Uncategorized pages

Showing below up to 100 results in range #1 to #100.

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1. Accepting Donations
2. Accessibility of Tools
3. Accountants
4. Additional/Supplemental Resources
5. Advisory Boards
6. Advocacy
7. Advocacy Organizations List
8. Advocacy Resources
9. Articles, Letters, and Other Media for Lay Publication
10. Assistive Technology
11. Attaining 501(c)(3) Status (Not-For-Profit Determination)
12. Attending Professionals' Annual Meetings
13. Audits
14. Autopsies and Tissue Collection
15. Available Resources
16. Barriers to Rare Disease Research
17. Becoming the Organization You Imagine
18. Benefits of Collaboration with Advocacy Organization Community
19. Best Practices
20. BioBanks
21. Biobank Sample Collection
22. Biobank and Registry External Relations
23. Biobank and Registry Financial Management
24. Blogging
25. Blood and Tissue Banks
26. Brochures and Fact Sheets
27. Building a Website
28. Bylaws and Articles
29. Celebrity Spokesperson
30. Challenges of 'Splinter Groups'
31. Characterize Condition
32. Characterize Resources
33. Charity Rating Listings
34. Childcare
35. Children's Hopes and Dreams Foundations
36. Choosing Internet Service Provider
37. Choosing an Internet Service Provider
38. Clinician- and Researcher-Focused Materials
39. Compare Goals and Resources, with the Characteristics of the Condition
40. Conference Call Services
41. Conferences, Workshops, and Meetings for Affected Individuals
42. Connecting Individuals
43. Connecting Organizations
44. Considering Starting a Support Group for a Condition that Already Has One?
45. Consumer Medical Information
46. Consumers and Researchers: Making It Work
47. Councils and Other Advisory Bodies
48. Creating New Pages
49. Creating a Natural History Survey
50. Dealing with Death
51. Defining Our Terms
52. Determine Goals
53. Developing a Governance Board
54. Developing the Organization That Can Achieve Your Goals
55. Disease Advocacy Organization(DAO)
56. Disease Advocacy Organization(DAO) Manual
57. Disease Advocacy Organization (DAO) Manual
58. Donations
59. Donations from Canada/Outside the US
60. Drug Development
61. Editing Practice
62. Educating Membership about Research
63. Educating Your Membership about Research
64. Education of Members, Providers, and the Public
65. Emergency Preparedness
66. Ensuring Cultural Competence
67. Events
68. Expertise
69. FARA Patient Registry Q & A
70. FARA Q & A
71. Facilitating Quality Research
72. Family Health History
73. Family Health History Initiative Guidelines
74. Financial Assets
75. Financial and Summary Statement
76. Finding a Lawyer
77. Functions of Advocacy Organization
78. Funding Research by Others
79. Fundraising
80. Fundraising/Third Party
81. Fundraising Appeals
82. General Resources
83. Genetic Alliance
84. Genetic Alliance(GA) SOP
85. Genetic Alliance BioBank
86. Genetic Privacy
87. Getting Grants
88. Getting Needs on Government and Legislative Agendas
89. Getting Needs onto the Research Agenda
90. Getting Your Community Interested
91. Getting Your Needs on Government and Legislative Agendas
92. Getting a Biobank or Registry Started
93. Getting an ICD-9 code added for your condition
94. Harnessing the Resources That Are Hard to Measure
95. Health care Providers and Specialists
96. Helping Your Membership Help Your Group
97. History of Advocacy Organizations and Genetic Alliance
98. How to: Create a New Wiki Page
99. How to Get Started
100. How to Obtain Donated Office Space

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