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Showing below up to 98 results in range #101 to #198.

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  1. Educating Your Membership about Research‏‎ (1 revision)
  2. Funding Research by Others‏‎ (1 revision)
  3. Harnessing the Resources That Are Hard to Measure‏‎ (1 revision)
  4. Member Dues‏‎ (1 revision)
  5. Planning a Research Conference‏‎ (1 revision)
  6. Starting Points for Planning Materials‏‎ (1 revision)
  7. Working Full-Time on Nonprofit‏‎ (1 revision)
  8. Accessibility of Tools‏‎ (1 revision)
  9. Becoming the Organization You Imagine‏‎ (1 revision)
  10. Creating New Pages‏‎ (1 revision)
  11. Education of Members, Providers, and the Public‏‎ (1 revision)
  12. Health care Providers and Specialists‏‎ (1 revision)
  13. Mentors‏‎ (1 revision)
  14. Policy Tools & Resources‏‎ (1 revision)
  15. Research Model 1: Recessive Disorder‏‎ (1 revision)
  16. State-Specific Issues‏‎ (1 revision)
  17. Creating a Natural History Survey‏‎ (1 revision)
  18. Emergency Preparedness‏‎ (1 revision)
  19. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (1 revision)
  20. NAC Best Practices‏‎ (1 revision)
  21. Preparing for and Handling Publicity‏‎ (1 revision)
  22. Research Model 2: Chromosomal Disorder‏‎ (1 revision)
  23. Additional/Supplemental Resources‏‎ (1 revision)
  24. History of Advocacy Organizations and Genetic Alliance‏‎ (1 revision)
  25. National Awareness Day‏‎ (1 revision)
  26. Press Kits‏‎ (1 revision)
  27. Research Model 3: Dominant Disorder‏‎ (1 revision)
  28. Choosing Internet Service Provider‏‎ (1 revision)
  29. Events‏‎ (1 revision)
  30. How to: Create a New Wiki Page‏‎ (1 revision)
  31. National Institutes of Health (NIH)‏‎ (1 revision)
  32. Promoting Research‏‎ (1 revision)
  33. Research Models‏‎ (1 revision)
  34. Advocacy‏‎ (1 revision)
  35. Choosing an Internet Service Provider‏‎ (1 revision)
  36. Determine Goals‏‎ (1 revision)
  37. Expertise‏‎ (1 revision)
  38. Genetic Alliance‏‎ (1 revision)
  39. How to Get Started‏‎ (1 revision)
  40. Knowing Your Community‏‎ (1 revision)
  41. Promoting Research on a Condition‏‎ (1 revision)
  42. Advocacy Organizations List‏‎ (1 revision)
  43. Biobank and Registry External Relations‏‎ (1 revision)
  44. FARA Patient Registry Q & A‏‎ (1 revision)
  45. How to Obtain Donated Office Space‏‎ (1 revision)
  46. Leadership‏‎ (1 revision)
  47. Nonprofit Organization Sample Templates‏‎ (1 revision)
  48. Protecting Member Privacy‏‎ (1 revision)
  49. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates‏‎ (1 revision)
  50. Advocacy Resources‏‎ (1 revision)
  51. Biobank and Registry Financial Management‏‎ (1 revision)
  52. Compare Goals and Resources, with the Characteristics of the Condition‏‎ (1 revision)
  53. Developing the Organization That Can Achieve Your Goals‏‎ (1 revision)
  54. FARA Q & A‏‎ (1 revision)
  55. How to Use This Guide‏‎ (1 revision)
  56. Legislation and Policy Advocacy‏‎ (1 revision)
  57. Protecting Message Boards from Spam‏‎ (1 revision)
  58. Results and Individual Follow-up‏‎ (1 revision)
  59. The Power of Advocacy Organizations‏‎ (1 revision)
  60. Articles, Letters, and Other Media for Lay Publication‏‎ (1 revision)
  61. Blogging‏‎ (1 revision)
  62. Disease Advocacy Organization(DAO)‏‎ (1 revision)
  63. Facilitating Quality Research‏‎ (1 revision)
  64. Genetic Privacy‏‎ (1 revision)
  65. How to post a file on WikiAdvocacy‏‎ (1 revision)
  66. Obtaining and Maintaining Registry Data‏‎ (1 revision)
  67. Scholarships for your participants/families/members‏‎ (1 revision)
  68. Translational Science‏‎ (1 revision)
  69. Individual Speaker Recommendations‏‎ (1 revision)
  70. Maintaining Computer Files‏‎ (1 revision)
  71. Orphan Drug Application‏‎ (1 revision)
  72. Setting up Useful Systems‏‎ (1 revision)
  73. Travel‏‎ (1 revision)
  74. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (1 revision)
  75. Getting Needs on Government and Legislative Agendas‏‎ (1 revision)
  76. Informal Offices or Regional Support Groups‏‎ (1 revision)
  77. Maintaining Your Membership‏‎ (1 revision)
  78. Publisher Recommendations‏‎ (1 revision)
  79. Sharon F. Terry‏‎ (1 revision)
  80. Using Search Tools to Get Found‏‎ (1 revision)
  81. Attending Professionals' Annual Meetings‏‎ (1 revision)
  82. Connecting Organizations‏‎ (1 revision)
  83. Financial Assets‏‎ (1 revision)
  84. Getting Needs onto the Research Agenda‏‎ (1 revision)
  85. Information about Rare Genetic Diseases‏‎ (1 revision)
  86. Matching Resources‏‎ (1 revision)
  87. Overview of WikiAdvocacy‏‎ (1 revision)
  88. Recruiting‏‎ (1 revision)
  89. Vision‏‎ (1 revision)
  90. Considering Starting a Support Group for a Condition that Already Has One?‏‎ (1 revision)
  91. Getting Your Community Interested‏‎ (1 revision)
  92. Media Access‏‎ (1 revision)
  93. Recruiting Celebrities‏‎ (1 revision)
  94. Celebrity Spokesperson‏‎ (1 revision)
  95. Getting Your Needs on Government and Legislative Agendas‏‎ (1 revision)
  96. Intended Goal‏‎ (1 revision)
  97. Media Tips‏‎ (1 revision)
  98. Patient's Bill of Rights‏‎ (1 revision)

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