- 16:07, 26 February 2014 diff hist +3,168 N Assistive Technology Created page with ";[http://www.abledata.com/ AbleData] :This website is part of the National Institute on Disability and Rehabilitation Research, US Department of Education. Provides informati..."
- 16:07, 26 February 2014 diff hist +2,725 N BioBanks Created page with "== Organizations == ;[http://www.biobankcentral.org/ BioBank Central] :Provides an overall description of biobanking including why biobanks are needed and how they work. :emai..."
- 16:05, 26 February 2014 diff hist +2,944 N Blogging Created page with "Blogging is a way for organizations to present information in an article or journal format. Blogging is used for a variety of topics, and it can also give site visitors the op..." current
- 16:05, 26 February 2014 diff hist +11,753 N Conferences, Workshops, and Meetings for Affected Individuals Created page with "Conferences, workshops, and meetings are effective ways to teach your membership about your organization's condition and to create and strengthen your members' sense of commun..."
- 16:05, 26 February 2014 diff hist +3,535 N Children's Hopes and Dreams Foundations Created page with ";[http://www.believeintomorrow.org/ Believe in Tomorrow National Children's Foundation] :Helps children with life-threatening illnesses through three programs: Children’s Ho..."
- 16:03, 26 February 2014 diff hist +2,755 N Best Practices Created page with "Below is a list of resources for best practices. Each of these genetic disorders have best practices associated with them, however it is often hard to find all of the reliabl..."
- 16:03, 26 February 2014 diff hist +3,839 N Autopsies and Tissue Collection Created page with "Another difficult situation for families is deciding whether to make a loved one's body available for autopsy. Autopsy, once a routine practice in American medicine, is becom..."
- 16:02, 26 February 2014 diff hist -498 General Resources
- 16:02, 26 February 2014 diff hist +4,099 N Functions of Advocacy Organization Created page with "An advocacy organization can have a variety of functions, from an informal network in which parents give each other moral support to a sophisticated formal organization, which..."
- 16:00, 26 February 2014 diff hist +5,706 N Taking Credit Cards on the Web Created page with "You have several options for taking credit cards on the Web. They fall into two categories: using a service that collects the money and passes it back to you, or setting up y..."
- 16:00, 26 February 2014 diff hist +951 N Recruiting Created page with "In this section, we'll talk about the recruitment of various resources. == Topics == *Publicity and General Media *Media Tips *Recruiting Celebrities *Health ca..." current
- 15:59, 26 February 2014 diff hist +6,818 N People and Roles Created page with "An organization is made up of people, and those people take different roles. For those of you who have been running an organization for a while, especially if you've been doi..."
- 15:58, 26 February 2014 diff hist +830 N Novel Meeting Formats Created page with "Many advocacy organizations offer annual conferences and events for the individuals in their communities, which may include individuals with a genetic condition, their family ..."
- 15:57, 26 February 2014 diff hist +2,131 N Member Dues Created page with "Some organizations charge a substantial fee for membership and others charge nothing. Those that do charge use fees to offset the cost of services, and some believe there is ..." current
- 15:53, 26 February 2014 diff hist +4,747 N Consumer Medical Information Created page with ";[http://advocacyforpatients.org/ Advocacy for Patients with Chronic Illness, Inc.] :Free legal information, advice and advocacy services for patients with chronic illnesses i..."
- 15:52, 26 February 2014 diff hist +8,722 N Maintaining Your Membership Created page with "Organizations often report difficulty in maintaining membership, and this can be a source of disappointment or loss of momentum for an organization. You should not assume tha..." current
- 15:49, 26 February 2014 diff hist +1,520 N Maintaining Computer Files Created page with "==Backing-Up Files== Here are some reliable low cost solutions to back up your computer files off-site: *[http://www.carbonite.com/ Carbonite] – This "installs a small sof..." current
- 15:49, 26 February 2014 diff hist +3,157 N Emergency Preparedness Created page with "== Emergency Preparedness == Although September is emergency preparedness month, it is never too early or late to make sure you are prepared. Emergency readiness and disaster..." current
- 15:48, 26 February 2014 diff hist +3,618 N Choosing an Internet Service Provider Created page with "Your choice of an Internet service provider (ISP) is an important one. Examine your needs and shop around for a reliable host that fits your budget. The basic considerations..." current
- 15:48, 26 February 2014 diff hist +14,477 N Fundraising Created page with "==Project Types== Raising awareness: *Jewelry *Books *Template for Road Race fundraiser Donations: *online management *search engine donations *"Casual..."
- 15:48, 26 February 2014 diff hist +3,508 N How to Obtain Donated Office Space Created page with "== Deductibility == '''Partial Interest in Property''' Generally, you cannot deduct a charitable contribution of less than your entire interest in property. '''Right to u..." current
- 15:47, 26 February 2014 diff hist +6,150 N Helping Your Membership Help Your Group Created page with "One of the greatest resources an organization has is its membership. This membership can be defined in a number of ways, and it is probably a good idea to examine membership ..."
- 15:46, 26 February 2014 diff hist +4,529 N Harnessing the Resources That Are Hard to Measure Created page with "Some of your greatest resources are intangible, and they range from special skills or insights in your members to recognizing an opportunity when it arises and making the most..." current
- 15:45, 26 February 2014 diff hist +4,875 N Fundraising Appeals Created page with "==About Appeals== Approaching and asking others for money may become vital or necessary, especially for developing or small organizations. The process is a slow buildup of sma..."
- 15:44, 26 February 2014 diff hist +4,830 N General Resources Created page with ";[http://www.TheArc.org/ The ARC of the US] :Provides services and advocates for children and adults with intellectual and developmental disabilities. :1010 Wayne Avenue, Suit..."
- 15:42, 26 February 2014 diff hist +2,058 N Information about Rare Genetic Diseases Created page with ";[http://www.geneticalliance.org/ Genetic Alliance] :The Disease InfoSearch section is especially resourceful. :4301 Connecticut Avenue, NW :Suite 404 :Washington, DC 20008 ..." current
- 15:37, 26 February 2014 diff hist +11,093 N Getting Grants Created page with "Grants are available from many sources, although most granting agencies, from the government to small family foundations, have some guidelines they follow. You will need to d..."
- 15:36, 26 February 2014 diff hist +1,143 N Matching Resources Created page with ";[http://www.birthdefects.org/ Birth Defect Research for Children, Inc.] :930 Woodcock Road, Suite 225 :Orlando, FL 32803 :Phone: 407-895-0802 :Email: staff@birthdefects.org ..." current
- 15:36, 26 February 2014 diff hist +2,521 N Meet Your Neighbors & Organizations Created page with "==Meet Your Neighbors== Meet Your Neighbors started as a Genetic Alliance webinar series to highlight organizations and their projects and resources. It has evolved into an el..." current
- 15:35, 26 February 2014 diff hist +1,647 N Financial Assets Created page with "Financial assets are a crucial component of any organization's success. When beginning to think about finances, it is important to first consider all financial resources by re..." current
- 15:35, 26 February 2014 diff hist +2,659 N Events Created page with "Events can run the gamut from being very labor intensive to being simple. They can also net a great deal or very little, after expenses. You might have multiple reasons for ..." current
- 15:34, 26 February 2014 diff hist +16,893 N Donations Created page with "Look at donations broadly. You can obtain money, equipment and supplies in this category. A donations campaign—or even an ad-hoc effort—can be combined with seeking foun..."
- 15:32, 26 February 2014 diff hist +2,848 N Publications Created page with ";[http://www.pbrookes.com/ Brookes Publishing Co.] :Collection of books that are resources on disabilities, education, and child development. :PO Box 10624 :Baltimore, MD 212..."
- 15:32, 26 February 2014 diff hist +3,053 N Resources for Nonprofits Created page with ";[http://www.alderconsulting.com/resources.html/ Alder Consulting] :"Technology on a Shoestring" series of resource articles for nonprofits. :488 14th Street :Brooklyn, NY 11..."
- 15:31, 26 February 2014 diff hist +2,788 N Conference Call Services Created page with "Often times organizations have individuals all across the country that need to stay in contact. While many times email can be used, sometimes you need to talk with one another..."
- 15:29, 26 February 2014 diff hist +1,893 N Sibling Support Created page with ";[http://www.nichcy.org/familiesandcommunity/pages/siblingissues.aspx/ National Dissemination Center for Children with Disabilities] :Resources and stories to help siblings of..."
- 15:29, 26 February 2014 diff hist +10 Charity Rating Listings current
- 15:29, 26 February 2014 diff hist +3,431 N State Registration Created page with "== Charitable State Registration == [http://www.nasconet.org/agencies National Association of State Charity Officials] The majority of states require registration of organiz..."
- 15:28, 26 February 2014 diff hist +3,140 N Travel Created page with ";[http://www.aa.com/i18n/AAdvantage/partners/charities/milesToKids.jsp/ AAdvantage: Miles for Kids in Need] :This program from American Airlines provides air transportation fo..." current
- 15:27, 26 February 2014 diff hist +2,879 N Individual Speaker Recommendations Created page with "As organizations and institutions begin planning for workshops and conferences, good speakers are always a necessary requirement! Please add in your suggestions for speakers b..." current
- 15:26, 26 February 2014 diff hist +1,916 N Charity Rating Listings Created page with "As a nonprofit organization, there are many different opportunities to have your organization rated by such groupss as The BBB Wise Giving Alliance, Charity Navigator, Standar..."
- 15:25, 26 February 2014 diff hist +15,117 N Building a Website Created page with "Websites can be an excellent way to reach a wide audience quickly. They have the potential to provide much needed quality information about conditions to individuals who are r..."
- 15:24, 26 February 2014 diff hist +2,830 N Becoming the Organization You Imagine Created page with "For a small organization, development can be a very daunting topic, probably because of all the baggage that money carries with it, sometimes, as individuals founding a new ..." current
- 15:22, 26 February 2014 diff hist +2,877 N Working with a Lawyer Created page with "Your organization should establish some kind of relationship with a lawyer from early on. A lawyer can help you review documents, ensure that you have the appropriate documen..."
- 15:21, 26 February 2014 diff hist +6,051 N Working Remotely Created page with "Many advocacy organizations start as a like-minded group of individuals who are willing to volunteer large amounts of time and effort to improve the situation of those affecte..."
- 15:11, 26 February 2014 diff hist +2,156 N Volunteers Created page with "You will draw your volunteers from your members and from the community at large. Your volunteer pool may include affected individuals and their families as well as people who..."
- 15:09, 26 February 2014 diff hist +614 N Tax and Finance Created page with "In this section, we'll talk about Tax and Finance for advocacy organizations. *Setting up Useful Systems *Financial and Summary Statement *State-Specific Issues *..."
- 15:09, 26 February 2014 diff hist 0 Staff →Job Postings
- 15:09, 26 February 2014 diff hist +3,645 N Staff Created page with "In the beginning, staff is often voluntary. But as the organization grows, the day to day needs grow as well. ==Bringing on Senior Management== *Media:A_New_Seat_at_the..."
- 15:07, 26 February 2014 diff hist +15,819 N Your Organization's Name Is Important Created page with "It may seem that this should not even warrant discussion. You can call your organization whatever you like, right? Yes and no. A name has strategic implications. Just as w..."
