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Showing below up to 148 results in range #51 to #198.

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  1. Publisher Recommendations‏‎ (16:24, 26 February 2014)
  2. Starting Points for Planning Materials‏‎ (16:24, 26 February 2014)
  3. Consumers and Researchers: Making It Work‏‎ (16:27, 26 February 2014)
  4. Creating a Natural History Survey‏‎ (16:27, 26 February 2014)
  5. Facilitating Quality Research‏‎ (16:28, 26 February 2014)
  6. Funding Research by Others‏‎ (16:28, 26 February 2014)
  7. Getting Needs onto the Research Agenda‏‎ (16:29, 26 February 2014)
  8. Genetic Privacy‏‎ (16:29, 26 February 2014)
  9. Promoting Research‏‎ (16:29, 26 February 2014)
  10. Orphan Drug Application‏‎ (16:30, 26 February 2014)
  11. Patient's Bill of Rights‏‎ (16:30, 26 February 2014)
  12. Planning a Research Conference‏‎ (16:32, 26 February 2014)
  13. Editing Practice‏‎ (16:34, 26 February 2014)
  14. Media Tips‏‎ (16:34, 26 February 2014)
  15. Recruiting Celebrities‏‎ (16:35, 26 February 2014)
  16. Health care Providers and Specialists‏‎ (16:35, 26 February 2014)
  17. Attending Professionals' Annual Meetings‏‎ (16:36, 26 February 2014)
  18. Using Search Tools to Get Found‏‎ (16:41, 26 February 2014)
  19. Advocacy‏‎ (16:52, 26 February 2014)
  20. Internet Services: Websites, Chat Rooms, and Newsgroups‏‎ (16:53, 26 February 2014)
  21. Protecting Message Boards from Spam‏‎ (16:54, 26 February 2014)
  22. Education of Members, Providers, and the Public‏‎ (16:56, 26 February 2014)
  23. Educating Your Membership about Research‏‎ (16:57, 26 February 2014)
  24. Promoting Research on a Condition‏‎ (16:58, 26 February 2014)
  25. Overview of WikiAdvocacy‏‎ (16:59, 26 February 2014)
  26. Research Model 1: Recessive Disorder‏‎ (16:59, 26 February 2014)
  27. Research Model 2: Chromosomal Disorder‏‎ (17:00, 26 February 2014)
  28. Creating New Pages‏‎ (17:00, 26 February 2014)
  29. Research Model 3: Dominant Disorder‏‎ (17:00, 26 February 2014)
  30. Basic Formatting‏‎ (17:00, 26 February 2014)
  31. Getting Your Needs on Government and Legislative Agendas‏‎ (17:01, 26 February 2014)
  32. Cool Tips‏‎ (17:02, 26 February 2014)
  33. Getting a Biobank or Registry Started‏‎ (17:03, 26 February 2014)
  34. Biobank and Registry External Relations‏‎ (17:03, 26 February 2014)
  35. Biobank and Registry Financial Management‏‎ (17:03, 26 February 2014)
  36. Obtaining and Maintaining Registry Data‏‎ (17:04, 26 February 2014)
  37. Registry and Biobank Ethics and Governance‏‎ (17:04, 26 February 2014)
  38. Registry Questionnaires‏‎ (17:05, 26 February 2014)
  39. Intended Goal‏‎ (17:16, 26 February 2014)
  40. Getting Your Community Interested‏‎ (17:18, 26 February 2014)
  41. Knowing Your Community‏‎ (17:18, 26 February 2014)
  42. Accessibility of Tools‏‎ (17:19, 26 February 2014)
  43. Available Resources‏‎ (17:19, 26 February 2014)
  44. Additional/Supplemental Resources‏‎ (17:20, 26 February 2014)
  45. Results and Individual Follow-up‏‎ (17:20, 26 February 2014)
  46. Family Health History Initiative Guidelines‏‎ (17:21, 26 February 2014)
  47. Preparing for and Handling Publicity‏‎ (17:22, 26 February 2014)
  48. Choosing Internet Service Provider‏‎ (17:22, 26 February 2014)
  49. National Awareness Day‏‎ (17:24, 26 February 2014)
  50. Scholarships for your participants/families/members‏‎ (17:32, 26 February 2014)
  51. Speaker selection and management‏‎ (17:34, 26 February 2014)
  52. Novel Meeting Formats‏‎ (17:36, 26 February 2014)
  53. Why Go There?‏‎ (17:36, 26 February 2014)
  54. Funding‏‎ (17:37, 26 February 2014)
  55. Leadership‏‎ (17:37, 26 February 2014)
  56. Mentors‏‎ (17:38, 26 February 2014)
  57. Expertise‏‎ (17:39, 26 February 2014)
  58. Sharon F. Terry‏‎ (17:47, 26 February 2014)
  59. Vision‏‎ (17:53, 26 February 2014)
  60. Media Access‏‎ (17:53, 26 February 2014)
  61. Celebrity Spokesperson‏‎ (17:56, 26 February 2014)
  62. Working with a Lawyer‏‎ (17:58, 26 February 2014)
  63. Setting up Useful Systems‏‎ (18:00, 26 February 2014)
  64. State-Specific Issues‏‎ (18:01, 26 February 2014)
  65. Attaining 501(c)(3) Status (Not-For-Profit Determination)‏‎ (18:02, 26 February 2014)
  66. Accepting Donations‏‎ (18:02, 26 February 2014)
  67. Working Full-Time on Nonprofit‏‎ (18:04, 26 February 2014)
  68. Finding a Lawyer‏‎ (18:09, 26 February 2014)
  69. Tax and Finance‏‎ (15:14, 27 February 2014)
  70. Autopsies and Tissue Collection‏‎ (16:21, 5 March 2014)
  71. Medical Records‏‎ (16:25, 5 March 2014)
  72. Bylaws and Articles‏‎ (17:02, 5 March 2014)
  73. Sibling Support‏‎ (17:43, 5 March 2014)
  74. Resources for Nonprofits‏‎ (17:46, 5 March 2014)
  75. Publications‏‎ (17:47, 5 March 2014)
  76. General Resources‏‎ (17:49, 5 March 2014)
  77. Fundraising Appeals‏‎ (17:50, 5 March 2014)
  78. Consumer Medical Information‏‎ (17:58, 5 March 2014)
  79. Children's Hopes and Dreams Foundations‏‎ (18:01, 5 March 2014)
  80. Assistive Technology‏‎ (18:07, 5 March 2014)
  81. Internet and Web Resources‏‎ (18:19, 5 March 2014)
  82. Start Using WikiAdvocacy‏‎ (15:17, 6 March 2014)
  83. Conference Call Services‏‎ (12:50, 6 May 2014)
  84. Volunteer - Peer Coaches‏‎ (18:58, 7 May 2014)
  85. FARA Q & A‏‎ (19:06, 7 May 2014)
  86. Registry and Biobank Weekly Tips‏‎ (19:07, 7 May 2014)
  87. FARA Patient Registry Q & A‏‎ (19:08, 7 May 2014)
  88. Internet Services: Mailing Lists‏‎ (19:18, 7 May 2014)
  89. Brochures and Fact Sheets‏‎ (13:45, 29 October 2014)
  90. Newsletters and Bulletins‏‎ (13:46, 29 October 2014)
  91. Your Organization's Name Is Important‏‎ (14:46, 31 October 2014)
  92. Educating Membership about Research‏‎ (14:37, 12 November 2014)
  93. Setting Up A National Conference‏‎ (16:18, 8 December 2014)
  94. Disease Advocacy Organization(DAO)‏‎ (14:28, 10 December 2014)
  95. Disease Advocacy Organization(DAO) Manual‏‎ (16:00, 16 December 2014)
  96. PEER Portal‏‎ (20:33, 23 December 2014)
  97. Overview‏‎ (18:35, 23 January 2015)
  98. Genetic Alliance(GA) SOP‏‎ (18:35, 23 January 2015)
  99. Webinars‏‎ (19:14, 6 February 2015)
  100. Disease Advocacy Organization (DAO) Manual‏‎ (16:52, 11 February 2015)
  101. Clinician- and Researcher-Focused Materials‏‎ (19:29, 12 February 2015)
  102. Helping Your Membership Help Your Group‏‎ (20:15, 23 February 2015)
  103. Internet Services: Listserv Guidelines Netiquitte Help‏‎ (20:16, 23 February 2015)
  104. Financial and Summary Statement‏‎ (18:53, 19 March 2015)
  105. Joint Fundraising‏‎ (13:40, 12 August 2015)
  106. Fundraising/Third Party‏‎ (19:33, 12 August 2015)
  107. BioBanks‏‎ (14:51, 4 February 2016)
  108. Blood and Tissue Banks‏‎ (14:53, 4 February 2016)
  109. Fundraising‏‎ (01:09, 16 April 2016)
  110. International Offices‏‎ (01:34, 16 April 2016)
  111. Accountants‏‎ (00:37, 29 August 2016)
  112. Developing a Governance Board‏‎ (01:55, 29 August 2016)
  113. Connecting Individuals‏‎ (23:44, 30 August 2016)
  114. Audits‏‎ (01:56, 14 December 2016)
  115. Functions of Advocacy Organization‏‎ (18:01, 8 April 2018)
  116. Drug Development‏‎ (18:24, 8 April 2018)
  117. Childcare‏‎ (15:46, 15 April 2018)
  118. Advisory Boards‏‎ (19:10, 20 June 2018)
  119. Ensuring Cultural Competence‏‎ (19:47, 20 June 2018)
  120. Insurance and Policies‏‎ (19:51, 20 June 2018)
  121. Donations‏‎ (14:42, 22 June 2018)
  122. People and Roles‏‎ (15:30, 22 June 2018)
  123. Best Practices‏‎ (17:42, 22 June 2018)
  124. Dealing with Death‏‎ (18:21, 22 June 2018)
  125. Resources for School Success‏‎ (18:58, 22 June 2018)
  126. Family Health History‏‎ (15:16, 17 July 2018)
  127. Volunteers‏‎ (18:49, 30 July 2018)
  128. Working Remotely‏‎ (18:50, 30 July 2018)
  129. Building a Website‏‎ (18:55, 30 July 2018)
  130. Getting Grants‏‎ (20:10, 30 July 2018)
  131. Taking Credit Cards on the Web‏‎ (20:12, 30 July 2018)
  132. Donations from Canada/Outside the US‏‎ (20:37, 30 July 2018)
  133. Social Networking‏‎ (15:15, 1 August 2018)
  134. Support for Individuals and Families‏‎ (15:23, 1 August 2018)
  135. Youth to Adult Transition Issues‏‎ (15:49, 1 August 2018)
  136. Publicity and General Media‏‎ (16:40, 1 August 2018)
  137. Barriers to Rare Disease Research‏‎ (16:40, 2 August 2018)
  138. Benefits of Collaboration with Advocacy Organization Community‏‎ (16:48, 2 August 2018)
  139. Main Page‏‎ (17:06, 3 August 2018)
  140. Nonprofit Organization Sample Templates‏‎ (17:26, 3 August 2018)
  141. State Registration‏‎ (17:24, 20 September 2018)
  142. Challenges of 'Splinter Groups'‏‎ (04:07, 20 March 2019)
  143. Registries‏‎ (13:50, 8 October 2020)
  144. Staff‏‎ (20:38, 17 January 2021)
  145. Genetic Alliance BioBank‏‎ (06:25, 15 September 2021)
  146. Conferences, Workshops, and Meetings for Affected Individuals‏‎ (02:09, 21 September 2021)
  147. Biobank Sample Collection‏‎ (14:40, 25 March 2022)
  148. Defining Our Terms‏‎ (03:30, 21 November 2023)

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