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Showing below up to 148 results in range #51 to #198.

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  1. Creating a Natural History Survey
  2. Dealing with Death
  3. Defining Our Terms
  4. Determine Goals
  5. Developing a Governance Board
  6. Developing the Organization That Can Achieve Your Goals
  7. Disease Advocacy Organization(DAO)
  8. Disease Advocacy Organization(DAO) Manual
  9. Disease Advocacy Organization (DAO) Manual
  10. Donations
  11. Donations from Canada/Outside the US
  12. Drug Development
  13. Editing Practice
  14. Educating Membership about Research
  15. Educating Your Membership about Research
  16. Education of Members, Providers, and the Public
  17. Emergency Preparedness
  18. Ensuring Cultural Competence
  19. Events
  20. Expertise
  21. FARA Patient Registry Q & A
  22. FARA Q & A
  23. Facilitating Quality Research
  24. Family Health History
  25. Family Health History Initiative Guidelines
  26. Financial Assets
  27. Financial and Summary Statement
  28. Finding a Lawyer
  29. Functions of Advocacy Organization
  30. Funding
  31. Funding Research by Others
  32. Fundraising
  33. Fundraising/Third Party
  34. Fundraising Appeals
  35. General Resources
  36. Genetic Alliance
  37. Genetic Alliance(GA) SOP
  38. Genetic Alliance BioBank
  39. Genetic Privacy
  40. Getting Grants
  41. Getting Needs on Government and Legislative Agendas
  42. Getting Needs onto the Research Agenda
  43. Getting Your Community Interested
  44. Getting Your Needs on Government and Legislative Agendas
  45. Getting a Biobank or Registry Started
  46. Getting an ICD-9 code added for your condition
  47. Harnessing the Resources That Are Hard to Measure
  48. Health care Providers and Specialists
  49. Helping Your Membership Help Your Group
  50. History of Advocacy Organizations and Genetic Alliance
  51. How to: Create a New Wiki Page
  52. How to Get Started
  53. How to Obtain Donated Office Space
  54. How to Use This Guide
  55. How to post a file on WikiAdvocacy
  56. Individual Speaker Recommendations
  57. Informal Offices or Regional Support Groups
  58. Information about Rare Genetic Diseases
  59. Insurance and Policies
  60. Intended Goal
  61. International Offices
  62. Internet Services
  63. Internet Services: Listserv Guidelines Netiquitte Help
  64. Internet Services: Mailing Lists
  65. Internet Services: Websites, Chat Rooms, and Newsgroups
  66. Internet and Web Resources
  67. Joint Fundraising
  68. Knowing Your Community
  69. Leadership
  70. Legislation and Policy Advocacy
  71. Main Page
  72. Maintaining Computer Files
  73. Maintaining Your Membership
  74. Matching Resources
  75. Media Access
  76. Media Tips
  77. Medical Records
  78. Meet Your Neighbors & Organizations
  79. Member Dues
  80. Mentors
  81. NAC Best Practices
  82. National Awareness Day
  83. National Institutes of Health (NIH)
  84. Newsletters and Bulletins
  85. Nonprofit Organization Sample Templates
  86. Novel Meeting Formats
  87. Obtaining and Maintaining Registry Data
  88. Orphan Drug Application
  89. Overview
  90. Overview of WikiAdvocacy
  91. PEER Portal
  92. Patient's Bill of Rights
  93. People and Roles
  94. Phone Services: Going Beyond the Phone Tree
  95. Planning a Research Conference
  96. Policy Tools & Resources
  97. Preparing for and Handling Publicity
  98. Press Kits
  99. Promoting Research
  100. Promoting Research on a Condition
  101. Protecting Member Privacy
  102. Protecting Message Boards from Spam
  103. Publications
  104. Publicity and General Media
  105. Publisher Recommendations
  106. Recruiting
  107. Recruiting Celebrities
  108. Registries
  109. Registry Questionnaires
  110. Registry and Biobank Ethics and Governance
  111. Registry and Biobank Weekly Tips
  112. Research Model 1: Recessive Disorder
  113. Research Model 2: Chromosomal Disorder
  114. Research Model 3: Dominant Disorder
  115. Research Models
  116. Resources for Nonprofits
  117. Resources for School Success
  118. Results and Individual Follow-up
  119. Scholarships for your participants/families/members
  120. Setting Up A National Conference
  121. Setting up Useful Systems
  122. Sharon F. Terry
  123. Sibling Support
  124. Social Networking
  125. Speaker selection and management
  126. Staff
  127. Start Using WikiAdvocacy
  128. Starting Points for Planning Materials
  129. State-Specific Issues
  130. State Registration
  131. Support for Individuals and Families
  132. Taking Credit Cards on the Web
  133. Tax and Finance
  134. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates
  135. The Power of Advocacy Organizations
  136. Translational Science
  137. Travel
  138. Using Search Tools to Get Found
  139. Vision
  140. Volunteer - Peer Coaches
  141. Volunteers
  142. Webinars
  143. Why Go There?
  144. Working Full-Time on Nonprofit
  145. Working Remotely
  146. Working with a Lawyer
  147. Your Organization's Name Is Important
  148. Youth to Adult Transition Issues

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