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Showing below up to 145 results in range #51 to #195.

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  1. Defining Our Terms
  2. Determine Goals
  3. Developing a Governance Board
  4. Developing the Organization That Can Achieve Your Goals
  5. Disease Advocacy Organization(DAO)
  6. Disease Advocacy Organization(DAO) Manual
  7. Disease Advocacy Organization (DAO) Manual
  8. Donations
  9. Donations from Canada/Outside the US
  10. Drug Development
  11. Editing Practice
  12. Educating Membership about Research
  13. Educating Your Membership about Research
  14. Education of Members, Providers, and the Public
  15. Emergency Preparedness
  16. Ensuring Cultural Competence
  17. Events
  18. Expertise
  19. FARA Patient Registry Q & A
  20. FARA Q & A
  21. Facilitating Quality Research
  22. Family Health History
  23. Family Health History Initiative Guidelines
  24. Financial Assets
  25. Financial and Summary Statement
  26. Finding a Lawyer
  27. Functions of Advocacy Organization
  28. Funding Research by Others
  29. Fundraising
  30. Fundraising/Third Party
  31. Fundraising Appeals
  32. General Resources
  33. Genetic Alliance
  34. Genetic Alliance(GA) SOP
  35. Genetic Alliance BioBank
  36. Genetic Privacy
  37. Getting Grants
  38. Getting Needs on Government and Legislative Agendas
  39. Getting Needs onto the Research Agenda
  40. Getting Your Community Interested
  41. Getting Your Needs on Government and Legislative Agendas
  42. Getting a Biobank or Registry Started
  43. Getting an ICD-9 code added for your condition
  44. Harnessing the Resources That Are Hard to Measure
  45. Health care Providers and Specialists
  46. Helping Your Membership Help Your Group
  47. History of Advocacy Organizations and Genetic Alliance
  48. How to: Create a New Wiki Page
  49. How to Get Started
  50. How to Obtain Donated Office Space
  51. How to Use This Guide
  52. How to post a file on WikiAdvocacy
  53. Individual Speaker Recommendations
  54. Informal Offices or Regional Support Groups
  55. Information about Rare Genetic Diseases
  56. Insurance and Policies
  57. Intended Goal
  58. International Offices
  59. Internet Services
  60. Internet Services: Listserv Guidelines Netiquitte Help
  61. Internet Services: Mailing Lists
  62. Internet Services: Websites, Chat Rooms, and Newsgroups
  63. Internet and Web Resources
  64. Joint Fundraising
  65. Knowing Your Community
  66. Leadership
  67. Legislation and Policy Advocacy
  68. Main Page
  69. Maintaining Computer Files
  70. Maintaining Your Membership
  71. Matching Resources
  72. Media Access
  73. Media Tips
  74. Medical Records
  75. Meet Your Neighbors & Organizations
  76. Member Dues
  77. Mentors
  78. NAC Best Practices
  79. National Awareness Day
  80. National Institutes of Health (NIH)
  81. Newsletters and Bulletins
  82. Nonprofit Organization Sample Templates
  83. Novel Meeting Formats
  84. Obtaining and Maintaining Registry Data
  85. Orphan Drug Application
  86. Overview
  87. Overview of WikiAdvocacy
  88. PEER Portal
  89. Patient's Bill of Rights
  90. People and Roles
  91. Phone Services: Going Beyond the Phone Tree
  92. Planning a Research Conference
  93. Policy Tools & Resources
  94. Preparing for and Handling Publicity
  95. Press Kits
  96. Promoting Research
  97. Promoting Research on a Condition
  98. Protecting Member Privacy
  99. Protecting Message Boards from Spam
  100. Publications
  101. Publicity and General Media
  102. Publisher Recommendations
  103. Recruiting
  104. Recruiting Celebrities
  105. Registries
  106. Registry Questionnaires
  107. Registry and Biobank Ethics and Governance
  108. Registry and Biobank Weekly Tips
  109. Research Model 1: Recessive Disorder
  110. Research Model 2: Chromosomal Disorder
  111. Research Model 3: Dominant Disorder
  112. Research Models
  113. Resources for Nonprofits
  114. Resources for School Success
  115. Results and Individual Follow-up
  116. Scholarships for your participants/families/members
  117. Setting Up A National Conference
  118. Setting up Useful Systems
  119. Sharon F. Terry
  120. Sibling Support
  121. Social Networking
  122. Speaker selection and management
  123. Staff
  124. Start Using WikiAdvocacy
  125. Starting Points for Planning Materials
  126. State-Specific Issues
  127. State Registration
  128. Support for Individuals and Families
  129. Taking Credit Cards on the Web
  130. Tax and Finance
  131. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates
  132. The Power of Advocacy Organizations
  133. Translational Science
  134. Travel
  135. Using Search Tools to Get Found
  136. Vision
  137. Volunteer - Peer Coaches
  138. Volunteers
  139. Webinars
  140. Why Go There?
  141. Working Full-Time on Nonprofit
  142. Working Remotely
  143. Working with a Lawyer
  144. Your Organization's Name Is Important
  145. Youth to Adult Transition Issues

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