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Showing below up to 178 results in range #21 to #198.

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21. BioBanks
22. Biobank Sample Collection
23. Biobank and Registry External Relations
24. Biobank and Registry Financial Management
25. Blogging
26. Blood and Tissue Banks
27. Brochures and Fact Sheets
28. Building a Website
29. Bylaws and Articles
30. Celebrity Spokesperson
31. Challenges of 'Splinter Groups'
32. Characterize Condition
33. Characterize Resources
34. Charity Rating Listings
35. Childcare
36. Children's Hopes and Dreams Foundations
37. Choosing Internet Service Provider
38. Choosing an Internet Service Provider
39. Clinician- and Researcher-Focused Materials
40. Compare Goals and Resources, with the Characteristics of the Condition
41. Conference Call Services
42. Conferences, Workshops, and Meetings for Affected Individuals
43. Connecting Individuals
44. Connecting Organizations
45. Considering Starting a Support Group for a Condition that Already Has One?
46. Consumer Medical Information
47. Consumers and Researchers: Making It Work
48. Cool Tips
49. Councils and Other Advisory Bodies
50. Creating New Pages
51. Creating a Natural History Survey
52. Dealing with Death
53. Defining Our Terms
54. Determine Goals
55. Developing a Governance Board
56. Developing the Organization That Can Achieve Your Goals
57. Disease Advocacy Organization(DAO)
58. Disease Advocacy Organization(DAO) Manual
59. Disease Advocacy Organization (DAO) Manual
60. Donations
61. Donations from Canada/Outside the US
62. Drug Development
63. Editing Practice
64. Educating Membership about Research
65. Educating Your Membership about Research
66. Education of Members, Providers, and the Public
67. Emergency Preparedness
68. Ensuring Cultural Competence
69. Events
70. Expertise
71. FARA Patient Registry Q & A
72. FARA Q & A
73. Facilitating Quality Research
74. Family Health History
75. Family Health History Initiative Guidelines
76. Financial Assets
77. Financial and Summary Statement
78. Finding a Lawyer
79. Functions of Advocacy Organization
80. Funding
81. Funding Research by Others
82. Fundraising
83. Fundraising/Third Party
84. Fundraising Appeals
85. General Resources
86. Genetic Alliance
87. Genetic Alliance(GA) SOP
88. Genetic Alliance BioBank
89. Genetic Privacy
90. Getting Grants
91. Getting Needs on Government and Legislative Agendas
92. Getting Needs onto the Research Agenda
93. Getting Your Community Interested
94. Getting Your Needs on Government and Legislative Agendas
95. Getting a Biobank or Registry Started
96. Getting an ICD-9 code added for your condition
97. Harnessing the Resources That Are Hard to Measure
98. Health care Providers and Specialists
99. Helping Your Membership Help Your Group
100. History of Advocacy Organizations and Genetic Alliance
101. How to: Create a New Wiki Page
102. How to Get Started
103. How to Obtain Donated Office Space
104. How to Use This Guide
105. How to post a file on WikiAdvocacy
106. Individual Speaker Recommendations
107. Informal Offices or Regional Support Groups
108. Information about Rare Genetic Diseases
109. Insurance and Policies
110. Intended Goal
111. International Offices
112. Internet Services
113. Internet Services: Listserv Guidelines Netiquitte Help
114. Internet Services: Mailing Lists
115. Internet Services: Websites, Chat Rooms, and Newsgroups
116. Internet and Web Resources
117. Joint Fundraising
118. Knowing Your Community
119. Leadership
120. Legislation and Policy Advocacy
121. Main Page
122. Maintaining Computer Files
123. Maintaining Your Membership
124. Matching Resources
125. Media Access
126. Media Tips
127. Medical Records
128. Meet Your Neighbors & Organizations
129. Member Dues
130. Mentors
131. NAC Best Practices
132. National Awareness Day
133. National Institutes of Health (NIH)
134. Newsletters and Bulletins
135. Nonprofit Organization Sample Templates
136. Novel Meeting Formats
137. Obtaining and Maintaining Registry Data
138. Orphan Drug Application
139. Overview
140. Overview of WikiAdvocacy
141. PEER Portal
142. Patient's Bill of Rights
143. People and Roles
144. Phone Services: Going Beyond the Phone Tree
145. Planning a Research Conference
146. Policy Tools & Resources
147. Preparing for and Handling Publicity
148. Press Kits
149. Promoting Research
150. Promoting Research on a Condition
151. Protecting Member Privacy
152. Protecting Message Boards from Spam
153. Publications
154. Publicity and General Media
155. Publisher Recommendations
156. Recruiting
157. Recruiting Celebrities
158. Registries
159. Registry Questionnaires
160. Registry and Biobank Ethics and Governance
161. Registry and Biobank Weekly Tips
162. Research Model 1: Recessive Disorder
163. Research Model 2: Chromosomal Disorder
164. Research Model 3: Dominant Disorder
165. Research Models
166. Resources for Nonprofits
167. Resources for School Success
168. Results and Individual Follow-up
169. Scholarships for your participants/families/members
170. Setting Up A National Conference
171. Setting up Useful Systems
172. Sharon F. Terry
173. Sibling Support
174. Social Networking
175. Speaker selection and management
176. Staff
177. Start Using WikiAdvocacy
178. Starting Points for Planning Materials
179. State-Specific Issues
180. State Registration
181. Support for Individuals and Families
182. Taking Credit Cards on the Web
183. Tax and Finance
184. The Kitchen Table Is a Good Place to Start: Klinefelter Syndrome and Associates
185. The Power of Advocacy Organizations
186. Translational Science
187. Travel
188. Using Search Tools to Get Found
189. Vision
190. Volunteer - Peer Coaches
191. Volunteers
192. Webinars
193. Why Go There?
194. Working Full-Time on Nonprofit
195. Working Remotely
196. Working with a Lawyer
197. Your Organization's Name Is Important
198. Youth to Adult Transition Issues

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