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Showing below up to 98 results in range #101 to #198.

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  1. Promoting Research on a Condition‏‎ (1 revision)
  2. Advocacy Organizations List‏‎ (1 revision)
  3. Biobank and Registry External Relations‏‎ (1 revision)
  4. FARA Patient Registry Q & A‏‎ (1 revision)
  5. How to Obtain Donated Office Space‏‎ (1 revision)
  6. Leadership‏‎ (1 revision)
  7. Nonprofit Organization Sample Templates‏‎ (1 revision)
  8. Protecting Member Privacy‏‎ (1 revision)
  9. Advocacy Resources‏‎ (1 revision)
  10. Biobank and Registry Financial Management‏‎ (1 revision)
  11. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (1 revision)
  12. Developing the Organization That Can Achieve Your Goals‏‎ (1 revision)
  13. FARA Q & A‏‎ (1 revision)
  14. How to Use This Guide‏‎ (1 revision)
  15. Legislation and Policy Advocacy‏‎ (1 revision)
  16. Protecting Message Boards from Spam‏‎ (1 revision)
  17. Results and Individual Follow-up‏‎ (1 revision)
  18. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (1 revision)
  19. Articles, Letters, and Other Media for Lay Publication‏‎ (1 revision)
  20. Blogging‏‎ (1 revision)
  21. Disease Advocacy Organization(DAO)‏‎ (1 revision)
  22. Facilitating Quality Research‏‎ (1 revision)
  23. Genetic Privacy‏‎ (1 revision)
  24. How to post a file on WikiAdvocacy‏‎ (1 revision)
  25. Obtaining and Maintaining Registry Data‏‎ (1 revision)
  26. Scholarships for your participants/families/members‏‎ (1 revision)
  27. The Power of Advocacy Organizations‏‎ (1 revision)
  28. Individual Speaker Recommendations‏‎ (1 revision)
  29. Maintaining Computer Files‏‎ (1 revision)
  30. Orphan Drug Application‏‎ (1 revision)
  31. Translational Science‏‎ (1 revision)
  32. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (1 revision)
  33. Getting Needs on Government and Legislative Agendas‏‎ (1 revision)
  34. Informal Offices or Regional Support Groups‏‎ (1 revision)
  35. Maintaining Your Membership‏‎ (1 revision)
  36. Publisher Recommendations‏‎ (1 revision)
  37. Setting up Useful Systems‏‎ (1 revision)
  38. Travel‏‎ (1 revision)
  39. Attending Professionals' Annual Meetings‏‎ (1 revision)
  40. Connecting Organizations‏‎ (1 revision)
  41. Financial Assets‏‎ (1 revision)
  42. Getting Needs onto the Research Agenda‏‎ (1 revision)
  43. Information about Rare Genetic Diseases‏‎ (1 revision)
  44. Matching Resources‏‎ (1 revision)
  45. Overview of WikiAdvocacy‏‎ (1 revision)
  46. Recruiting‏‎ (1 revision)
  47. Sharon F. Terry‏‎ (1 revision)
  48. Using Search Tools to Get Found‏‎ (1 revision)
  49. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (1 revision)
  50. Getting Your Community Interested‏‎ (1 revision)
  51. Media Access‏‎ (1 revision)
  52. Recruiting Celebrities‏‎ (1 revision)
  53. Vision‏‎ (1 revision)
  54. Celebrity Spokesperson‏‎ (1 revision)
  55. Getting Your Needs on Government and Legislative Agendas‏‎ (1 revision)
  56. Intended Goal‏‎ (1 revision)
  57. Media Tips‏‎ (1 revision)
  58. Patient's Bill of Rights‏‎ (1 revision)
  59. Available Resources‏‎ (1 revision)
  60. Consumers and Researchers: Making It Work‏‎ (1 revision)
  61. Editing Practice‏‎ (1 revision)
  62. Getting a Biobank or Registry Started‏‎ (1 revision)
  63. Registry Questionnaires‏‎ (1 revision)
  64. Speaker selection and management‏‎ (1 revision)
  65. Characterize Condition‏‎ (1 revision)
  66. Cool Tips‏‎ (1 revision)
  67. Funding‏‎ (1 revision)
  68. Getting an ICD-9 code added for your condition‏‎ (1 revision)
  69. Internet Services‏‎ (1 revision)
  70. Meet Your Neighbors & Organizations‏‎ (1 revision)
  71. Phone Services: Going Beyond the Phone Tree‏‎ (1 revision)
  72. Registry and Biobank Ethics and Governance‏‎ (1 revision)
  73. Accepting Donations‏‎ (1 revision)
  74. Basic Formatting‏‎ (1 revision)
  75. Characterize Resources‏‎ (1 revision)
  76. Councils and Other Advisory Bodies‏‎ (1 revision)
  77. Educating Your Membership about Research‏‎ (1 revision)
  78. Funding Research by Others‏‎ (1 revision)
  79. Harnessing the Resources That Are Hard to Measure‏‎ (1 revision)
  80. Member Dues‏‎ (1 revision)
  81. Planning a Research Conference‏‎ (1 revision)
  82. Accessibility of Tools‏‎ (1 revision)
  83. Becoming the Organization You Imagine‏‎ (1 revision)
  84. Creating New Pages‏‎ (1 revision)
  85. Education of Members, Providers, and the Public‏‎ (1 revision)
  86. Health care Providers and Specialists‏‎ (1 revision)
  87. Mentors‏‎ (1 revision)
  88. Policy Tools & Resources‏‎ (1 revision)
  89. Research Model 1: Recessive Disorder‏‎ (1 revision)
  90. Starting Points for Planning Materials‏‎ (1 revision)
  91. Working Full-Time on Nonprofit‏‎ (1 revision)
  92. Creating a Natural History Survey‏‎ (1 revision)
  93. Emergency Preparedness‏‎ (1 revision)
  94. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (1 revision)
  95. NAC Best Practices‏‎ (1 revision)
  96. Preparing for and Handling Publicity‏‎ (1 revision)
  97. Research Model 2: Chromosomal Disorder‏‎ (1 revision)
  98. State-Specific Issues‏‎ (1 revision)

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