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- Publisher Recommendations (16:24, 26 February 2014)
- Starting Points for Planning Materials (16:24, 26 February 2014)
- Consumers and Researchers: Making It Work (16:27, 26 February 2014)
- Creating a Natural History Survey (16:27, 26 February 2014)
- Facilitating Quality Research (16:28, 26 February 2014)
- Funding Research by Others (16:28, 26 February 2014)
- Getting Needs onto the Research Agenda (16:29, 26 February 2014)
- Genetic Privacy (16:29, 26 February 2014)
- Promoting Research (16:29, 26 February 2014)
- Orphan Drug Application (16:30, 26 February 2014)
- Patient's Bill of Rights (16:30, 26 February 2014)
- Planning a Research Conference (16:32, 26 February 2014)
- Editing Practice (16:34, 26 February 2014)
- Media Tips (16:34, 26 February 2014)
- Recruiting Celebrities (16:35, 26 February 2014)
- Health care Providers and Specialists (16:35, 26 February 2014)
- Attending Professionals' Annual Meetings (16:36, 26 February 2014)
- Using Search Tools to Get Found (16:41, 26 February 2014)
- Advocacy (16:52, 26 February 2014)
- Internet Services: Websites, Chat Rooms, and Newsgroups (16:53, 26 February 2014)
- Protecting Message Boards from Spam (16:54, 26 February 2014)
- Education of Members, Providers, and the Public (16:56, 26 February 2014)
- Educating Your Membership about Research (16:57, 26 February 2014)
- Promoting Research on a Condition (16:58, 26 February 2014)
- Overview of WikiAdvocacy (16:59, 26 February 2014)
- Research Model 1: Recessive Disorder (16:59, 26 February 2014)
- Research Model 2: Chromosomal Disorder (17:00, 26 February 2014)
- Creating New Pages (17:00, 26 February 2014)
- Research Model 3: Dominant Disorder (17:00, 26 February 2014)
- Basic Formatting (17:00, 26 February 2014)
- Getting Your Needs on Government and Legislative Agendas (17:01, 26 February 2014)
- Cool Tips (17:02, 26 February 2014)
- Getting a Biobank or Registry Started (17:03, 26 February 2014)
- Biobank and Registry External Relations (17:03, 26 February 2014)
- Biobank and Registry Financial Management (17:03, 26 February 2014)
- Obtaining and Maintaining Registry Data (17:04, 26 February 2014)
- Registry and Biobank Ethics and Governance (17:04, 26 February 2014)
- Registry Questionnaires (17:05, 26 February 2014)
- Intended Goal (17:16, 26 February 2014)
- Getting Your Community Interested (17:18, 26 February 2014)
- Knowing Your Community (17:18, 26 February 2014)
- Accessibility of Tools (17:19, 26 February 2014)
- Available Resources (17:19, 26 February 2014)
- Additional/Supplemental Resources (17:20, 26 February 2014)
- Results and Individual Follow-up (17:20, 26 February 2014)
- Family Health History Initiative Guidelines (17:21, 26 February 2014)
- Preparing for and Handling Publicity (17:22, 26 February 2014)
- Choosing Internet Service Provider (17:22, 26 February 2014)
- National Awareness Day (17:24, 26 February 2014)
- Scholarships for your participants/families/members (17:32, 26 February 2014)
- Speaker selection and management (17:34, 26 February 2014)
- Novel Meeting Formats (17:36, 26 February 2014)
- Why Go There? (17:36, 26 February 2014)
- Funding (17:37, 26 February 2014)
- Leadership (17:37, 26 February 2014)
- Mentors (17:38, 26 February 2014)
- Expertise (17:39, 26 February 2014)
- Sharon F. Terry (17:47, 26 February 2014)
- Vision (17:53, 26 February 2014)
- Media Access (17:53, 26 February 2014)
- Celebrity Spokesperson (17:56, 26 February 2014)
- Working with a Lawyer (17:58, 26 February 2014)
- Setting up Useful Systems (18:00, 26 February 2014)
- State-Specific Issues (18:01, 26 February 2014)
- Attaining 501(c)(3) Status (Not-For-Profit Determination) (18:02, 26 February 2014)
- Accepting Donations (18:02, 26 February 2014)
- Working Full-Time on Nonprofit (18:04, 26 February 2014)
- Finding a Lawyer (18:09, 26 February 2014)
- Tax and Finance (15:14, 27 February 2014)
- Autopsies and Tissue Collection (16:21, 5 March 2014)
- Medical Records (16:25, 5 March 2014)
- Bylaws and Articles (17:02, 5 March 2014)
- Sibling Support (17:43, 5 March 2014)
- Resources for Nonprofits (17:46, 5 March 2014)
- Publications (17:47, 5 March 2014)
- General Resources (17:49, 5 March 2014)
- Fundraising Appeals (17:50, 5 March 2014)
- Consumer Medical Information (17:58, 5 March 2014)
- Children's Hopes and Dreams Foundations (18:01, 5 March 2014)
- Assistive Technology (18:07, 5 March 2014)
- Internet and Web Resources (18:19, 5 March 2014)
- Start Using WikiAdvocacy (15:17, 6 March 2014)
- Conference Call Services (12:50, 6 May 2014)
- Volunteer - Peer Coaches (18:58, 7 May 2014)
- FARA Q & A (19:06, 7 May 2014)
- Registry and Biobank Weekly Tips (19:07, 7 May 2014)
- FARA Patient Registry Q & A (19:08, 7 May 2014)
- Internet Services: Mailing Lists (19:18, 7 May 2014)
- Brochures and Fact Sheets (13:45, 29 October 2014)
- Newsletters and Bulletins (13:46, 29 October 2014)
- Your Organization's Name Is Important (14:46, 31 October 2014)
- Educating Membership about Research (14:37, 12 November 2014)
- Setting Up A National Conference (16:18, 8 December 2014)
- Disease Advocacy Organization(DAO) (14:28, 10 December 2014)
- Disease Advocacy Organization(DAO) Manual (16:00, 16 December 2014)
- PEER Portal (20:33, 23 December 2014)
- Overview (18:35, 23 January 2015)
- Genetic Alliance(GA) SOP (18:35, 23 January 2015)
- Webinars (19:14, 6 February 2015)
- Disease Advocacy Organization (DAO) Manual (16:52, 11 February 2015)