Difference between revisions of "Main Page"

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<h1><font size="5"><font color="darkorange">'''Welcome to </font><font color="navy">WikiAdvocacy'''</font></font></h1>
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'''WikiAdvocacy''' is a free, reader-built guide, as well as a community for advocacy. It covers every aspect of founding and growing an advocacy organization from fundraising to detailed explanations of issues, skills, and the elements of creating a registry and samples repository.
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If this is your first time visiting WikiAdvocacy, we recommend reading '''About WikiAdvocacy''' and '''How to Get Started'''.  We also recommend checking out the '''community portal''' and '''help''' pages. 
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<center>  | [[WikiAdvocacy: About|About WikiAdvocacy]] | [[How to Get Started]] | [[WikiAdvocacy:Community Portal|Community Portal]] | [[Help:Contents|Help]] |  [[How to: Create a New Wiki Page]]  | [[How to post a file on WikiAdvocacy]]
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----
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{|style="background:white;color:black;width:100%;" border="0" cellpadding="5" cellspacing="2" align="center"
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|style="width:50%;background:#f5ffa;border:1px solid #cef2e0;color:black;align:center;vertical-align:top"|
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{|style="color:black;width:99%;background-color:#cef2e0;font-weight:bold;border:1px solid #a3bfb1;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''Introduction'''
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|}
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*[[Defining Our Terms]]
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*[[The Power of Advocacy Organizations]]
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*[[Why Go There?]]
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*[[How to Use This Guide]]
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*[[History of Advocacy Organizations and Genetic Alliance]]
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*[[The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates|The Kitchen Table Is a Good Place to Start]]
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*[[Genetic Alliance]]
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{|style="color:black;width:99%;background-color:#cedff2;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|''' Assessment|Organizational Assessment '''
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|}
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*[[Determine Goals]]
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*[[Characterize Condition]]
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*[[Characterize Resources]]
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*[[ Compare Goals and Resources, with the Characteristics of the Condition]]
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*[[ Considering Starting a Support Group for a Condition that Already Has One?]]
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|-
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{|style="color:black;width:99%;background-color:#cedff2;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Developing the Organization That Can Achieve Your Goals|Organization Development]]: Organizational Structure'''
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|}
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*[[Advisory Boards]]
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*[[Bylaws and Articles]]
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*[[Developing a Governance Board|Governance Board]]
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*[[Ensuring Cultural Competence]]
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*[[Finding a Lawyer]]
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*[[Insurance and Policies]]
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*[[International Offices]]
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*[[NAC Best Practices]]
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*[[Your Organization's Name Is Important|Organization's Name]]
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*[[Staff]]
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*[[Tax and Finance]]
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*[[Volunteers]]
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*[[Working Remotely]]
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*[[Working with a Lawyer]]
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{|style="color:black;width:99%;background-color:#cef2e0;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Developing the Organization That Can Achieve Your Goals|Organization Development]]: Resources for Development'''
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|}
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*[[Becoming the Organization You Imagine]]
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*[[Building a Website]]
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*[[Charity Rating Listings]]
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*[[Conference Call Services]]
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*[[Donations]]
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*[[Events]]
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*[[Financial Assets]]
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*[[Getting Grants]]
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*[[Harnessing the Resources That Are Hard to Measure]]
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*[[Helping Your Membership Help Your Group]]
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*[[How to Obtain Donated Office Space]]
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*[[Choosing an Internet Service Provider|Internet Service Provider]]
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*[[Maintaining Computer Files]]
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*[[Maintaining Your Membership|Maintaining Membership]]
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*[[Meet Your Neighbors & Organizations]]
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*[[Member Dues]]
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*[[Novel Meeting Formats]]
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*[[People and Roles]]
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*[[Recruiting]]
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*[[Taking Credit Cards on the Web]]
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|-
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{|style="color:black;width:99%;background-color:#cef2e0;font-weight:bold;border:1px solid #a3bfb1;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Functions of Advocacy Organization]]: SUPPORT'''
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|}
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*[[Autopsies and Tissue Collection]]
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*[[Best Practices]]
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*[[Conferences, Workshops, and Meetings for Affected Individuals]]
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*[[Connecting Individuals]]
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*[[Connecting Organizations]]
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*[[Dealing with Death]]
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*[[Internet Services]]
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*[[Phone Services: Going Beyond the Phone Tree|Phone Services]]
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*[[Protecting Member Privacy]]
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*[[Informal Offices or Regional Support Groups|Regional Support Groups]]
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*[[Resources for School Success]]
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*[[Setting Up A National Conference]]
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*[[Social Networking]]
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*[[Support for Individuals and Families]]
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*[[Youth to Adult Transition Issues]]
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|style="width:50%;background:#f5faff; border:1px solid #cedff2; color:black;align:center;vertical-align:top"|
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{|style="color:black;width:99%;background-color:#cedff2;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Functions of Advocacy Organization]]: EDUCATION'''
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|}
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*[[Articles, Letters, and Other Media for Lay Publication]]
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*[[Brochures and Fact Sheets]]
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*[[Clinician- and Researcher-Focused Materials]]
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*[[Family Health History]]
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*[[Medical Records]]
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*[[Newsletters and Bulletins]]
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*[[Press Kits]]
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*[[Publicity and General Media]]
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*[[Publisher Recommendations]]
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*[[Starting Points for Planning Materials]]
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|-
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{|style="color:black;width:99%;background-color:#cedff2;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Functions of Advocacy Organization]]: RESEARCH'''
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|}
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*[[Barriers to Rare Disease Research]]
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*[[Benefits of Collaboration with Advocacy Organization Community]]
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*[[Blood and Tissue Banks]]
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*[[Consumers and Researchers: Making It Work|Consumers and Researchers]]
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*[[Creating a Natural History Survey]]
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*[[Educating Membership about Research]]
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*[[Facilitating Quality Research]]
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*[[Funding Research by Others]]
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*[[Getting Needs onto the Research Agenda]]
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*[[Genetic Privacy]]
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*[[Orphan Drug Application]]
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*[[Patient's Bill of Rights]]
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*[[Planning a Research Conference]]
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*[[Promoting Research]]
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*[[Registries]]
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*[[Registry and Biobank Weekly Tips]]
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*[[Research Models]]
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*[[Translational Science]]
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{|style="color:black;width:99%;background-color:#cef2e0;font-weight:bold;bolder:1px solid #a3b0bf;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''[[Functions of Advocacy Organization]]: ADVOCACY'''
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|}
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*[[Councils and Other Advisory Bodies]]
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*[[Getting an ICD-9 code added for your condition]]
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*[[Getting Needs on Government and Legislative Agendas]]
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*[[Legislation and Policy Advocacy]]
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*[[National Institutes of Health (NIH)]]
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*[[Policy Tools & Resources]]
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|-
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{|style="color:black;width:99%;background-color:#cef2e0;font-weight:bold;border:1px solid #a3bfb1;" border="0" cellpadding="5" cellspacing="2" align="center"
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|'''Resources'''
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|}
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*[[Advocacy Organizations List]]
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*[[Advocacy Resources]]
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*[[Assistive Technology]]
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*[[BioBanks]]
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*[[Blogging]]
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*[[Children's Hopes and Dreams Foundations]]
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*[[Consumer Medical Information]]
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*[[Emergency Preparedness]]
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*[[Fundraising]]
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*[[Fundraising Appeals]]
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*[[General Resources]]
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*[[Information about Rare Genetic Diseases]]
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*[[Matching Resources]]
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*[[Meet Your Neighbors & Organizations]]
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*[[Publications]]
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*[[Resources for Nonprofits]]
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*[[Sibling Support]]
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*[[State Registration]]
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*[[Travel]]
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|'''Speakers Bureau'''
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|}
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*[http://genomicsforum.org/?page=MDirectory Genomics Forum Directory]
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*[[Individual Speaker Recommendations]]

Revision as of 20:24, 25 February 2014

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Consult the User's Guide for information on using the wiki software.

Getting started

Welcome to WikiAdvocacy

WikiAdvocacy is a free, reader-built guide, as well as a community for advocacy. It covers every aspect of founding and growing an advocacy organization from fundraising to detailed explanations of issues, skills, and the elements of creating a registry and samples repository.

If this is your first time visiting WikiAdvocacy, we recommend reading About WikiAdvocacy and How to Get Started. We also recommend checking out the community portal and help pages.

| About WikiAdvocacy | How to Get Started | Community Portal | Help | How to: Create a New Wiki Page | How to post a file on WikiAdvocacy



Introduction
Organizational Assessment
Organization Development: Organizational Structure
Organization Development: Resources for Development
Functions of Advocacy Organization: SUPPORT
Functions of Advocacy Organization: EDUCATION
Functions of Advocacy Organization: RESEARCH
Functions of Advocacy Organization: ADVOCACY
Resources


Speakers Bureau
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