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Showing below up to 100 results in range #21 to #120.
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- BioBanks
- Biobank Sample Collection
- Biobank and Registry External Relations
- Biobank and Registry Financial Management
- Blogging
- Blood and Tissue Banks
- Brochures and Fact Sheets
- Building a Website
- Bylaws and Articles
- Celebrity Spokesperson
- Challenges of 'Splinter Groups'
- Characterize Condition
- Characterize Resources
- Charity Rating Listings
- Childcare
- Children's Hopes and Dreams Foundations
- Choosing Internet Service Provider
- Choosing an Internet Service Provider
- Clinician- and Researcher-Focused Materials
- Compare Goals and Resources, with the Characteristics of the Condition
- Conference Call Services
- Conferences, Workshops, and Meetings for Affected Individuals
- Connecting Individuals
- Connecting Organizations
- Considering Starting a Support Group for a Condition that Already Has One?
- Consumer Medical Information
- Consumers and Researchers: Making It Work
- Cool Tips
- Councils and Other Advisory Bodies
- Creating New Pages
- Creating a Natural History Survey
- Dealing with Death
- Defining Our Terms
- Determine Goals
- Developing a Governance Board
- Developing the Organization That Can Achieve Your Goals
- Disease Advocacy Organization(DAO)
- Disease Advocacy Organization(DAO) Manual
- Disease Advocacy Organization (DAO) Manual
- Donations
- Donations from Canada/Outside the US
- Drug Development
- Editing Practice
- Educating Membership about Research
- Educating Your Membership about Research
- Education of Members, Providers, and the Public
- Emergency Preparedness
- Ensuring Cultural Competence
- Events
- Expertise
- FARA Patient Registry Q & A
- FARA Q & A
- Facilitating Quality Research
- Family Health History
- Family Health History Initiative Guidelines
- Financial Assets
- Financial and Summary Statement
- Finding a Lawyer
- Functions of Advocacy Organization
- Funding
- Funding Research by Others
- Fundraising
- Fundraising/Third Party
- Fundraising Appeals
- General Resources
- Genetic Alliance
- Genetic Alliance(GA) SOP
- Genetic Alliance BioBank
- Genetic Privacy
- Getting Grants
- Getting Needs on Government and Legislative Agendas
- Getting Needs onto the Research Agenda
- Getting Your Community Interested
- Getting Your Needs on Government and Legislative Agendas
- Getting a Biobank or Registry Started
- Getting an ICD-9 code added for your condition
- Harnessing the Resources That Are Hard to Measure
- Health care Providers and Specialists
- Helping Your Membership Help Your Group
- History of Advocacy Organizations and Genetic Alliance
- How to: Create a New Wiki Page
- How to Get Started
- How to Obtain Donated Office Space
- How to Use This Guide
- How to post a file on WikiAdvocacy
- Individual Speaker Recommendations
- Informal Offices or Regional Support Groups
- Information about Rare Genetic Diseases
- Insurance and Policies
- Intended Goal
- International Offices
- Internet Services
- Internet Services: Listserv Guidelines Netiquitte Help
- Internet Services: Mailing Lists
- Internet Services: Websites, Chat Rooms, and Newsgroups
- Internet and Web Resources
- Joint Fundraising
- Knowing Your Community
- Leadership
- Legislation and Policy Advocacy