Uncategorized pages

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Showing below up to 100 results in range #51 to #150.

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  1. Defining Our Terms
  2. Determine Goals
  3. Developing a Governance Board
  4. Developing the Organization That Can Achieve Your Goals
  5. Disease Advocacy Organization(DAO)
  6. Disease Advocacy Organization(DAO) Manual
  7. Disease Advocacy Organization (DAO) Manual
  8. Donations
  9. Donations from Canada/Outside the US
  10. Drug Development
  11. Editing Practice
  12. Educating Membership about Research
  13. Educating Your Membership about Research
  14. Education of Members, Providers, and the Public
  15. Emergency Preparedness
  16. Ensuring Cultural Competence
  17. Events
  18. Expertise
  19. FARA Patient Registry Q & A
  20. FARA Q & A
  21. Facilitating Quality Research
  22. Family Health History
  23. Family Health History Initiative Guidelines
  24. Financial Assets
  25. Financial and Summary Statement
  26. Finding a Lawyer
  27. Functions of Advocacy Organization
  28. Funding Research by Others
  29. Fundraising
  30. Fundraising/Third Party
  31. Fundraising Appeals
  32. General Resources
  33. Genetic Alliance
  34. Genetic Alliance(GA) SOP
  35. Genetic Alliance BioBank
  36. Genetic Privacy
  37. Getting Grants
  38. Getting Needs on Government and Legislative Agendas
  39. Getting Needs onto the Research Agenda
  40. Getting Your Community Interested
  41. Getting Your Needs on Government and Legislative Agendas
  42. Getting a Biobank or Registry Started
  43. Getting an ICD-9 code added for your condition
  44. Harnessing the Resources That Are Hard to Measure
  45. Health care Providers and Specialists
  46. Helping Your Membership Help Your Group
  47. History of Advocacy Organizations and Genetic Alliance
  48. How to: Create a New Wiki Page
  49. How to Get Started
  50. How to Obtain Donated Office Space
  51. How to Use This Guide
  52. How to post a file on WikiAdvocacy
  53. Individual Speaker Recommendations
  54. Informal Offices or Regional Support Groups
  55. Information about Rare Genetic Diseases
  56. Insurance and Policies
  57. Intended Goal
  58. International Offices
  59. Internet Services
  60. Internet Services: Listserv Guidelines Netiquitte Help
  61. Internet Services: Mailing Lists
  62. Internet Services: Websites, Chat Rooms, and Newsgroups
  63. Internet and Web Resources
  64. Joint Fundraising
  65. Knowing Your Community
  66. Leadership
  67. Legislation and Policy Advocacy
  68. Main Page
  69. Maintaining Computer Files
  70. Maintaining Your Membership
  71. Matching Resources
  72. Media Access
  73. Media Tips
  74. Medical Records
  75. Meet Your Neighbors & Organizations
  76. Member Dues
  77. Mentors
  78. NAC Best Practices
  79. National Awareness Day
  80. National Institutes of Health (NIH)
  81. Newsletters and Bulletins
  82. Nonprofit Organization Sample Templates
  83. Novel Meeting Formats
  84. Obtaining and Maintaining Registry Data
  85. Orphan Drug Application
  86. Overview
  87. Overview of WikiAdvocacy
  88. PEER Portal
  89. Patient's Bill of Rights
  90. People and Roles
  91. Phone Services: Going Beyond the Phone Tree
  92. Planning a Research Conference
  93. Policy Tools & Resources
  94. Preparing for and Handling Publicity
  95. Press Kits
  96. Promoting Research
  97. Promoting Research on a Condition
  98. Protecting Member Privacy
  99. Protecting Message Boards from Spam
  100. Publications

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