →Supporting our Members During the Loss of a Loved One
- 17:19, 17 November 2014 diff hist +726 Getting Grants
- 15:48, 17 November 2014 diff hist +702 Building a Website →Factors to Consider
- 15:37, 17 November 2014 diff hist +6,080 Publicity and General Media →Pre Publicity Considerations
- 14:37, 12 November 2014 diff hist +707 Educating Membership about Research →Helping Members Decide Whether to Participate current
- 15:42, 10 November 2014 diff hist +1 Building a Website →Factors to Consider
- 15:42, 10 November 2014 diff hist +2,055 Building a Website →Factors to Consider
- 15:28, 10 November 2014 diff hist +2,330 Educating Membership about Research →Helping Members Decide Whether to Participate
- 17:23, 6 November 2014 diff hist +1,245 Dealing with Death
- 16:51, 6 November 2014 diff hist -2 Dealing with Death
- 15:52, 6 November 2014 diff hist +698 Publicity and General Media →Pre Publicity Considerations
- 18:47, 3 November 2014 diff hist +1,218 Support for Individuals and Families
- 18:29, 3 November 2014 diff hist +2,874 Helping Your Membership Help Your Group
- 19:59, 31 October 2014 diff hist -12 Dealing with Death
- 19:57, 31 October 2014 diff hist +544 Dealing with Death
- 17:58, 31 October 2014 diff hist +160 Dealing with Death
- 14:48, 31 October 2014 diff hist +808 Fundraising →Questions and Answers for New Orgs
- 14:46, 31 October 2014 diff hist +800 Your Organization's Name Is Important →Control of Your Logo and Name current
- 14:30, 31 October 2014 diff hist -48 Your Organization's Name Is Important →Control of Your Logo and Name
- 14:28, 31 October 2014 diff hist +48 Your Organization's Name Is Important →Control of Your Logo and Name
- 14:25, 31 October 2014 diff hist +897 Your Organization's Name Is Important →Control of Your Logo and Name
- 14:18, 31 October 2014 diff hist +1 Fundraising →Questions and Answers for New Orgs
- 14:18, 31 October 2014 diff hist +931 Fundraising →Questions and Answers for New Orgs
- 13:46, 29 October 2014 diff hist +30 Newsletters and Bulletins →Calendars current
- 13:45, 29 October 2014 diff hist -1,636 Brochures and Fact Sheets current
- 13:42, 29 October 2014 diff hist +45 Newsletters and Bulletins →Calendars
- 13:40, 29 October 2014 diff hist 0 Newsletters and Bulletins
- 13:39, 29 October 2014 diff hist +1,558 Newsletters and Bulletins
- 16:09, 28 October 2014 diff hist +1 Brochures and Fact Sheets
- 16:07, 28 October 2014 diff hist +1,634 Brochures and Fact Sheets
- 16:02, 28 October 2014 diff hist -1 Your Organization's Name Is Important →Joubert Syndrome & Related Disorders Foundation=
- 18:08, 8 May 2014 diff hist +2,689 Setting Up A National Conference
- 16:03, 8 May 2014 diff hist +1,520 Publicity and General Media
- 19:29, 7 May 2014 diff hist +8,451 N Internet Services: Listserv Guidelines Netiquitte Help Created page with "'''Question''' The Barth Syndrome Foundation has utilized a Listserv since 2001. We have used various platforms including the GA platform but since 2004 we have used a priva..."
- 19:18, 7 May 2014 diff hist +37 Internet Services: Mailing Lists →Internal Links current
- 19:17, 7 May 2014 diff hist +61 Internet Services: Mailing Lists →Internal Links
- 19:12, 7 May 2014 diff hist +4,299 Donations
- 19:08, 7 May 2014 diff hist +6,256 N FARA Patient Registry Q & A Created page with "'''What is the FARA Patient Registry?''' The purpose of the patient registry is to collect basic information on individuals with Friedreich’s Ataxia (FA) and to share this ..." current
- 19:07, 7 May 2014 diff hist +17 Registry and Biobank Weekly Tips current
- 19:06, 7 May 2014 diff hist +6,256 N FARA Q & A Created page with "'''What is the FARA Patient Registry?''' The purpose of the patient registry is to collect basic information on individuals with Friedreich’s Ataxia (FA) and to share this ..." current
- 19:03, 7 May 2014 diff hist +16 Registry and Biobank Weekly Tips
- 18:58, 7 May 2014 diff hist +33 Volunteer - Peer Coaches current
- 16:15, 7 May 2014 diff hist +4 Volunteer - Peer Coaches
- 16:14, 7 May 2014 diff hist +6,230 N Volunteer - Peer Coaches Created page with "Peer-Support Volunteer Training: Background: KS&A (soon to be AXYS) is a health advocacy organization dedicated to individuals who have genetic conditions called X and Y chro..."
- 16:13, 7 May 2014 diff hist +30 Volunteers →Internal Links
- 12:50, 6 May 2014 diff hist -348 Conference Call Services current
- 15:26, 11 April 2014 diff hist -1 Main Page →Request an Account
- 15:24, 11 April 2014 diff hist +32 Main Page →Request an Account
- 15:24, 11 April 2014 diff hist -46 Main Page
- 15:23, 11 April 2014 diff hist +46 Main Page
- 15:20, 11 April 2014 diff hist +168 Main Page →Request an Account
- 17:43, 9 April 2014 diff hist -73 Main Page →Request an Account
- 17:42, 9 April 2014 diff hist -6 Main Page →Request an Account
- 16:21, 7 March 2014 diff hist -1,124 Main Page
- 15:17, 6 March 2014 diff hist 0 Start Using WikiAdvocacy →Register and Log in as a User current
- 18:24, 5 March 2014 diff hist +44 Barriers to Rare Disease Research
- 18:22, 5 March 2014 diff hist +77 Resources for School Success
- 18:19, 5 March 2014 diff hist +3 Internet and Web Resources current
- 18:17, 5 March 2014 diff hist -11 Getting Grants
- 18:14, 5 March 2014 diff hist +5 Ensuring Cultural Competence
- 18:12, 5 March 2014 diff hist +4 Staff
- 18:07, 5 March 2014 diff hist +22 Assistive Technology current
- 18:05, 5 March 2014 diff hist -13 Blood and Tissue Banks
- 18:03, 5 March 2014 diff hist +45 BioBanks
- 18:01, 5 March 2014 diff hist -3 Children's Hopes and Dreams Foundations current
- 17:58, 5 March 2014 diff hist +108 Consumer Medical Information current
- 17:51, 5 March 2014 diff hist -37 Fundraising
- 17:50, 5 March 2014 diff hist +11 Fundraising Appeals current
- 17:49, 5 March 2014 diff hist -6 General Resources current
- 17:47, 5 March 2014 diff hist +9 Publications current
- 17:46, 5 March 2014 diff hist +14 Resources for Nonprofits current
- 17:43, 5 March 2014 diff hist -23 Sibling Support current
- 17:41, 5 March 2014 diff hist -97 State Registration
- 17:40, 5 March 2014 diff hist -8 State Registration
- 17:24, 5 March 2014 diff hist -193 Advisory Boards
- 17:02, 5 March 2014 diff hist -4 Bylaws and Articles current
- 16:58, 5 March 2014 diff hist -27 Ensuring Cultural Competence
- 16:57, 5 March 2014 diff hist -41 Ensuring Cultural Competence
- 16:55, 5 March 2014 diff hist -20 International Offices
- 16:53, 5 March 2014 diff hist -24 Staff
- 16:42, 5 March 2014 diff hist +6 Building a Website
- 16:39, 5 March 2014 diff hist +9 Conference Call Services