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- How to: Create a New Wiki Page
- How to Get Started
- How to Obtain Donated Office Space
- How to Use This Guide
- How to post a file on WikiAdvocacy
- Individual Speaker Recommendations
- Informal Offices or Regional Support Groups
- Information about Rare Genetic Diseases
- Insurance and Policies
- Intended Goal
- International Offices
- Internet Services
- Internet Services: Listserv Guidelines Netiquitte Help
- Internet Services: Mailing Lists
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- Joint Fundraising
- Knowing Your Community
- Leadership
- Legislation and Policy Advocacy
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- Meet Your Neighbors & Organizations
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- Obtaining and Maintaining Registry Data
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- PEER Portal
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- People and Roles
- Phone Services: Going Beyond the Phone Tree
- Planning a Research Conference
- Policy Tools & Resources
- Preparing for and Handling Publicity
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- Promoting Research
- Promoting Research on a Condition
- Protecting Member Privacy
- Protecting Message Boards from Spam
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- Publisher Recommendations
- Recruiting
- Recruiting Celebrities
- Registries
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- Registry and Biobank Ethics and Governance
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- Research Model 1: Recessive Disorder
- Research Model 2: Chromosomal Disorder
- Research Model 3: Dominant Disorder
- Research Models
- Resources for Nonprofits
- Resources for School Success
- Results and Individual Follow-up
- Scholarships for your participants/families/members
- Setting Up A National Conference
- Setting up Useful Systems
- Sharon F. Terry
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- Start Using WikiAdvocacy
- Starting Points for Planning Materials
- State-Specific Issues
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- Taking Credit Cards on the Web
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- The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates
- The Power of Advocacy Organizations
- Translational Science
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- Using Search Tools to Get Found
- Vision
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- Why Go There?
- Working Full-Time on Nonprofit
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- Working with a Lawyer
- Your Organization's Name Is Important
- Youth to Adult Transition Issues