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Showing below up to 148 results in range #51 to #198.
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- Research Models (1 revision)
- Advocacy (1 revision)
- Choosing an Internet Service Provider (1 revision)
- Determine Goals (1 revision)
- Expertise (1 revision)
- Genetic Alliance (1 revision)
- How to Get Started (1 revision)
- Knowing Your Community (1 revision)
- Promoting Research on a Condition (1 revision)
- Advocacy Organizations List (1 revision)
- Biobank and Registry External Relations (1 revision)
- FARA Patient Registry Q & A (1 revision)
- How to Obtain Donated Office Space (1 revision)
- Leadership (1 revision)
- Nonprofit Organization Sample Templates (1 revision)
- Protecting Member Privacy (1 revision)
- The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates (1 revision)
- Advocacy Resources (1 revision)
- Biobank and Registry Financial Management (1 revision)
- Compare Goals and Resources, with the Characteristics of the Condition (1 revision)
- Developing the Organization That Can Achieve Your Goals (1 revision)
- FARA Q & A (1 revision)
- How to Use This Guide (1 revision)
- Legislation and Policy Advocacy (1 revision)
- Protecting Message Boards from Spam (1 revision)
- Results and Individual Follow-up (1 revision)
- The Power of Advocacy Organizations (1 revision)
- Articles, Letters, and Other Media for Lay Publication (1 revision)
- Blogging (1 revision)
- Disease Advocacy Organization(DAO) (1 revision)
- Facilitating Quality Research (1 revision)
- Genetic Privacy (1 revision)
- How to post a file on WikiAdvocacy (1 revision)
- Obtaining and Maintaining Registry Data (1 revision)
- Scholarships for your participants/families/members (1 revision)
- Translational Science (1 revision)
- Individual Speaker Recommendations (1 revision)
- Maintaining Computer Files (1 revision)
- Orphan Drug Application (1 revision)
- Setting up Useful Systems (1 revision)
- Travel (1 revision)
- Attaining 501(c)(3) Status (Not-For-Profit Determination) (1 revision)
- Getting Needs on Government and Legislative Agendas (1 revision)
- Informal Offices or Regional Support Groups (1 revision)
- Maintaining Your Membership (1 revision)
- Publisher Recommendations (1 revision)
- Sharon F. Terry (1 revision)
- Using Search Tools to Get Found (1 revision)
- Attending Professionals' Annual Meetings (1 revision)
- Connecting Organizations (1 revision)
- Financial Assets (1 revision)
- Getting Needs onto the Research Agenda (1 revision)
- Information about Rare Genetic Diseases (1 revision)
- Matching Resources (1 revision)
- Overview of WikiAdvocacy (1 revision)
- Recruiting (1 revision)
- Vision (1 revision)
- Considering Starting a Support Group for a Condition that Already Has One? (1 revision)
- Getting Your Community Interested (1 revision)
- Media Access (1 revision)
- Recruiting Celebrities (1 revision)
- Celebrity Spokesperson (1 revision)
- Getting Your Needs on Government and Legislative Agendas (1 revision)
- Intended Goal (1 revision)
- Media Tips (1 revision)
- Patient's Bill of Rights (1 revision)
- Functions of Advocacy Organization (2 revisions)
- Start Using WikiAdvocacy (2 revisions)
- Why Go There? (2 revisions)
- Internet Services: Listserv Guidelines Netiquitte Help (2 revisions)
- Charity Rating Listings (2 revisions)
- Benefits of Collaboration with Advocacy Organization Community (2 revisions)
- Childcare (2 revisions)
- Working with a Lawyer (2 revisions)
- Fundraising Appeals (2 revisions)
- Internet and Web Resources (2 revisions)
- Biobank Sample Collection (2 revisions)
- Resources for Nonprofits (2 revisions)
- Tax and Finance (2 revisions)
- Clinician- and Researcher-Focused Materials (2 revisions)
- Genetic Alliance BioBank (2 revisions)
- Novel Meeting Formats (2 revisions)
- Publications (2 revisions)
- Assistive Technology (2 revisions)
- Connecting Individuals (2 revisions)
- Family Health History Initiative Guidelines (2 revisions)
- Sibling Support (2 revisions)
- Autopsies and Tissue Collection (2 revisions)
- Consumer Medical Information (2 revisions)
- Registries (2 revisions)
- Medical Records (3 revisions)
- People and Roles (3 revisions)
- Webinars (3 revisions)
- Barriers to Rare Disease Research (3 revisions)
- Educating Membership about Research (3 revisions)
- Registry and Biobank Weekly Tips (3 revisions)
- Internet Services: Mailing Lists (3 revisions)
- Accountants (3 revisions)
- Helping Your Membership Help Your Group (3 revisions)
- Children's Hopes and Dreams Foundations (3 revisions)
- Defining Our Terms (3 revisions)
- General Resources (3 revisions)
- Joint Fundraising (3 revisions)
- Conference Call Services (3 revisions)
- Blood and Tissue Banks (3 revisions)
- Family Health History (3 revisions)
- Bylaws and Articles (3 revisions)
- Financial and Summary Statement (3 revisions)
- Volunteer - Peer Coaches (3 revisions)
- Finding a Lawyer (3 revisions)
- Volunteers (4 revisions)
- International Offices (4 revisions)
- Best Practices (4 revisions)
- BioBanks (4 revisions)
- Taking Credit Cards on the Web (4 revisions)
- Genetic Alliance(GA) SOP (4 revisions)
- Resources for School Success (4 revisions)
- Brochures and Fact Sheets (4 revisions)
- Insurance and Policies (4 revisions)
- PEER Portal (4 revisions)
- Challenges of 'Splinter Groups' (5 revisions)
- Support for Individuals and Families (5 revisions)
- Newsletters and Bulletins (5 revisions)
- Setting Up A National Conference (5 revisions)
- Working Remotely (6 revisions)
- State Registration (6 revisions)
- Ensuring Cultural Competence (6 revisions)
- Getting Grants (6 revisions)
- Donations from Canada/Outside the US (6 revisions)
- Drug Development (6 revisions)
- Fundraising/Third Party (7 revisions)
- Your Organization's Name Is Important (7 revisions)
- Advisory Boards (7 revisions)
- Audits (7 revisions)
- Youth to Adult Transition Issues (8 revisions)
- Publicity and General Media (8 revisions)
- Staff (9 revisions)
- Dealing with Death (9 revisions)
- Developing a Governance Board (10 revisions)
- Fundraising (14 revisions)
- Disease Advocacy Organization(DAO) Manual (15 revisions)
- Building a Website (16 revisions)
- Conferences, Workshops, and Meetings for Affected Individuals (21 revisions)
- Donations (25 revisions)
- Social Networking (36 revisions)
- Main Page (41 revisions)
- Overview (65 revisions)
- Disease Advocacy Organization (DAO) Manual (438 revisions)
