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Showing below up to 148 results in range #51 to #198.
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- Getting Needs on Government and Legislative Agendas (1 revision)
- Informal Offices or Regional Support Groups (1 revision)
- Maintaining Your Membership (1 revision)
- Publisher Recommendations (1 revision)
- Setting up Useful Systems (1 revision)
- Travel (1 revision)
- Attending Professionals' Annual Meetings (1 revision)
- Connecting Organizations (1 revision)
- Financial Assets (1 revision)
- Getting Needs onto the Research Agenda (1 revision)
- Information about Rare Genetic Diseases (1 revision)
- Matching Resources (1 revision)
- Overview of WikiAdvocacy (1 revision)
- Recruiting (1 revision)
- Sharon F. Terry (1 revision)
- Using Search Tools to Get Found (1 revision)
- Considering Starting a Support Group for a Condition that Already Has One? (1 revision)
- Getting Your Community Interested (1 revision)
- Media Access (1 revision)
- Recruiting Celebrities (1 revision)
- Vision (1 revision)
- Celebrity Spokesperson (1 revision)
- Getting Your Needs on Government and Legislative Agendas (1 revision)
- Intended Goal (1 revision)
- Media Tips (1 revision)
- Patient's Bill of Rights (1 revision)
- Available Resources (1 revision)
- Consumers and Researchers: Making It Work (1 revision)
- Editing Practice (1 revision)
- Getting a Biobank or Registry Started (1 revision)
- Registry Questionnaires (1 revision)
- Speaker selection and management (1 revision)
- Characterize Condition (1 revision)
- Cool Tips (1 revision)
- Funding (1 revision)
- Getting an ICD-9 code added for your condition (1 revision)
- Internet Services (1 revision)
- Meet Your Neighbors & Organizations (1 revision)
- Phone Services: Going Beyond the Phone Tree (1 revision)
- Registry and Biobank Ethics and Governance (1 revision)
- Accepting Donations (1 revision)
- Basic Formatting (1 revision)
- Characterize Resources (1 revision)
- Councils and Other Advisory Bodies (1 revision)
- Educating Your Membership about Research (1 revision)
- Funding Research by Others (1 revision)
- Harnessing the Resources That Are Hard to Measure (1 revision)
- Member Dues (1 revision)
- Planning a Research Conference (1 revision)
- Accessibility of Tools (1 revision)
- Becoming the Organization You Imagine (1 revision)
- Creating New Pages (1 revision)
- Education of Members, Providers, and the Public (1 revision)
- Health care Providers and Specialists (1 revision)
- Mentors (1 revision)
- Policy Tools & Resources (1 revision)
- Research Model 1: Recessive Disorder (1 revision)
- Starting Points for Planning Materials (1 revision)
- Working Full-Time on Nonprofit (1 revision)
- Creating a Natural History Survey (1 revision)
- Emergency Preparedness (1 revision)
- Internet Services: Websites, Chat Rooms, and Newsgroups (1 revision)
- NAC Best Practices (1 revision)
- Preparing for and Handling Publicity (1 revision)
- Research Model 2: Chromosomal Disorder (1 revision)
- State-Specific Issues (1 revision)
- Fundraising Appeals (2 revisions)
- Internet and Web Resources (2 revisions)
- Working with a Lawyer (2 revisions)
- Biobank Sample Collection (2 revisions)
- Resources for Nonprofits (2 revisions)
- Clinician- and Researcher-Focused Materials (2 revisions)
- Tax and Finance (2 revisions)
- Genetic Alliance BioBank (2 revisions)
- Novel Meeting Formats (2 revisions)
- Publications (2 revisions)
- Assistive Technology (2 revisions)
- Connecting Individuals (2 revisions)
- Family Health History Initiative Guidelines (2 revisions)
- Sibling Support (2 revisions)
- Autopsies and Tissue Collection (2 revisions)
- Consumer Medical Information (2 revisions)
- Registries (2 revisions)
- Functions of Advocacy Organization (2 revisions)
- Internet Services: Listserv Guidelines Netiquitte Help (2 revisions)
- Start Using WikiAdvocacy (2 revisions)
- Why Go There? (2 revisions)
- Charity Rating Listings (2 revisions)
- Benefits of Collaboration with Advocacy Organization Community (2 revisions)
- Childcare (2 revisions)
- Children's Hopes and Dreams Foundations (3 revisions)
- Defining Our Terms (3 revisions)
- General Resources (3 revisions)
- Joint Fundraising (3 revisions)
- Conference Call Services (3 revisions)
- Blood and Tissue Banks (3 revisions)
- Family Health History (3 revisions)
- Bylaws and Articles (3 revisions)
- Financial and Summary Statement (3 revisions)
- Finding a Lawyer (3 revisions)
- Volunteer - Peer Coaches (3 revisions)
- Medical Records (3 revisions)
- People and Roles (3 revisions)
- Barriers to Rare Disease Research (3 revisions)
- Educating Membership about Research (3 revisions)
- Webinars (3 revisions)
- Registry and Biobank Weekly Tips (3 revisions)
- Internet Services: Mailing Lists (3 revisions)
- Accountants (3 revisions)
- Helping Your Membership Help Your Group (3 revisions)
- Best Practices (4 revisions)
- BioBanks (4 revisions)
- Taking Credit Cards on the Web (4 revisions)
- Genetic Alliance(GA) SOP (4 revisions)
- Resources for School Success (4 revisions)
- Brochures and Fact Sheets (4 revisions)
- Insurance and Policies (4 revisions)
- PEER Portal (4 revisions)
- International Offices (4 revisions)
- Volunteers (4 revisions)
- Support for Individuals and Families (5 revisions)
- Newsletters and Bulletins (5 revisions)
- Setting Up A National Conference (5 revisions)
- Challenges of 'Splinter Groups' (5 revisions)
- Ensuring Cultural Competence (6 revisions)
- State Registration (6 revisions)
- Getting Grants (6 revisions)
- Donations from Canada/Outside the US (6 revisions)
- Drug Development (6 revisions)
- Working Remotely (6 revisions)
- Advisory Boards (7 revisions)
- Your Organization's Name Is Important (7 revisions)
- Audits (7 revisions)
- Fundraising/Third Party (7 revisions)
- Youth to Adult Transition Issues (8 revisions)
- Publicity and General Media (8 revisions)
- Dealing with Death (9 revisions)
- Staff (9 revisions)
- Developing a Governance Board (10 revisions)
- Fundraising (14 revisions)
- Disease Advocacy Organization(DAO) Manual (15 revisions)
- Building a Website (16 revisions)
- Conferences, Workshops, and Meetings for Affected Individuals (21 revisions)
- Donations (25 revisions)
- Social Networking (36 revisions)
- Main Page (41 revisions)
- Overview (65 revisions)
- Disease Advocacy Organization (DAO) Manual (438 revisions)
