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Showing below up to 100 results in range #51 to #150.

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  1. Creating a Natural History Survey
  2. Dealing with Death
  3. Defining Our Terms
  4. Determine Goals
  5. Developing a Governance Board
  6. Developing the Organization That Can Achieve Your Goals
  7. Disease Advocacy Organization(DAO)
  8. Disease Advocacy Organization(DAO) Manual
  9. Disease Advocacy Organization (DAO) Manual
  10. Donations
  11. Donations from Canada/Outside the US
  12. Drug Development
  13. Editing Practice
  14. Educating Membership about Research
  15. Educating Your Membership about Research
  16. Education of Members, Providers, and the Public
  17. Emergency Preparedness
  18. Ensuring Cultural Competence
  19. Events
  20. Expertise
  21. FARA Patient Registry Q & A
  22. FARA Q & A
  23. Facilitating Quality Research
  24. Family Health History
  25. Family Health History Initiative Guidelines
  26. Financial Assets
  27. Financial and Summary Statement
  28. Finding a Lawyer
  29. Functions of Advocacy Organization
  30. Funding
  31. Funding Research by Others
  32. Fundraising
  33. Fundraising/Third Party
  34. Fundraising Appeals
  35. General Resources
  36. Genetic Alliance
  37. Genetic Alliance(GA) SOP
  38. Genetic Alliance BioBank
  39. Genetic Privacy
  40. Getting Grants
  41. Getting Needs on Government and Legislative Agendas
  42. Getting Needs onto the Research Agenda
  43. Getting Your Community Interested
  44. Getting Your Needs on Government and Legislative Agendas
  45. Getting a Biobank or Registry Started
  46. Getting an ICD-9 code added for your condition
  47. Harnessing the Resources That Are Hard to Measure
  48. Health care Providers and Specialists
  49. Helping Your Membership Help Your Group
  50. History of Advocacy Organizations and Genetic Alliance
  51. How to: Create a New Wiki Page
  52. How to Get Started
  53. How to Obtain Donated Office Space
  54. How to Use This Guide
  55. How to post a file on WikiAdvocacy
  56. Individual Speaker Recommendations
  57. Informal Offices or Regional Support Groups
  58. Information about Rare Genetic Diseases
  59. Insurance and Policies
  60. Intended Goal
  61. International Offices
  62. Internet Services
  63. Internet Services: Listserv Guidelines Netiquitte Help
  64. Internet Services: Mailing Lists
  65. Internet Services: Websites, Chat Rooms, and Newsgroups
  66. Internet and Web Resources
  67. Joint Fundraising
  68. Knowing Your Community
  69. Leadership
  70. Legislation and Policy Advocacy
  71. Main Page
  72. Maintaining Computer Files
  73. Maintaining Your Membership
  74. Matching Resources
  75. Media Access
  76. Media Tips
  77. Medical Records
  78. Meet Your Neighbors & Organizations
  79. Member Dues
  80. Mentors
  81. NAC Best Practices
  82. National Awareness Day
  83. National Institutes of Health (NIH)
  84. Newsletters and Bulletins
  85. Nonprofit Organization Sample Templates
  86. Novel Meeting Formats
  87. Obtaining and Maintaining Registry Data
  88. Orphan Drug Application
  89. Overview
  90. Overview of WikiAdvocacy
  91. PEER Portal
  92. Patient's Bill of Rights
  93. People and Roles
  94. Phone Services: Going Beyond the Phone Tree
  95. Planning a Research Conference
  96. Policy Tools & Resources
  97. Preparing for and Handling Publicity
  98. Press Kits
  99. Promoting Research
  100. Promoting Research on a Condition

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